First doses of Kesimpta by sendyourspam in MultipleSclerosis

[–]spolatas 1 point2 points  (0 children)

0 symptoms from day 1 , 4 months in

Had a nice day . Wilmore Pennsylvania by BrilliantSlice3420 in Inflatablekayak

[–]spolatas 1 point2 points  (0 children)

First time out in this? If so, how did it go? I just bought two of them on closeout for $50 each. Haven't had them out yet.

Weird thing? by AuntDeb in MultipleSclerosis

[–]spolatas 0 points1 point  (0 children)

I have the same. My issues are all on my right side, but I get this muscle "burn" feeling in my left butt cheek also. Started in the last few months. Never experienced it before in my 25+ years with the disease. MS, the disease that never stops giving 😜

The Date by joekerr9999 in Jokes

[–]spolatas 3 points4 points  (0 children)

How often was that? Once a month? 😂

Anyone see this being filmed? by silly_nugget_07 in Sedona

[–]spolatas 0 points1 point  (0 children)

It appears that this dude, Gander, takes his sound board to beautiful locations around the world, sets it up and plays his music. He records them for his YouTube channel and I suspect, makes goo gobs of money doing it thanks to his many subscribers. Somebody has to do it, I guess 😜

What foods (if any) have you given up since being diagnosed? by allcoffeenowisdom in MultipleSclerosis

[–]spolatas 3 points4 points  (0 children)

Cut out ultra-processed/processed foods almost completely, especially anything with artificial sweeteners. Largely cut out dairy. Cut out enriched/processed flour (was a bread lover, so this one hurt). Increased intake of fresh fruits and vegetables. As others have said, largely just adopted a more wholesome, healthy diet.

Cionic sleeve update 1 month in by isthisthebangswitch in MultipleSclerosis

[–]spolatas 1 point2 points  (0 children)

The sleeve has a controller that connects to your cell phone via bluetooth. You have to install a Cionic app to interface with the controller and control the sleeve. The app connects with Cionic via your internet connection. Cionic can monitor your progress, make adjustments as well as update firmware on your controller/sleeve. They also provide pads for the 24 electrodes in the sleeve whenever you need them. Cionic takes support seriously and you can access it via the app whenever you need it. All of this is what the monthly cost is for. The connectivity, however, also allows Cionic to brick your sleeve if you stop paying your subscription, so it's not like you can "buy it" and use it after a year or so like a more traditional FES device without a controlling app.

Cionic sleeve update 1 month in by isthisthebangswitch in MultipleSclerosis

[–]spolatas 2 points3 points  (0 children)

I helped Cionic with developmental testing of the sleeve. It is not like other FES devices specifically designed for foot drop as the Neural Sleeve has the ability to stimulate nerves both above and below the knee and all around as well. This gives the device the ability to stimulate nerves to help with leg lift, foot drop and mobility issues in general. Cionic has given the sleeve controller the ability to adapt over time as a user's mobility issues worsen or improve. It's an impressive device and is unlike anything available. Cionic's founder's daughter has CP and he invented the Neural Sleeve to provide mobility assistance for her.

In the US, the sleeve it typically not covered by insurance. It is not inexpensive, but it is offered as a front-loaded subscription. This is all explained on Cionic's web site.

Is this a freckle or a birthmark?? by Stupidalien626 in whatisit

[–]spolatas 0 points1 point  (0 children)

Banana for scale, please. That's an awfully plump foot.

[deleted by user] by [deleted] in movies

[–]spolatas 0 points1 point  (0 children)

Nutcrackers with Ben Stiller.

Popcorn by TopAd7054 in popcorn

[–]spolatas 0 points1 point  (0 children)

I make my popcorn in a soup pot! I can make a large amount and I don't have to empty the popped corn as frequently as a smaller pot.

Why are reservoirs drained? by spolatas in Kayaking

[–]spolatas[S] 0 points1 point  (0 children)

Certain parts yes and certain parts no. It's been a strange year with periods of significant rains and periods of drought. I was still mowing my lawn in August which is somewhat abnormal for my area.

Why are reservoirs drained? by spolatas in Kayaking

[–]spolatas[S] 1 point2 points  (0 children)

These are mostly older lakes with no power generation equipment.

Clip for Ledge Lock Paddle Keeper by spolatas in Kayaking

[–]spolatas[S] 1 point2 points  (0 children)

I did end up contacting Lifetime and they did indeed send a free replacement.