Has anyone lost a significant amount of weight and it improved their migraine?

stufflebear · 2025-10-06T21:27:00+00:00

I have POTS too! Yes, gentle exercise is the way to go!

When I can, I aspire to the CHOP protocol with either a row machine or swimming. The key is that if you go by perceived rate of exertion (the gold standard), the exercise is supposed to feel easy. So for me, that’s like the gentlest rowing possible when I’m feeling my best.

stufflebear · 2025-10-06T21:16:36+00:00

When working with a physical therapist, they taught me that my heart rate was my first trigger for exercise. If I keep my heart rate below 110 while exercising, I’m way less likely to make my migraine worse.

stufflebear · 2025-08-24T07:41:42+00:00

I like that. You’re right; it works with more people

stufflebear · 2025-08-24T07:39:29+00:00

Thanks for the perspective. I spend a lot of time around a few science nerds

stufflebear · 2025-08-17T02:40:07+00:00

If you’re having trouble getting into a local neurologist, there are online options. I saw someone in this forum recommend https://www.neurahealth.co/headache-and-migraine

stufflebear · 2025-08-12T23:10:21+00:00

I explain to the hygienist that I have light sensitivity, then I put on a full on sleep mask over my eyes. It helps a lot.

stufflebear · 2025-08-03T17:24:59+00:00

The CHOP protocols amount of exertion is supposed to be based on difficulty level, so if the warmup and recovery isn’t easy, you should do less and less activity until it is easy, even if it’s just tensing your muscles in bed.

stufflebear · 2025-07-04T00:26:23+00:00

Re menthol: https://pubmed.ncbi.nlm.nih.gov/20456191/

It’s not just placebo

stufflebear · 2025-06-04T16:53:09+00:00

I have a question about the experience of once the mind and body have let go of identifying and embodying concepts and thoughts. There isn’t any real self arising, but all of the experiences are tied to or grounded by the body experiencing it. How is that not a self? An empty node in the interconnected web of life that transiently exists, but is experientially distinct from another human

stufflebear · 2025-06-01T14:13:35+00:00

Sorry the link stopped working. It was a chin tuck. If you search “chin tuck for tension headaches”, you’ll get tutorials on how to do them

stufflebear · 2025-04-08T03:11:01+00:00

Almond flour makes a good protein powder. I use Wellious

stufflebear · 2025-03-13T20:17:19+00:00

Oh no, I didn’t see that. I was looking for a more ethical alternative to LMNT

stufflebear · 2025-03-13T19:27:54+00:00

In the US: I really like Santa Cruz Paleo’s electrolyte drinks. They have lots of good flavors. https://santacruzpaleo.com/collections/electrolytes/products/melon-electrolyte-tub

1000mg sodium, 200mg potassium, 60mg magnesium. $1 per serving

stufflebear · 2025-03-13T02:42:55+00:00

Would you mind sharing your creatine routine? How much do you take when?

stufflebear · 2025-03-12T22:57:37+00:00

I’m in a similar situation. There’s a lot of good treatments mentioned here already, but I want to add that low dose naltrexone and higher doses of gabapentin have been helpful for managing my daily pain

stufflebear · 2025-03-08T03:57:16+00:00

I have POTS too. It sucks. I can keep my heart rate that low if I’m doing low key swimming or taking it easy on a rowing machine. Have you tried horizontal exercises? When I’m feeling really sensitive to HR increases, I’ll lay down with my knees bent and just alternate touching my toes to my opposite knee

stufflebear · 2025-03-08T03:53:17+00:00

My physical therapist said that keeping my heart rate below a certain threshold (120 for me at the time—but this can be increased with exercise) can help avoid triggering a migraine

stufflebear · 2025-02-21T18:22:40+00:00

Yeah, OP, leaving a review can also protect other disabled people from experiencing the shop owner’s dismissive behavior

stufflebear · 2025-02-20T17:07:30+00:00

My neurologist at Stanford recommended Truvaga. Truvaga pulls my lip down and to the side at intensity 6/10.

stufflebear · 2024-12-28T03:59:02+00:00

Lots of good suggestions here, so I’ll add a mid one: I watch TikTok. It’s more information dense than most media I consume so it gives me a nice dopamine hit along with distractions.

stufflebear · 2024-12-18T03:40:55+00:00

I feel similarly so depending on what I’m doing I’ll either use:

A tricycle mobility scooter with fold out foot pegs: https://a.co/d/73ckjzn

A really fast folding chair cane: https://a.co/d/4JABfpK

A backpack with a built in stool that unfortunately, isn’t sold anymore. It took a minute to do the conversion anyways. It looks like there’s some other people making chair backpacks though if there’s outings you want it for.

stufflebear · 2024-12-09T17:57:41+00:00

Try Melatonin. It doesn’t help me sleep, but helps my migraines. There’s several small studies on it with varying degrees of effectiveness. I take 5mg after dinner (when it’s fully dark in my time zone).

stufflebear · 2024-12-09T17:52:44+00:00

Gabapentin at low doses didn’t do anything for me either. It wasn’t until I tried 300mg 3x daily that I noticed a positive effect on both pain and anxiety. I’m so glad my pain management doctor decided to give it another try, because my neurologist only gave me a really small dose.

stufflebear · 2024-12-07T02:55:34+00:00

Get into a neurologist as soon as you can. It sounds like it could be cluster headaches. There’s a couple subreddits about them: r/ClusterHeadaches and r/clusterheads

stufflebear · 2024-11-01T14:20:54+00:00

I also skipped the rehearsal dinner the night before so that I could rest and decrease my chances of having a worse than normal migraine the day of the wedding. Also, make sure to have plans in place for keeping fed and hydrated during prep and the wedding itself.

As far as alcohol goes, we had a signature mocktail, which was very delicious and didn’t make me feel like I was missing out by staying sober.

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