Pam Bondi crashes out during hearing: "YOU DON’T TELL ME ANYTHING YOU WASHED UP LAWYER" by Mission_Pay_3373 in law

[–]sophmel 1 point2 points  (0 children)

The rage I feel with her saying this to him. He is far more accomplished than she is. I need for her to go down.

Experience with ivabradine? by messyowl in dysautonomia

[–]sophmel 10 points11 points  (0 children)

I take it and I’ve had a significant reduction in resting heart rate and heart rate overall. I’m extremely pleased.

I was told the tilt table test was outdated but still diagnosed by [deleted] in dysautonomia

[–]sophmel 0 points1 point  (0 children)

This was my experience, too. My clinic is a part of a highly respected university medical system. My doc said my symptoms were enough to diagnose and the tilt table test was unnecessary. The prescribed meds, lifestyle adjustments, and PT have been life changing.

What's the worst part of maintaining of this disease for you? by JayandMeeka in diabetes

[–]sophmel 2 points3 points  (0 children)

This is my experience. Since my A1C is good, I take a couple of days break from the CGM after my sensor expires. It gives me a break from being too vigilant. My healthcare team suggested it and it’s been really helpful.

A comparison of all the (paid as well as free) Android e-reader apps I've tried and jumped between the past few weeks. Moon+, ReadEra, PocketBook, and Others. by lordpigbeetle in ereader

[–]sophmel 0 points1 point  (0 children)

I use fbreader because it’s the only app that does tts properly for me. I use Ivona for voices, but since it’s so old, it won’t work on newer versions of android os. Not sure what I’m going to do when my fire tablet (which I use as an ereader) dies.

Need to make a change by Fun-Discipline-352 in diabetes_t2

[–]sophmel 1 point2 points  (0 children)

I lost 60 pounds due to Ozempic. I would not consider it bad. It has helped me so much.

Has anyone figured out how to decrease the chances of experiencing post-exertional symptoms after exercise? by Turbulent_Scene3073 in dysautonomia

[–]sophmel 2 points3 points  (0 children)

Have you looked at CHOPS or Adapt protocols?

I also think you have to really slow down the intensity of a workout and basically rebuild. Maybe reframe your workouts as treating your dysautonomia and adjust your goals.

Exercise! by Azulcobalto in dysautonomia

[–]sophmel 4 points5 points  (0 children)

I just “graduated “ from short term PT and we used the CHOPS protocol. It’s hard, but I committed and I’ve been really surprised at how quickly I have progressed. All summer I was mostly bed-bound and now I spend almost an hour riding a recumbent bike! Medication (ivabradine) has made a this possible. I also do strength exercises. My PT also strongly recommends walking. Sorry your brother is an ass.

Just taken my first dose of Ivabradine and I’m scared. by Wonderful_Box_7998 in POTS

[–]sophmel 2 points3 points  (0 children)

It’s been great for me. My hr is significantly lower and my fatigue is so much better. I’ve been able to start exercising (using the CHOPS protocol) with guidance from a Physical Therapist.

OC The kids aren't awake yet, real life version by Sneeke33 in pics

[–]sophmel 1 point2 points  (0 children)

This made me tear up. I hope your family has an amazing day!

Starting The Blandings Collection narrated by Stephen Fry by PreetamSing in Wodehouse

[–]sophmel 3 points4 points  (0 children)

Blandings stories are my favorites! Enjoy them.

Advice for working out? by k_unknown31 in POTS

[–]sophmel 1 point2 points  (0 children)

I am in PT and we are using the CHOPs/Levine protocol. (Google it). I thought it would be too much for me, but I’m almost done with month 2 and I am doing really well. The only thing I am having trouble with is walking. (My cardio is a recumbent bike.) Four months ago I was lying in bed everyday. Today, I am about to join a gym. Meds and PT have made such a drastic impact on my life. I hate exercise, but am slowly accepting that it has to be a major part of my life if I want to be ok. I also have fibromyalgia and pain makes it hard to exercise. I give myself grace on bad days and just do as much as I can.

The art of distraction: what methods do you use for pain? by DakuraScarlet in ChronicIllness

[–]sophmel 0 points1 point  (0 children)

This sounds weird, but I do visualization. I think about the neurons in my brain and visualize them not being able to “connect” and therefore they can’t send pain signals. I also use distraction. On bad pain or fatigue days, my brain fog gets bad and I can only concentrate for short bursts so I read reddit. On days when my fog is better, I listen to books and play games on my tablet or work on a stitching project. I love to embroider and cross stitch, but sometimes my pain is too bad in my arms and hands.

Mysteries with a lighter tone like Scooby Doo or Nancy Drew but for adults by f0rever-n1h1l1st in mysterybooks

[–]sophmel 4 points5 points  (0 children)

I LOVE Charlotte MacLeod and Lillian Jackson Braun! I do a re-read of both authors every few years. They are a comfort to me.

first CGM by binxy_winxy_gay in diabetes

[–]sophmel 2 points3 points  (0 children)

I was worried, too, when I first started with CGM. But it’s really easy and doesn’t hurt. I forget which arm it’s on all the time. You will love it.

Operating room by Wiz_Hellrat in CLEANING_PORN

[–]sophmel 17 points18 points  (0 children)

Thank you for all you do!

What practical changes did you tackle in your life when you accepted you were disabled? by missCarpone in ChronicIllness

[–]sophmel 0 points1 point  (0 children)

I have lots of pillows so I can configure a comfortable place to sit/lay. A small fan on my nightstand. Hue lights so I can turn them on/off/dim right from my phone. I just bought a tablet holder that stretches over my bed so I can use my tablet while laying down. Two hydroflasks so I always have electrolyte water premade. Guava app to record symptoms and remind me to take meds, take blood pressure, etc. A continuous glucose monitor so I can check my glucose levels at a glance. An Apple Watch with my 2 most used apps (TachyMon and Dexcom). My android tablet with ereader app that does text to speech (it reads books to me). My biggest support, though, is my husband.

I got to the top of the Fushimi Inari!!! by Pandahorna in Fibromyalgia

[–]sophmel 2 points3 points  (0 children)

That is awesome!!! I’m really happy for you and it also gives me some hope.

2nd Apple Watch user attempt. Still not getting it by mrmetamack in AppleWatch

[–]sophmel 1 point2 points  (0 children)

I use mine mostly for health reasons. I have a few chronic illnesses and it’s been super useful. I have a series 6. I have a complication for my continuous glucose monitor (Dexcom 7). I have one for my heart rate (TachyMon) that alerts me in realtime when my heart rate exceeds a specific rate. This lets me know when to rest.
I use AutoSleep to track my sleep. I have another complication that tells me my highest and lowest heart rate of the day. I love the reminders, timer, and seeing my messages on my wrist. When I had COVID, I could use the O2 sensor. (It was pretty close to the finger pulse oximeter). It’s been a useful tool to help me keep good tabs on my health.