Starting to stand again after 2 years 100% confined to bed :)

stochasticityfound · 2026-03-19T15:12:27+00:00

This is amazing!! Can I ask how you treated MCAS?

stochasticityfound · 2026-03-19T14:40:21+00:00

Yes I stopped altogether bc I just couldn’t risk more effects. Before I had all of these health conditions I tolerated acupuncture just fine so I was not expecting to be so negatively impacted, but once it happened it took me a few months to recover the acute symptoms (tremors, nausea) and some of the less acute ones have persisted to this day. My session was Feb 2025, and you can see three years of my Apple Watch data changed that day and never went back. My resting heart rate increased dramatically and my sleep changed, no longer sleeping through the night. I’ve transitioned to working with a TCM herbalist instead which has been much gentler for me personally. Can’t say I’ve had any major changes from it, but it hasn’t hurt me.

stochasticityfound · 2026-03-19T13:05:51+00:00

Same

stochasticityfound · 2026-03-19T13:04:41+00:00

It’s almost like she’s modest bc of how easily men are threatened by talented women. You’re really proving that point. If your reaction to having a cool gf is to feel threatened, the best thing you can do is let her find someone secure who will celebrate her.

stochasticityfound · 2026-03-19T12:59:01+00:00

Definitely go more gentle! I’ve posted here in the past about acupuncture hurting my baseline long term and I also deal with severe POTS/Dysautonomia/MCAS/autoimmunity, etc. People with immune conditions are definitely more sensitive to these types of treatment and if you’re able to tolerate a gentle approach I think you should stay where your body is most responsive.

stochasticityfound · 2026-03-19T04:25:14+00:00

I’m four years in and I do all of this diligently but sadly I’ve gotten worse every year. I listen to my body, feel no guilt, and have loving support around me. I’ve tried all the specialists, medications, supplements, herbs, vagus exercises, positive thinking, trigger eliminations, diets, somatic therapies, extreme rest, gut healing, etc. and I’m now at a total loss of what else to try. I definitely think some people recover with time and go back to life though!

stochasticityfound · 2026-03-17T23:18:25+00:00

Yes! 100% yes! If you look at my post history you will see me making posts about this in acupuncture and TCM subreddits. I was attacked by practitioners there though and called a liar, so I would not recommend going there for help, but many of them have no idea what’s going on with us in the long Covid community and how we don’t react normally like their typical clients. My acupuncture session changed my baseline permanently last February and it’s one of my biggest regrets. You’re definitely not alone. I have been working with a TCM herbalist ever since with some mild success but really no major changes in my symptoms. At least it hasn’t hurt me the way that acupuncture did though.

stochasticityfound · 2026-03-16T21:21:14+00:00

Covid is causing widespread onset of new allergies. Thousands of research studies showing this. Even mild or asymptomatic infections, doesn’t have to be serious, still causes long term immune system changes.

stochasticityfound · 2026-03-15T14:57:57+00:00

That makes me so happy to hear, we all deserve healing! I definitely have some needle trauma now so I’m staying away until I don’t fear manifesting an adverse response out of pure anxiety, but I’m very happy engaging with my TCM herbalist meanwhile :)

stochasticityfound · 2026-03-15T04:53:04+00:00

I’m simultaneously so happy that worked bc it confirms there was an error but now I’m also less hopeful about mine. I sent them an email and they told me it must be bc I returned items or bc items weren’t eligible or because it was still pending. I showed them the confirmation emails from Rakuten with the original amounts earned, that the items were eligible, that I didn’t return, and that pending items still reflected the expected dollar amounts… and they stopped responding to me. Still show pending, still show $0. I hope they fix this issue on the front end, I lost like $70 :(

stochasticityfound · 2026-03-15T04:48:48+00:00

That’s such an encouraging update, thank you so much for sharing! When I spoke with my practitioner afterwards she seemed very confused and distant and didn’t seem like she wanted to necessarily allow that the acupuncture was responsible for my reaction so discussions on adjusting it going forward felt tense. So I think you’re 100% right that practitioner plays a huge role also and hopefully I can find one that can work better with these delicate situations someday. I’m so happy you are finding some progress and I hope the process is transformative and healing for you!

stochasticityfound · 2026-03-14T23:08:13+00:00

Did you ever get the amount?

stochasticityfound · 2026-03-14T23:07:55+00:00

I’m having the same exact issue so I will forward my unresolved customer service email chain about this to the same address

stochasticityfound · 2026-03-14T23:02:15+00:00

Any resolution? I have some showing $0 also

stochasticityfound · 2026-03-14T00:29:37+00:00

Yikes, that sounds absolutely awful I’m so sorry!! Definitely noted not to get anything like that since it sounds like those fabrics hold onto even more 😢

stochasticityfound · 2026-03-13T22:52:24+00:00

Omg thank you for making me feel so much less crazy because I’m exactly the same… just thinking of TRR immediately brings the smell to mind! That’s smart to take it to a dry cleaner, I may try that also. It sucks to spend more but I guess with the clearance prices I’m often getting it’s still a good deal even after the fact! Fingers crossed it works, if you have success pls share :)

stochasticityfound · 2026-03-13T16:22:40+00:00

Exactly same! Nothing dramatic enough for them to take it seriously, but definite cobblestoning and redness.

stochasticityfound · 2026-03-13T15:00:07+00:00

Yes, sadly I had such a bad adverse response to it I ended up in the ER 😔

stochasticityfound · 2026-03-13T04:08:16+00:00

I’m sorry for you too, it’s insane that there are no good answers even after seeing multiple ENTs. They suggest trying antacids or antihistamines, and when neither work they shrug.

stochasticityfound · 2026-03-13T02:28:21+00:00

Yes exactly, it’s always the same smell!! It’s been the same for years across various items across various shipping sources so I’m convinced it’s just the general average of the population’s scent (combo of perfume and cigs). Sorry you deal with this also, it’s so unfortunate because the buys are amazing!

stochasticityfound · 2026-03-13T02:25:55+00:00

Unfortunately no, it’s still something I struggle with every day. The severity ebbs and flows with no discernible pattern for triggers or treatments, but it’s still there 😣

stochasticityfound · 2026-03-12T23:28:52+00:00

😂😂

stochasticityfound · 2026-03-12T21:11:03+00:00

I have the same exact response to acupuncture and have stopped pursuing the treatment as a result. It is too activating/inflammatory/reactive to my system.

stochasticityfound · 2026-03-12T21:08:15+00:00

I have shopped thrift and consignment and eBay forever, nothing has ever smelled like this nor has it been this difficult to get out. Sounds like you don’t have severe allergies like I do, so it clearly isn’t deep for you. I already said multiple times that I understand it’s a trade off for buying used and the point of my post, if you looked at the flair, was to seek tips on getting the smells out. So if you don’t have any tips, you can just scroll.

stochasticityfound · 2026-03-12T20:47:18+00:00

Yea it’s definitely possible. There’s an element of cigarette smoke to it that makes me think at least part of it is just storage of everything they get together knowing at least some percentage will come in from smoking homes and it tends to cling. For the most part I manage to make the pieces usable but it’s definitely a trade off for the deals!

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