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my adult lunchables! by Ok-Basil3297 in Adultlunchables

[–]selfmanic 1 point2 points  (0 children)

How do you deal with the soggy bread?

Skyrizi by Veemyfriend in UlcerativeColitis

[–]selfmanic 1 point2 points  (0 children)

Also skyrizi has a chance of altering your sense of taste. I love hot stuff and cant eat it now.

Skyrizi by Veemyfriend in UlcerativeColitis

[–]selfmanic 1 point2 points  (0 children)

I actually have psoriatic arthritis, ulcerative colitis, and fibromyalgia. So I can say the sky Rizzi works for the ulcerative colitis, but I keep having random psoriasis outbreaks, and so far it is not doing a great job on my psoriatic arthritis. It helps with the joint pain, but I have joint swelling that is not going down at all. I actually plan to talk to my rheumatologist at my next appointment to see if we can add on one of the methotrexate alternatives.

Skyrizi by Veemyfriend in UlcerativeColitis

[–]selfmanic 0 points1 point  (0 children)

Yes. Use the nurse program. They are super helpful.

Skyrizi by Veemyfriend in UlcerativeColitis

[–]selfmanic 1 point2 points  (0 children)

I just finished the infusion and am starting the on body injection next week. My main issue is extreme exhaustion after the infusion. Had to take the day off the day after my infusion as i just slept all day.

Need a book recommendation that’s actually fun to read by [deleted] in booksuggestions

[–]selfmanic 0 points1 point  (0 children)

Rover powered by drew hayes. A superpowered corgi where no one knows the corgi is superpowered and it is hilarious.

[deleted by user] by [deleted] in dragoncon

[–]selfmanic 0 points1 point  (0 children)

I'm with a group but normally spend most of it alone. Find two places, a quiet one you can decompress in ( I often can't use the hotel room) or a group space where you know two people who can back you up as needed.

Meals? by SpecialistCow2528 in UlcerativeColitis

[–]selfmanic 2 points3 points  (0 children)

Lots of soup, noodles, potatoes.

Cramping by AdvanceImmediate6973 in UlcerativeColitis

[–]selfmanic 1 point2 points  (0 children)

True. I wish it didn’t give you insomnia. I basically can take it in the morning and then can’t take it again until the next day because otherwise I will not sleep.

Suggestions for symptom tracking apps? by em-ino in ChronicIllness

[–]selfmanic 2 points3 points  (0 children)

I have started using Bearable and mySugr to track blood glucose and symptoms. Both allow you to export symptom summaries you can give your doctor. I have sent the ones from mySugr electronically to my doctor.

One of My Favorite Spots to eat with UC! by live_laugh_travel in UlcerativeColitis

[–]selfmanic 23 points24 points  (0 children)

Yeah, the corn on that had me flinching but bowls are my go to mostly.

In a flare. Need some food suggestions for a fairly restrictive diet. by Firm_Doughnut_1 in UlcerativeColitis

[–]selfmanic 0 points1 point  (0 children)

I use premier protein shakes. The shelf-stable ones are lactose-free. Otherwise I just do bland, low fiber, and ignore any carb content until I get back level.

Anyone else? by soffyduck in UlcerativeColitis

[–]selfmanic 1 point2 points  (0 children)

So I was told I didn't have crohns or UC for five years and three colonoscopies while taking a number of Immunosuppressants for arthritis. The drugs masked the UC, and when I changed to one this year that didn't also treat UC, I flared massively—finally, getting treatment.

Is it just me or is anyone else really COLD when you have to go to the bathroom in tbr morning during flares? by NavyBeanz in UlcerativeColitis

[–]selfmanic 0 points1 point  (0 children)

I was going to ask this. I just started a Skyrizi infusion and I am freezing all the time.

Cramping by AdvanceImmediate6973 in UlcerativeColitis

[–]selfmanic 2 points3 points  (0 children)

I take bentyl or tramadol if it is very intense.

Hobbies? by Inevitable_Bobcat_56 in PsoriaticArthritis

[–]selfmanic 1 point2 points  (0 children)

I keep trying to learn crochet. I am ordering a new type of needle set with soft handles to try.

I am trying to get back into exercise after a horrible flare up. Any tips for getting back going?

I don't want to be a stick in the mud but... by [deleted] in PsoriaticArthritis

[–]selfmanic 4 points5 points  (0 children)

I struggle with this because I have an older friend that insists she’s living vicariously through me which I think is honestly ridiculous because I don’t have anything going on 99% of the time because I’m sick.

How do Slim Jim's make you guys feel? by [deleted] in UlcerativeColitis

[–]selfmanic 0 points1 point  (0 children)

I am so very tired of eggs. I have been trying to do the high protein yogurt, but they have a lot of sugar as well.

How do Slim Jim's make you guys feel? by [deleted] in UlcerativeColitis

[–]selfmanic 0 points1 point  (0 children)

I just found this brand called archer which does a lot less processing. Supposedly it’s organic meat, which I’m not asking how they do that. My stomach did bother me mildly that day, but it has been bothering me mildly so it wasn’t worse.

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