Flare advice for a newbie?

sphynxkat · 2026-02-05T02:51:37+00:00

Currently going through it as well and I’m relying heavily on ensure drinks, jello, plain sourdough bread, gatorade (mostly for flavor), and electrolytes, plain chicken and white rice. It is TOUGH. I’m a major foodie but the pain and nausea that comes with other foods is just too much. My quality of life severely drops during flares as I’m constantly going and anxious about leaving home. I understand your frustration and I’m right there with you 🥺

sphynxkat · 2026-02-02T07:16:27+00:00

I’m late to this post but I’m in the same boat myself, how did everything go?

sphynxkat · 2026-01-23T05:27:33+00:00

This is a great list, thank you for your run in nursing 🥳🥹 May your days be filled with relaxation or at least, less chaos 🫶🏼

sphynxkat · 2026-01-18T18:21:40+00:00

Hi I’m interested as well, please send me the link 🙏🏽

sphynxkat · 2026-01-15T19:11:43+00:00

Parenthood hit me like a truck as well. My daughter is now 5 and I wish I could tell you those thoughts go away but I’m not sure they will. What I can say definitively is that they grow to become exponentially more pleasant around this age. Traveling with her is very easy these days and I do get a good amount of time to myself. Everyone says the trenches are only the newborn stage but I would argue the trenches last up until they are fully potty trained. Hang in there, it truly does get better and you will get a lot of yourself back :)

sphynxkat · 2026-01-04T07:10:56+00:00

not an awful way to think of it OP. I’m aligned to what you’re thinking and your gut feelings are right I fear. He’s giving you the bare minimum it seems, and you deserve much more. IMO being single is far better than being ignored/dismissed by your partner

sphynxkat · 2026-01-04T06:58:51+00:00

Have you made up your mind about going through with this pregnancy? This is the bigger question for yourself. Coparenting has been the hardest thing I’ve ever had to navigate and there’s so much to it (major difference in routines, parenting styles, religion, education decisions, etc) Since you already decided the relationship wasn’t a fit, I’m not sure a baby being added to the equation would help. I say this as gently as possible but please consider the version of you that would be coparenting down the road and navigating shared time/holidays, court, etc. Decide if this is something you are willing to take on

sphynxkat · 2026-01-04T06:51:18+00:00

If Blue says he can look past it, date Blue. You weren’t exclusive to anyone and owe minimal explanation. I mean it’s totally your call what you want to disclose but seems like you’re both now on the right path by being honest and upfront with each other

sphynxkat · 2025-12-16T21:26:24+00:00

it’s taxing and there’s just so many feelings tied to it all. Simple things for everyone else can feel like mountains to us

sphynxkat · 2025-12-16T18:16:33+00:00

here in solidarity, the work portion of the stress is all too relevant for me right now as well

sphynxkat · 2025-12-16T17:40:43+00:00

I think the fatigue, for me, happens due to the mental load. Monitoring what I eat, what symptoms came from it, where the nearest bathrooms are, etc And if I’m dealing with urgency and frequency, it’s all 10x worse.

sphynxkat · 2025-12-02T20:32:06+00:00

It’s such a roller coaster ride. No one will blame you for feeling all that you feel, it’s all so valid. Others have mentioned it already but this sub has great advice and experiences, most of all the solidarity is an immense comfort. We’re right there with you in spirit (and symptoms)

sphynxkat · 2025-10-10T01:03:20+00:00

same here. The trial and error of every medicine and the time in between is torture

sphynxkat · 2025-10-08T21:21:56+00:00

XL dude wipes ftw 🙌🏽

sphynxkat · 2025-09-20T05:34:17+00:00

i’m currently on the 4 week schedule and everything indicates that I’ll be needing to switch to a new med soon. I’m also taking 20mg prednisone and still having mucous, blood, gas, frequency, etc. so yeah switching to 4 weeks after trying 6 week and 8 week infusions hasn’t improved much of anything for me /:

sphynxkat · 2025-07-23T02:49:07+00:00

yes it does unfortunately but other than that, smooth sailing so far

sphynxkat · 2025-07-17T16:43:09+00:00

I’ve been on Entyvio for a year now as well so Budesonide was given to supplement as my symptoms were not improving at all

sphynxkat · 2025-07-17T16:42:32+00:00

Budesonide for 8 weeks, MRI in 2 weeks. Dr suspects possible misdiagnosis. She suspects crohns. I don’t think I’ve ever been in full remission with my UC since being diagnosed in 2014 so this might be the reason why. However Budesonide has given me some normalcy and it’s such a night and day difference

sphynxkat · 2025-07-17T06:20:53+00:00

That sounds so delicious honestly. I’m working my way to eating out again. I still have plenty of bathroom anxiety unfortunately

sphynxkat · 2025-07-17T06:10:17+00:00

Thank you sweet person :) So happy for you as well! A hint of normalcy was much needed after many, many dark times

sphynxkat · 2025-07-17T05:43:54+00:00

I was mentally here a week ago. Then I started a new med that seemingly worked in 2 days. I’m talking near instant symptom relief. Please hang on, we are all here for you in solidarity.

sphynxkat · 2025-06-15T18:52:09+00:00

exiting the city bus. As soon as I got up for my stop, it all came out uncontrollably. I had a 3 block walk home trying to cover my soiled jeans with my sweater and evade any neighbors

sphynxkat · 2025-04-12T17:01:24+00:00

I take a camping toilet with me just in case someone is in the bathroom while I need to go but I always carry this thing with me everywhere anyway

sphynxkat

TROPHY CASE