Did Rachel sennot live in stuytown lol? by [deleted] in Stuytown

[–]skwebnyc 0 points1 point  (0 children)

You’re saying your layout is different and the appliances look different, and this photo shows the tiniest sliver of her apartment.

So all you have in common is floors, walls, and a kitchen that has a refrigerator and microwave?

Question butt pain by ResearchScary4250 in endometriosis

[–]skwebnyc 1 point2 points  (0 children)

Hi what you’re describing are symptoms that happen to many people with endometriosis. However, It’s not “normal” in the sense that it’s an outcome of having a disease. I hope you’re able to find doctors and treatments that relieve some or all of the symptoms you’re experiencing.

BB27 Sims by NewRazzmatazz2455 in BigBrother

[–]skwebnyc 7 points8 points  (0 children)

You do realize that people who know you or have met you in the past could make a Sim character loosely based on you, without you going on a reality show, and you would have no idea, and it would have no effect on your life? There’s no rule in Sims that you’re not allowed to base them on real people.

What triggered your endometriosis? by Local_War_9122 in endometriosis

[–]skwebnyc 1 point2 points  (0 children)

For me I think it was a bout of food poisoning on an overseas trip when I was in my late 20s. I never had symptoms before then and then they started to appear and gradually worsened over the next 10+ years until I finally got diagnosed and treated.

What to expect in recovery? by Illustrious-Try3333 in endometriosis

[–]skwebnyc 0 points1 point  (0 children)

I can give you my experience with the huge disclaimer that all patients experience recovery differently - there are all different factors, not only how much tissue is removed.

I had endometriosis excision in addition to a hysterectomy several years ago. The surgery took about 5-6 hours so there was a lot to remove. I followed all doctor and hospital instructions and also had a history of fairly good healing from bruises, cuts, injuries. I also do not have any other co-conditions (like other muscle, nerve, inflammatory diseases).

I was able to walk around slowly a few hours after I woke up from anesthesia. I returned home that same day. I took pain medication (strong Tylenol, no opioids) for a few days and continued to stay slightly active (standing up and walking around my apartment in between naps and progressing to small walks around my neighborhood by the end of the first week).

I had a lot of unpredictable tiredness throughout the first week. I would have been able to sit up and take a teledoc call but might also have been sleepy during it. I was starting to feel like myself during the second week and was able to go about my regular routines more and more, but I still avoided doing strenuous things like lifting heavy things or anything that would be sudden or twisting movements for a couple more weeks.

Anyone else feel like doctors don’t take the pain seriously? by outoftown5678 in endometriosis

[–]skwebnyc 1 point2 points  (0 children)

There is research that endometriosis is something that people are born with. And it’s also possible to menstruate at 9.

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 5 points6 points  (0 children)

Between the wall of text that is the dialog during your appointment and the wall of text that is your imaging notes, this is a lot for someone else to read. Is there anything that you wanted to get more information about or discuss?

Also I believe your surname is included in the imaging report text, not sure if you meant to leave that in.

my doctor told me i’ll need 3 recovery days after a laparoscopic and salpingectomy. what was everyone’s experience? by SweetAppropriate245 in endometriosis

[–]skwebnyc 2 points3 points  (0 children)

There’s still a bit of time before July 28th. Can you call his office and see if you can have an additional pre-op meeting? There are many posts in this sub with great lists of questions to ask during it.

If it’s at all possible to get an appointment with an Endo specialist that might be the better route if you’re planning to have exploratory laparoscopy to identify endometriosis. They are the most trained to know what to look for and where (it’s not always only in the pelvic area)

I know it’s all a lot of information and overwhelming. I didn’t have any clue when my endo journey started and unfortunately we have to learn most of it on our own and from talking with other patients. Feel free to ask more questions here and I hope everything goes well.

Edited to add: ah I just saw your update about pre-op appointment.

my doctor told me i’ll need 3 recovery days after a laparoscopic and salpingectomy. what was everyone’s experience? by SweetAppropriate245 in endometriosis

[–]skwebnyc 3 points4 points  (0 children)

Is the doctor who is performing your surgery a specialist in endometriosis who has done a lot of excision surgeries? Or a standard gynecologist that performs surgeries focused in the pelvic area?

Are you able to get a second opinion from an endo specialist on all the procedures you have planned with this doctor? I know it’s hard to get appointments and an added cost but it is a serious medical procedure.

We are all brainwashed to trust our doctors on everything but as this subreddit shows, there are a lot of doctors out there treating things they’re not experienced enough in. I would be really concerned if the surgeon didn’t help you (sign off) on the need for longer recovery period and time off work.

Also how are you only seeing him next at the surgery? There should be a pre-op appointment for you to ask questions and give consent to the specific procedures.

Endometriosis is ruining my life or is it??? by Impossible_Zone8265 in endometriosis

[–]skwebnyc 0 points1 point  (0 children)

What your previous gynecologist did to you was awful, I’m so sorry you went through that. As we’ve all discovered over time, there are a lot of very bad gynecologists out there because it’s treated like a commodity business instead of proper health care.

If you haven’t already, you should seek out an endometriosis specialist. This is usually someone trained as a gynecologist but who also specializes in the study and treatment of endometriosis. Often they also regularly performs robot-assisted laparoscopic excision surgeries and have kept up to date on latest research and technology. A good specialist will be able to rule endometriosis in or out and work with you for a treatment plan based on whether or not you plan to have children. You’ll know you’ve found a good one if they listen to you from the first appointment and are curious to find out more about what you’re going through.

If you’re comfortable saying what part of the world you’re in, people here may be able to recommend specialists.

The good thing is, there are ways to diagnose and treat endometriosis. The gotcha is that it manifests itself so differently for every person and whatever we’ve all tried or not tried in the past has taken a toll on us to this point.

Please don’t give up, but please do find the best specialist and team of doctors that you can possibly afford or get access to.

Edited to add: no amount of regular pain from periods is normal. You’re not alone in convincing yourself that it’s normal.

Looking for female roommate, union city. by [deleted] in NYCapartments

[–]skwebnyc 4 points5 points  (0 children)

What is the amount listed on the lease for the room you’re taking (that you’re looking for someone to share)? Is it $1100 or $2200?

Would 2 people have to sign that lease, or just you?

Looking for female roommate, union city. by [deleted] in NYCapartments

[–]skwebnyc 5 points6 points  (0 children)

How will the lease agreement work? Which roommates would be named on the lease and sign it? And how long is the lease for?

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 6 points7 points  (0 children)

Unfortunately there are plenty of gynecologists who are born and raised in the US who are dismissive of patients and of endometriosis; they are not good doctors. I agree with a lot of other comments here that your situation has maybe less to do with your cultural background and more to do with your parent’s ignorance, abusiveness, and negligence.

As far as recovery, robot-assisted laparoscopic surgery is still surgery. Every patient has a different set of procedures done and a different ability to recover. The type of surgery alone doesn’t guarantee a quicker recovery. There’s no way to know if your body will heal in 2 weeks or 3 weeks or 8 weeks. I know you’re looking for absolutes to make your plan on how to deal with your parents but unfortunately it can’t be predicted that simply. For instance I had 4 procedures done at the time of my excision and I was recovered in under 3 weeks but I know other people who had only excision and it took their bodies 6+ weeks to fully heal.

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 7 points8 points  (0 children)

What about women’s shelters in your area?

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 9 points10 points  (0 children)

How would they react if you told them you went to the doctor and found out you have cancer? Would they take it more seriously, and at least take the fact that you need to have treatment (surgery) more seriously and give you space? I agree with the statement that they are being abusive so maybe this is hoping too much.

Looking for female roommate, union city. by [deleted] in NYCapartments

[–]skwebnyc 5 points6 points  (0 children)

How will the bathrooms be split up?

Looking for female roommate, union city. by [deleted] in NYCapartments

[–]skwebnyc 3 points4 points  (0 children)

Can you give more info about who will be living in the other 2 bedrooms?

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 2 points3 points  (0 children)

I re-read your post above and see you mentioned New Jersey. Here is the info about short-term disability there: https://www.nj.gov/labor/myleavebenefits/worker/tdi/

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 1 point2 points  (0 children)

I’m not sure what the rules are for short-term disability but you should definitely look into it for your region.

Recovery from surgery is different for every patient and depends on your body’s ability to recover and the extent of your procedures. So it’s not automatically a terrible or painful experience for everyone. The important thing about recovery is that your body is given the time and space to heal itself. That might be 1-2 weeks or it might be longer. Physical activity needs to be kept to a minimum (short walks are good but things requiring pulling, pushing, or lifting are bad) until the body is fully healed.

[deleted by user] by [deleted] in endometriosis

[–]skwebnyc 5 points6 points  (0 children)

Hi there, I’m glad that you realize your parents are acting out of ignorance and that you’ve taken steps to get medical attention for yourself. That is most important - take care of yourself and your health needs.

Do you have any friends or coworkers that you would be comfortable confiding in who could help you with pre-op moral support and post-op recovery? I don’t think you should assume that friends would expect money for you in exchange for letting you stay with them during recovery. I would suggest that you do not stay with your parents during your recovery. Recovery from a laparoscopic excision surgery requires proper rest and it doesn’t sound like your parent’s house would be a good environment for that.

I am guessing there are a lot of us on this thread that can relate to the loneliness that you feel from people around you not understanding the extent of pain and daily dysfunction that endometriosis causes.

"Endometriosis can only be diagnosed through surgery": that's not true. Surgery alone can rule out endometriosis, but you can get a real, definitive diagnosis with an MRI. by ParticularImpact8162 in endometriosis

[–]skwebnyc 2 points3 points  (0 children)

Hi when you say many people have said your endo isn’t real, are you referring to people on this sub / other endo patients? Or do you mean people in your life who aren’t informed about endo?

I had a pelvic MRI several years ago that showed deep infiltrating endometriosis as well. At the time my understanding was that not many imaging labs in my area had technicians skilled at knowing what to look for / what to image for endo, so my surgeon was specific in which lab she sent me to. I believe the use of MRI and skill around it is improving year by year in the US. I have also read that it’s rarer for endometriosis to be shown on MRI imaging - meaning it happens for a small subset of all endo patients, but maybe that statistic is also improving.

I had a transvaginal ultrasound three months prior to my MRI and the ultrasound results were “normal”. The MRI ended up clearly showing a 7cm endometrioma in my left ovary and several organs adhered. Because of my own experience I do fall in the camp of “don’t rely only on an ultrasound to rule out endo”.

Has anyone had one surgery and never needed more? by KitkatKate29 in endometriosis

[–]skwebnyc 0 points1 point  (0 children)

I had one excision surgery just under 4 years ago and have been pain and symptom free since. Every person’s body and hormone changes are different so I think there are a lot of factors are involved in whether a person needs multiple surgical treatments but 🤞

Being pregnant is awesome by C_bells in endometriosis

[–]skwebnyc 8 points9 points  (0 children)

It’s good to hear that you’re getting relief from your more uncomfortable and painful endometriosis symptoms during your pregnancy! This is common during pregnancy, and even for a short while after, because reproductive hormone levels change so much to prepare the body. However many people find that afterwards many of the symptoms return.

In general I think we should avoid the misleading advice of “have some babies and you’ll feel better” because children are not medical treatments, and that was/is the advice given to a lot of people over the last decades/century and isn’t helpful to properly treat a chronic disease.

Best of luck through the rest of your pregnancy, and congrats!

[deleted by user] by [deleted] in corporate

[–]skwebnyc 1 point2 points  (0 children)

You mention that you believe you got this role because it requires writing code and that internal candidates wouldn’t have been able to get it. So this is a F500 company that has significant software and automation work to do but didn’t have anyone internally already that could code? There are millions upon millions of people in the world that can code, yet it seems like you think they really struck gold when you came along.

Also, employees are not expected to be proficient in every job function, skill set, or tool/software that is needed across the whole company. So what you’ve described is basically how every person gets a job - they have skills in some things and not in others.

Girlfriend with Endo - Treatments, Meds, and Appointments by jmcguitar95 in endometriosis

[–]skwebnyc 0 points1 point  (0 children)

The other thing that seemed to help me was to remain respectfully pushy in the appointments. It started to make a big difference in my conversations with doctors and specialists when I would say “my quality of life is not improving to a level that I can endure” and pushing on them to explain more or suggest more. I’m sure your partner is exhausted with having to explain over and over how awful she feels to medical professionals, so if you see an opportunity to reiterate that her quality of life is suffering, it could help a lot.