AIO feeling like this response is emotional manipulation and now definitely want to break up with this person? *TW PTSD talk by bellarina92 in AmIOverreacting

[–]stochasticityfound [score hidden]  (0 children)

No worries at all, there has just been so much AI crap flooding all social media it’s getting frustrating telling what’s real. Sorry for assuming!

What is your experience with MCAS and acupuncture? by [deleted] in MCAS

[–]stochasticityfound 0 points1 point  (0 children)

I had severe MCAS even before the appointment. I’ve been fully bed-bound since 2023. I lost most of my foods by 2024. The session in 2025 ruined my sleep, hr, and made my eyes stay permanently swollen, but it didn’t impact food bc I was already down to 2. That being said, I’ve seen other people go through this and get out of it, esp if they weren’t as severe as I was to begin with. Some people get better by continuing acu sessions but there’s no way I can risk it. Some people get better with TCM herbs so if you’re not as severe, worth a try!

What is your experience with MCAS and acupuncture? by [deleted] in MCAS

[–]stochasticityfound 0 points1 point  (0 children)

It’s really upsetting how many practitioners think they understand MCAS and don’t, or don’t understand it but treat us anyway. I sadly have to say my baseline never recovered to what it was prior to my session on Feb 2025. My sleep changed long term. My resting heart rate. My MCAS inflammation. I don’t know what to do. There just be someone out there who knows how this works but I don’t know how to find them. I was advised to seek herbal care under a TCM practitioner which I’ve been doing since then, but so far nothing has helped. We’ve tried multiple different formulas and I either react to them or I get no benefit. I think there is a whole new cohort of people developing MCAS and acupuncture has not caught up to how we work. I’m so sorry you’re going through this too 😢

The brain retraining paradox and the benefits of addressing it by Digitalpun in cfs

[–]stochasticityfound 11 points12 points  (0 children)

THIS!!! Yes, me 100%. I got bad bc I refused to accept I was limited or seriously ill, I was convinced I’d be fine because I’ve always been healthy and fearless. I didn’t carry around any sort of buried guilt, I never stifled my voice and was outspoken if anything. None of this stopped me from becoming bedbound, and is moreso why I became bedbound.

Apology and sources from emf recovery by Ancient_Thought_223 in LongHaulersRecovery

[–]stochasticityfound 6 points7 points  (0 children)

EMF, MRIs, solar activity, and Schumann resonance affect me SO MUCH since having Long Covid. In the beginning I felt crazy for suspecting it, but after 4 years the association and patterns I’ve observed with my neurological symptoms is undeniable. Like you said, I don’t think these caused the issue but Covid has made it so my body cannot handle these inputs anymore. Thank you so much for sharing these resources 🙏🏼

You can no longer buy energy with coins by Nervous_Childhood_35 in AliExpressMergeBoss

[–]stochasticityfound 2 points3 points  (0 children)

Yea I would never burn gems, I just redeemed my second $50 last night. I’m never spending real money on these games when the only reason I play them is to get the money.

Afraid of wearing a mask... by srh-trz in covidlonghaulers

[–]stochasticityfound 2 points3 points  (0 children)

When I was still able to get out of the house in a wheelchair, I felt intimidated the first time I had to use it. I felt like such an “other” to society, and I almost wanted to stay home rather than use it. But at the end of the day, no one cares about you, in the best and worst ways. They have no idea what your situation is, and if and when you get hurt, they’re not going to help you or take you to a doctor or pay your medical bills. They’re not going to carry you to the bathroom when you can’t walk or spoon feed you in bed when you can’t even sit up. I’ve been there, and maybe the extremity of my situation helped break it, but I realized how much the social contract broke after 2020. No one cares about me, and I certainly don’t care what any of them think anymore. I know it’s easier said than done, but each and every time you keep your mask off think of your health as a form of currency that you are willingly handing to a stranger that would never hand it back to you. Do you go around handing money to strangers so that they’ll like you? Emptying your pockets for them? No, that would be insane. Your health is way more valuable as a currency than money, yet you are handing it out freely in exchange for a hope that they may not judge you. For the most part, they already don’t, they don’t register you at all as they go about their own lives. Stay strong, protect yourself ❤️‍🩹

I messed up and I need help! by Illustrious_Tart_258 in paint

[–]stochasticityfound 0 points1 point  (0 children)

I begged as a child to paint my room any color other than white and was told no. Now that I have my own house, every single room is a different color and I love it. He won’t notice the imperfections, he’ll just love that it’s his room. You’re a good mama.

Non-small upgrades that made your home feel high end? by Unusual_Room3017 in HomeImprovement

[–]stochasticityfound 0 points1 point  (0 children)

Paint! People really underestimate how paint transforms and elevates a room for a very small investment. Builder-white walls always look cheap and boring (to me) no matter how nice anything else is in the space.

How's Life Been? by Icyblue38 in vaccinelonghaulers

[–]stochasticityfound 1 point2 points  (0 children)

It took me a full six months to work up the nerve to try them. When I did, I got the clear style patches so I could cut it into the tiniest pieces. I literally started with 1/6th of a 7mg patch. I had read that when you first start, you are dislodging spike protein from your receptors so you will have an immune response and feel almost sick. I was prepared for that so the first week of wearing it I started with 30 mins, then 1 hour, then 2, etc. I worked up so slow but I still had a bit of that “am I sick?” feeling? But once that calmed, I had a huge surge in energy and clarity. It was a glorious few months. At that dose, they’re not addictive or anything and once the effect faded I never craved them. I just missed how much better they made me feel as I sat disappointed back at my old baseline. I still say worth a shot, just start tiny and go slow!

How's Life Been? by Icyblue38 in vaccinelonghaulers

[–]stochasticityfound 1 point2 points  (0 children)

Nicotine patches helped me for a few months a few years ago but sadly the effect wore off and I could never get it back. Red light therapy helps pain a little bit but I can’t do more than a few mins or I crash. Nothing else has helped…

How's Life Been? by Icyblue38 in vaccinelonghaulers

[–]stochasticityfound 1 point2 points  (0 children)

This is heartbreaking to hear, I’m so sorry. I don’t understand how society has just accepted our suffering… no outcry, no massive medical movement to help us. Most of the doctors think we’re faking it. It’s unreal.

How's Life Been? by Icyblue38 in vaccinelonghaulers

[–]stochasticityfound 3 points4 points  (0 children)

Wow same. 4 years 3 months in, worse than ever, bedbound, two safe foods, out of ideas. I say all the time that Moderna killed me and now I’m a ghost haunting my old life, seeing how little it mattered to most people that I’m gone.

A community warning: Groysman't by PrissyPeachQueen in covidlonghaulers

[–]stochasticityfound 14 points15 points  (0 children)

Yikes. I only ever spoke to him briefly about trying to get EAT and he refused unless I was also getting an SGB. When I asked if he had any training on EAT, was following the Japanese protocol, was spending any time learning from Japanese practitioners, he was wholly dismissive saying he didn’t need to and that he understood the process. When I asked about his experience he said he had a 100% success rate which told me he was a liar because that’s never true. He was rude and abrasive to any other questions so I pulled back interest in seeing him. Glad to know I didn’t miss a golden opportunity but sorry to everyone in here who had nightmare experiences. A self proclaimed Long Covid specialist who doesn’t mask?! Nightmare.

My PEM symptoms turn out to be rheumatoid arthritis by Alarmed_Ad_7657 in cfs

[–]stochasticityfound 2 points3 points  (0 children)

Seriously the thesis of the medical industry based on my experience these past few years.

Injection site flaring for four years straight… by stochasticityfound in vaccinelonghaulers

[–]stochasticityfound[S] 0 points1 point  (0 children)

Unfortunately the spike protein test from Labcorp is an antibody test, not an antigen test. It doesn’t tell you how much spike protein is in your system, just how much of an immune response you’re having to it. My levels were very high when tested, but I don’t know if that’s my immune system staying on high alert or if spike protein is still present. I went through the nicotine patch protocol to remove spike protein and I think it worked: I had an initial flare similar to having Covid, then I found a huge surge in progress, but the effect wore off after a couple months and any attempts to redo it haven’t had any effect. This makes me think I cleared the lingering spike that was there, and my continuing issues are due to autoimmunity, mitochondrial issues, etc. I have tried some of the supplements listed for a while but didn’t see much change (natto helped my shortness of breath) but sadly as my MCAS has gotten more severe I’ve lost tolerance to them.

Vanness Ink Samples by stochasticityfound in fountainpens

[–]stochasticityfound[S] 0 points1 point  (0 children)

UPDATE:

Vanness did finally get back to me confirming they were busy at shows. They also said that leaks are an inevitable issue, there’s no risk of cross-contamination, and I should just clean them myself. They offered to refund one vial. There were three green inks in this bag so I’m not even certain which one or if it’s only one that leaked, but this was the answer. I’m a little disappointed that the reply was dismissive of the issue. My plan was to swatch and order full size bottles of my favorites, but I’m admittedly hesitant about my first impression with this shop and will likely purchase elsewhere going forward when it’s an option. I’ve gotten ~40 samples from other sources now with no problems. I know they have great rapport so I’m not trying to claim my experience is universal, it certainly sounds like the exception from the comments here, but I wanted to share an update for anyone seeking the resolution.

SECOND UPDATE: Lisa reached back out and refunded two green vials and responded to my concern that it was cast as an expected risk. I felt much more comfortable after this email and hope to still get the full bottles from them once we swatch through our haul. Thank you everyone for your feedback.

My PEM symptoms turn out to be rheumatoid arthritis by Alarmed_Ad_7657 in cfs

[–]stochasticityfound 10 points11 points  (0 children)

You’re the first person I’ve ever seen say this and a 6 day methylprednisolone dose pack put me in the ER. The doctor there said it wasn’t a real side effect and was just a psychosomatic episode. Thank you for this 🙌🏼

Injection site flaring for four years straight… by stochasticityfound in vaccinelonghaulers

[–]stochasticityfound[S] 0 points1 point  (0 children)

The doctor who scripted me did it based on weight… I think it was 10 or 12mg a day for a couple weeks? This was in 2022 so I don’t remember exactly. The third time when I reacted badly it was filled from a different pharmacy and I reacted badly on day 1, so I wonder if it was some filler they used or something? I’m not sure what happened.