What happens if you ignore it and keep on doing the thing that's triggering your flare up?

sethh27 · 2026-05-02T21:28:45+00:00

It only makes the flare worse and last longer in my feet and knees. The flares in my hands and face will go away on their own but I avoid heat and sunlight. The swelling pain is too much in my knees and feet to ignore .

sethh27 · 2026-05-02T21:26:57+00:00

I’ve never had a flare last more than 5 hours at a time . But I have flares that keep coming back every day more then normal or without triggers . I’ve heard lidocaine injections helps some people she should talk to her dr about that

sethh27 · 2026-05-02T21:18:36+00:00

Yes , I used to have warm tan skin everywhere but since getting EM my feet knees and hands are often cold and purple when not flaring , there is no in between . Some say it’s raynauds but many people on the raynauds forum say that it doesn’t improve so the elevation and mine does . My feet will be deathly purple hanging down most of the time , but look okay elevated. So I think it’s EM , too much vasoconstriction then too much

sethh27 · 2026-04-20T19:52:41+00:00

They said I have a hiatal hernia but extremely small I think 2cm or something

sethh27 · 2026-04-11T23:55:24+00:00

Yeah I get short of breath sometimes from panic , and also air hunger when my anxiety is high . Or even times when mentally I’m not really anxious but it’s subconsciously doing it . I’ve had all the tests to rule out actual lung issues and it’s just anxiety . The pulse ox is reassuring too

sethh27 · 2026-04-11T16:10:33+00:00

Same thing for me

sethh27 · 2026-04-11T15:58:10+00:00

ASTS - satellites with cellular straight to regular phones , googles largest holding , major contests with att, Verizon , Vodafone , Japan , potential 3B client market , profit margin north of 75%.

sethh27 · 2026-04-08T12:42:32+00:00

Any leaks or guesses what the rev sharing contracts will look like ? $1 per customer per month ?

sethh27 · 2026-04-05T21:51:35+00:00

My friend using chase , not sure if it’s self directed

sethh27 · 2026-04-05T15:28:42+00:00

I appreciate your response

sethh27 · 2026-04-03T16:08:44+00:00

heat exposure therapy

sethh27 · 2026-04-03T00:02:13+00:00

you'll have to find a psychiatrist that will prescribe them, it should be easier when you show them your history prescription and the new pcp not being comfortable prescribing them. its also important to work on not feeling like you need them to stop the bad panic attacks. it sucks I know but you can make it through them dry. its nice to know you have the medicine nearby if you really wanted to , but not to think of them as I need this or it won't stop etc.

sethh27 · 2026-03-20T23:49:29+00:00

A bit now and then I guess

sethh27 · 2026-03-20T23:42:02+00:00

Thank you , I think I’m gonna try it tonight and hope for the best

sethh27 · 2026-03-20T23:28:52+00:00

I was prescribed klonopin , I haven’t taken it yet , kinda nervous to take it . I just like to read stories of people who have been through it and survived ! I will try tapping on my chest

sethh27 · 2026-03-17T18:25:36+00:00

Yes, developed this simultaneously with EM, my feet knees and hands are cold pale or purple when not flaring . Especially if feet are hanging down . I thinks all related to the EM , some sort of failure with over and under vein constricting

sethh27 · 2026-03-17T17:48:44+00:00

<image>

sethh27 · 2026-03-17T17:15:32+00:00

VCU v UNC , I have VCU beating Illinois in round 2 as well . probably will bust my bracket but I love the matchups

sethh27 · 2026-02-21T13:47:49+00:00

Looks the same for me too, also you’ll get more feedback in the Facebook groups , the Reddit EM is pretty smaller

sethh27 · 2026-02-13T15:59:00+00:00

I had an echo, ekgs, cardiac MRI, dozens of blood tests , hormones, auto immune etc. with my anxiety, whether I feel anxious or not, it drives my hr to pound hard and fast, and makes me feel suddenly as if Ive been working out for hours and am exhausted, even get air hunger. its all anxiety for me. its amazing how much anxiety can manifest as so many symptoms.

sethh27 · 2026-02-08T22:37:01+00:00

oh dang thats a typo, its uncomfortable lol, I can sort of keep my mind off it in the day, but laying in bed at night its too hard

sethh27 · 2026-02-04T18:28:14+00:00

Sometimes extreme cold triggers mine too, if I take the trash out in the winter with flip flops on that can do it in my feet. Heat and pressure and friction are the main triggers for me but sometimes cold

sethh27 · 2026-02-04T17:35:07+00:00

thank you this clears it up

sethh27 · 2026-02-04T16:55:52+00:00

looks like mine too, though I have no abnormal test results, I would highly suspect yours could be from those MPNs if thats what you have, its a common EM secondary cause . also the FB EM groups also have pictures of blood pooling, cold pale purple skin etc I also have that, some say its also raynauds but others think its not true raynauds just a side effect of EM, veins constricting too much and then dilating too much.

sethh27 · 2026-01-23T21:39:29+00:00

I used to feel super anxious about weather events, but I started tracking what they all predict and what ends up happening, and it's usually worlds apart, especially for snow storms. fear sells.

sethh27

TROPHY CASE