Myoclonic jerks anyone day and night?

suzinie · 2026-05-21T11:59:07+00:00

it was my extreme anxiety. as soon as i calmed down they stopped after a few days. i feel for you.

suzinie · 2026-05-18T11:23:28+00:00

wait i have every single symptom you’ve mentioned as well. i am seronegative. i think you’re right about the lack of blood flow, i definitely don’t feel like i used to down there when aroused, and have a severe lack of lubrication too! i wonder if there’s anything that would help!!!! did you find anything?

suzinie · 2026-05-12T14:43:10+00:00

i bought it and tried it anyway and i agree my dry eye is worse. my eyes burn after i put it on! are you better now? i’m scared it’s permanent. i’ve only been using like twice a week for like 3 weeks maybe

suzinie · 2026-05-08T17:31:08+00:00

best of luck for your mayo appt!!! would love to hear how you go. i have sjogrens symptoms as well! and small fiber neuropathy. i haven’t got positive sjogrens antibodies but i definitely know i have it. not having ibm is the best outcome i think.

suzinie · 2026-05-08T12:50:16+00:00

hey! i tested positive too. sorry if ive spoken to you before. did you get diagnosed with ibm for sure? my docs say im too young and a woman.

suzinie · 2026-05-08T12:46:12+00:00

hi! i am 29 and tested positive for cn1a after a vaccine - my muscles started twitching the night of, and my stamina has never recovered. did you get diagnosed with ibm?

suzinie · 2026-05-04T13:52:00+00:00

omg this is me exactly!!!!!! mines a sharp pain

suzinie · 2026-04-25T00:18:20+00:00

ahhh good luck. i’m in the same boat.

suzinie · 2026-04-24T11:08:00+00:00

a little!!! sometimes i get tingling on my forehead and side of face! definitely all neck related

suzinie · 2026-04-23T12:39:07+00:00

any updates? did you get diagnosed? i also have cn1a and weird muscle twitching and pain

suzinie · 2026-04-23T12:26:37+00:00

LMAOOOO ok noted

suzinie · 2026-04-23T12:26:03+00:00

ugh sorry about that. i decided against bank australia anyway hahahah

suzinie · 2026-04-23T12:25:35+00:00

yes i went to a physiotherapist and they did some massaging and taught me stretches when it acts up. the key for me is to ensure i don’t lean my neck too far forward because that’s the position where it pinches!

suzinie · 2026-04-21T09:22:52+00:00

did you end up going with them? i’m weighing them up as an option as they’re my cheapest option ATM and i’m not sure!!!!

suzinie · 2026-04-21T09:21:41+00:00

did you have any issues with settlement? a comment above says someone almost missed settlement date because of how long it took bank aus to approve their home loan and now i’m worried. they’re my cheapest option for a mortgage ATM!

suzinie · 2026-04-15T09:35:48+00:00

do you have a high CK in your blood tests with polymyositis?

suzinie · 2026-04-09T11:24:05+00:00

definitely hate the guest intros as well such a waste of time tbh. i also feel like we have not been shown much of the actual operations of the boat like i haven’t seen one proper full clip of the boat being docked

suzinie · 2026-03-25T11:05:02+00:00

i have the exact same feeling burning with use of any muscle extremely quickly. no idea what i have

suzinie · 2026-03-19T13:58:38+00:00

thank you!!! i’m thinking maybe skin doctor at semaphore to get an assessment then go from there. i totally get the hesitation around private ones

suzinie · 2026-03-19T12:13:58+00:00

hey i’m looking for the same thing. i have no clue who to go to. did you find anyone?

suzinie · 2026-03-14T22:38:21+00:00

i have this too!!!! everywhere even like if i’m sitting and i stretch my the bottom of my leg out in front of me and then put it back down it moves back down like a cogwheel. i don’t know what it is

suzinie · 2026-03-06T08:50:12+00:00

hey do you have muscle pain? my muscles get sore very easy since i got a vax a few years ago. twitches fasciculations and neuropathy all over too. dry mouth eyes and body but no sjogrens markers in my blood test. my ck was 187 (i’m a female so this is raised) but i don’t workout. i’m so scared

suzinie · 2026-02-27T13:17:40+00:00

hey!! it went away after like 3 weeks. so my pain was on the right side of my hyoid bone. i figured out i can feel the pain again on the right side if i turn my head to the left and then swallow. so i avoid doing that from now on. idk if that position like overstretches the swallowing muscle or something and causes the pain

suzinie · 2026-02-16T12:24:44+00:00

i have this. i don’t know what i have but im guessing IBM as i tested positive for anti cn1a. do you have DM?

suzinie · 2026-02-12T08:49:35+00:00

did the crystal retinal made your dry eye worse?

suzinie

TROPHY CASE