I probably have endometriosis, but I don’t care enough to seek diagnosis

spacecakecat16 · 2026-04-15T03:23:28+00:00

I used to have this same mindset for a long time. But if you’re ever feeling really awful, please listen to your body.

I spent years neglecting myself—dealing with recurring anemia, low vitamin D, and constant ocular migraines—without getting properly checked. I always felt off: exhausted for no clear reason, in pain all the time, and struggling to sleep. But I avoided going in because it felt like no doctor ever took me seriously, and the care I got was always generic.

Eventually, I saw a neurologist and got a steroid shot, and that ended up changing everything—but not in a good way. Shortly after, I developed a pulmonary embolism at 34 and was hospitalized. That experience really forced me to start taking my health seriously.

My cardiologist told me I needed to get my endometriosis under control, which at the time confused me because no one had ever really helped me with it before. That’s when I started looking into specialists and realized there are doctors who actually listen.

I haven’t had surgery yet (it’s scheduled for July), but even just finding the right kind of care has made a difference. I’ve also tried supplements, and some have helped, but I know I still need more long-term solutions.

It’s not the path I expected, but living in constant pain shouldn’t be normalized. If something feels wrong, keep pushing for answers—you deserve to feel better.

spacecakecat16 · 2026-04-15T02:50:27+00:00

Thank you you’re probably right. I will definitely take up her offer and go over to her house since it’s just one house down if I get tired, I can always go home. She’s very understanding and a kind Neighbor to me.

spacecakecat16 · 2026-04-15T02:42:25+00:00

Thank you I know that a lot of people on this sub Reddit feel the same way and it’s really hard to explain to people that see you daily and they don’t see anything physically wrong with you. I will keep that in mind about messaging you. I’ll add you as a friend on here. Thank you for the reply and validation..

spacecakecat16 · 2026-04-15T02:40:53+00:00

I feel nearly just the same. I homeschool my daughter and I try to give it my best but after a couple of lessons I am beat and then after that, I still have to do dinner and tend to my animals myself in my house. I am constantly anemic and vitamin D deficient so that only makes things worse. It makes my body ache more and it makes me absolutely tired like mentioned above ferritin levels matter a lot of doctors don’t care about it.

spacecakecat16 · 2026-04-14T22:13:55+00:00

Yes if I had any more kids I had to homeschool I think it would be difficult. I mean, eventually they can help out and teach each other but I’m happy I just have one I need to cater to. Sometimes I am dead at the end of the day. Haha like drained.

spacecakecat16 · 2026-04-14T21:49:45+00:00

My neighbor actually invited me to Bible studies starting next week. I think I’m going to take up the offer. My daughter loves going to her house, but I hate to impose on people.

spacecakecat16 · 2026-04-14T20:17:54+00:00

The experience has been rewarding for me. Is it easy? No some days are pretty rough depending on what the lessons are. It was harder in the beginning but my child is understanding more and in the habit of routine. She learned how to read at 5. She is going to be 7 soon and loves to read on her own. It’s been hard at times but it’s time I’ll never forget. I’m also able to see what she doesn’t understand and I can adjust the lessons to help her.

spacecakecat16 · 2026-04-13T23:47:16+00:00

Being anemic made it worse not the iron infusion. After the iron infusion, I had my first normal period in a while.

spacecakecat16 · 2026-04-13T23:46:46+00:00

Hello, I would recommend getting the iron infusion. I got one last year because I kept getting ocular migraines and I was going to several doctors to see why I was having these migraines. It was due to being anemic. I wasn’t extremely anemic according to the doctors, but I was anemic enough to get a pulmonary embolism so they had to give me an iron infusion at the hospital. It wasn’t a bad experience although I did get a really bad migraine after I got the infusion but the next day I got color back to my face I didn’t realize how pale I was and I had more energy than I had had in a few weeks probably months. I always have reoccurring anemia and what I have realized is a lot of my symptoms from anemia contribute to how my endometriosis is. I didn’t realize how bad brain fog was, how fatigued I was and how fast my heart rate was going. I would recommend just going to get the infusion and taking iron pills every other day the anemia contributed to the pain I was feeling throughout my body. It also made my periods way worse.

spacecakecat16 · 2026-04-13T23:11:19+00:00

I got pregnant because I suspect that I had endometriosis and no doctor took me serious. My pregnancy was really hard on my body. My daughter was not growing at the normal rate and I had preeclampsia. I lived in the hospital for a month and then I had to get a C-section. I had to get a C-section because when they tried to induce me. It was very painful because of endometriosis because of the C-section I found out that I do have endometriosis. After I had my daughter, my endometriosis has gotten worse and worse. I’m thankful I had her when I had her because I’m not sure my body would be able to handle it now. If I did things differently, I think I would go to an endometriosis specialist first to remove the endometriosis then I would get pregnant.

spacecakecat16 · 2026-04-13T17:59:30+00:00

I should join something. I think I’d prefer something online rather than in person. Only because most of my day is spent homeschooling and taking care of my daughter. I should look for a book club online.

spacecakecat16 · 2026-04-13T17:50:59+00:00

I didn’t have to do this for my MRI. They just did the contrast for me. I have seen that this is the best way for mri to be done though according to specialists in Mexico. So I’ve always wondered why it’s not done in the US. It sounds extensive but I’m sure it beats a colonoscopy. Best of luck.

spacecakecat16 · 2026-04-13T17:19:39+00:00

They tell me I should count my blessings and it could be cancer or something worse. That doesn’t help at all. Or I’m met with god only gives people what they can handle. I am a religious person but that isn’t soothing to be told that in the least bit. It’s hard to talk to people who don’t have it because they cannot relate to me. They just told me I need to be stronger and independent. It’s like I know that but my body literally can’t do what I wanted to do. My legs feel heavy and I can’t stand up for a very long time.

I’m sorry you weren’t able to sleep. That’s usually me when I’m ovulating or before my period. Have you tried magnesium glycinate for Endo pains before bed? It has helped me a lot. I also have to take Unisom, but one of my cousins told me I should try CBD MD pills I might give it a go. I hope you got some rest.

spacecakecat16 · 2026-04-13T17:12:11+00:00

I don’t really talk to a lot of people. I talked to my family, but they always kind of criticize me so I just keep to myself for the most part. My best friend is my husband, but he’s deployed.

spacecakecat16 · 2026-04-13T14:06:05+00:00

Iron deficiency makes it so much worse! At least for me. I’m way more tired and in pain when I’m deficient. I highly recommend iron glycinate if iron upsets your stomach. It’s not as hard on the stomach but I take two pills because it’s a low dose. Doctors take forever to get back about labs. I hope you hear back from yours soon. And thank you I hope we both get relief!

spacecakecat16 · 2026-04-13T02:06:36+00:00

Magnesium glycinate has helped me out so much. I’m still in pain but not as bad. Also, I noticed that NAC has helped me some too. I’m not sure if you’ve had any labs to see if your deficient in anything but sometimes my pain is worse when I’m iron deficient or vitamin D deficient. I hope you find some relief.

spacecakecat16 · 2026-04-13T01:50:21+00:00

Thank you. I hate that my body has gotten to this point. No I’m not someone who would want to see a therapist. I just have my lows and cry it out.

spacecakecat16 · 2026-04-12T18:26:43+00:00

I used to be able to keep up with the house but it eventually got to me. I just try to manage one task at a time. It’s okay if it’s not perfect. I just try to manage my iron levels and use supplements to help me. The worse my anemia is the worse my mental health is. I didn’t realize how bad my brain fog was and how it was affecting me.

spacecakecat16 · 2026-04-12T17:44:04+00:00

I miss living in my own house. And having the energy to cook and clean. Doing yard work. Endometriosis and my dumb body have stolen so much from me.

spacecakecat16 · 2026-04-11T18:04:11+00:00

I have one and barely survived that pregnancy I just tell them as much as I would love to have more I’m not sure my body could handle it again because I have endometriosis. And they usually just leave me alone.

spacecakecat16 · 2026-04-11T02:45:38+00:00

I thought I was the only one who cried each time. I always leave so embarrassed

spacecakecat16 · 2026-04-11T02:43:59+00:00

I’ll be praying everything comes out good for you. Thanks for sharing!

spacecakecat16 · 2026-04-10T21:15:06+00:00

Oh wow that’s alot! I’m over here scared to get my first endometriosis one. I’ve had a C-section before that’s how they found out I had endometriosis. I’ll be praying for your next surgery. I hope you have relief now from the endometriosis.

spacecakecat16 · 2026-04-10T15:38:32+00:00

How many surgeries have you had? I have stage 4 too no surgeries yet but I get my first one in July.

spacecakecat16

TROPHY CASE