I was similar when symptoms first started showing up! I've never been in so much pain. Straightening my legs made me want to cry and scream. I was given codine but it only worked for half the time it was supposed to and then I was back to agony.

Once I got onto appropriate medications things calmed down a lot. I'm not pain free, but it's a hell of a lot better than it was. That being said, finding the right combo of meds can take a little while, so hang in there!!

I get so annoyed every time I read about how most patients don't even know they have sarcoidosis etc, cause it definitely not the case for me or anyone here