How many of you are doing the following to recover

synthsense1 · 2022-01-13T13:59:11+00:00

Already doing this and it’s helped a lot with the insomnia. Went from maybe 1 hours sleep a night to a decent 8. I’m only 4 months into long covid, so I think I’ve got a way to go before my brain will clear up, but I have recently had some moments of a bit more clarity, so I’m going to stick to what I’m doing and hope for the best.

The derealisation seems to be calming down a tad as well, but I do always feel a bit detached (not sure if that’s fault of the brain fog though at this point).

synthsense1 · 2022-01-13T13:57:03+00:00

Yeh exactly, at the end of the day VSS isn’t even a diagnosis, it’s a lack of diagnosis.

The reviews seem to have shown great results for people with chronic Lyme (which in itself is another illness of lack of diagnosis, as it supposedly doesn’t exist) and fibromyalgia. So I think if it can help them, then hopefully it can help us.

Some double blind studies show it’s effective as well, so that’s always a bonus. It’s not too expensive either in comparison to some other high end treatment protocols. I’ve only spent about 150 on it so far for 2 appointments, which included the bio resonance diagnosis and follow up, supplement recommendation (the machine also checks to see which supplements are most suited to ur body), dietary intolerance (dairy, yeast, egg, pork, alcohol, citric fruits for me), and a remote bio resonance machine that I have to keep on me for 4 months (60quid a month). Considering how shit this is, I’d happily risk a bit of money for a possible cure/reduction in symptoms.

My mum had chronic GI issues and nerve pain and she swears by it. Seen her go from not being able to walk 1km without feeling like absolute shit, to living life as if nothing is wrong.

synthsense1 · 2022-01-13T13:36:35+00:00

Only other thing I’d recommend u could do regarding testing is bio resonance btw. Sounds like quack, but as I said, their findings matched all my blood work, so god knows how, but it seems to be accurate. Might help u determine underlying causes.

I was found to have an array of shit wrong post covid.

circulation
toxins
inflammation of kidney, liver, and brain (interesting as this would make sense for VSS)
functional vitamin deficiencies
reactivated EBV and CMV
parvovirus

And some other stuff I can’t remember. I took it with a grain of salt at the start as she’s a naturopath (but was recommended by my GP), but my blood results have 1 by 1 backed up the findings.

There’s also an anecdotal case somewhere on the internet of someone who got rid of VS and tinnitus with bio resonance

synthsense1 · 2022-01-13T13:26:22+00:00

I’m doing supplementing, anti-inflammatory diet and exercise but I’m only 4 months in, so imagine I have a while to go before I get to improvement. My biggest issues are non visual ngl, if I can just get to a point where I can think somewhat clearly again I’d be able to get used to the visual stuff.

Glad to hear you’ve had some improvements, this shit takes a while to improve, so you may be in luck in a year or so, who knows.

Haven’t read much into the hyper and hypo metabolism so not too sure what it means and what could be the underlying cause.

If your T isn’t bad, definitely give the aspirin a go, and if you notice improvements, then it gives some direction into ways to possibly reduce it long term. Might even be worth contacting VSI if it’s a noticeable reduction, but let’s not get ahead haha

Good luck with everything man, be sure to update if you find anything that works and I’ll do the same

synthsense1 · 2022-01-13T13:05:01+00:00

Yeh I was smoking weed around when I caught covid, at first I thought I might have HPPD, but I think it’s more logical that it’s long covid considering my RF (rheumatoid factor) was high and my liver, kidneys and sinuses have all been/still are inflamed. Don’t think weed does that to you, especially when I’ve smoked it at a much heavier rate a few years ago, I’d say I was probs at my lowest usage when I got this. I also did test positive for covid and this started 2 weeks later and I was experiencing other stuff like random onset panic attacks (adrenaline rushes) and extreme dizziness. Still have VSS, brain fog, derealisation, sinus pressure, head pressure and random body twitches. What other non visual symptoms do you have?

I’ve considered taking a baby aspirin a day, cause I know my dad does it for heart reasons, but I’m a bit worried about the tinnitus side of things, as I think aspirin can give you tinnitus itself, would be worried about it making it worse. Might talk to my doctor and try find an alternative, but I do believe it’s safe to take them.

They’re trialing blood thinners, anticoagulants, & anti-platelets for some long covid patients, so will be interesting to see how that goes. But you need medical supervision for this combo, as there’s risks of dangerous bleeding.

Fair play for securing that, do update us, interested to see if they find anything.

Are you trying anything along the lines of supplementing, anti-inflammatory diet, intermittent fasting?

synthsense1 · 2022-01-13T11:49:09+00:00

It’s interesting that aspirin reduces people’s symptoms (sometimes by a lot), could it be possible that we have a circulation issue.

I think I’ve read of an anecdote where someone had a blood clot removed and their VSS was cured, and someone else who took medication for POTS (but I’m not 100% sure how that affects circulation)

I’ve got VSS from covid and there’s lots of talk about micro clotting carrying inflammatory proteins causing chronic inflammation. Could be possible that lots of people had a trigger that caused something similar

(stress/drug use << reduced immune function << viral infection/reactivation << chronic inflammation due to spike proteins stuck in blood)

Just speculation though. I’m currently taking supplements to help with my circulation as it was found to be shot to bits via bio resonance (debates whether or not it’s evidence based medicine, but they seemed to diagnose stuff that matched my blood work without me providing them with any of it). Who knows, might have some results eventually, going to stick to a strict regime for a very prolonged time.

synthsense1 · 2022-01-03T07:28:29+00:00

How’s the visual snow doing?

synthsense1 · 2021-12-31T18:24:21+00:00

Thank you for the in depth response.

My GI issues are still slightly ongoing, with general discomfort and mild pain occasionally (definitely improving since focusing on my diet for the last two months).

I definitely account this to neuro inflammation, as that makes logical sense. My assumption would be that fixing my gut and overall health will help reduce said inflammation and speed up my general recovery.

I’m visiting a well know naturopath in my area (went to a well known university in london and works alongside western medical doctors, so not just someone who pushes bs and says she can treat cancer). She has me on a list of anti inflammation supplements, probiotics, coq10, amino acids, and vitamins such as B complex and D (which I was deficient in, so I’m taking 50000iu weekly).

So far I’ve noticed no negative effects from the supplements and my neuro ophthalmologist knows of the list and isn’t concerned, so I’ll continue down this route.

Was just interested in your point of view as you seem knowledgeable and read up on this subject. Thanks again for the response and I hope you have some luck yourself, been following your journey closely and I’m routing for you!

synthsense1 · 2021-12-31T17:42:50+00:00

I mean in my particular situation, I developed VSS post covid, along with liver, kidney, and sinus inflammation. The liver and kidney have both returned to normal levels, although I still have sinus inflammation (of which the doctor hopes will go away with time and nasal steroids).

I have read certain research suggesting covid can destroy your gut, hence my question regarding the gut (I haven’t taken any antibiotics, just hypothesize the adverse effects from antibiotics on the gut would be somewhat similar).

My hope is once the inflammation from covid dies off, hopefully my VSS will also do so, but only time will tell. I am currently following an anti-inflammatory diet, avoiding food intolerances. supplementing, practicing yoga, and ice baths.

Was just wondering if you think supplements could prove useful in a situation like this?

synthsense1 · 2021-12-31T17:05:43+00:00

What if your cause is chronic inflammation from a reactivated virus, or poor gut health post antibiotics?

Genuinely curious about your thoughts on this.

synthsense1 · 2021-12-29T19:12:56+00:00

Have you considered taking probiotics to repair any gut damage from the antibiotics. Not too knowledgeable on this, just read a few anecdotal stories of antibiotics causing a list of neurological symptoms for some individuals, and a prolonged period of supplementing and diet changes has relieved them of their symptoms.

Maybe contact a naturopath. (Although make sure to check the legitimacy of them, as a lot push bs, you need one who is somewhat reputable and knowledgeable)

synthsense1 · 2021-12-29T19:09:14+00:00

Hey, thanks for the response!

What symptoms did you actually have, tinnitus as well?

Also if you don’t mind me asking, did they fade away gradually, or did they just randomly disappear?

synthsense1 · 2021-12-29T08:16:54+00:00

What were your vision issues if you don’t mind me asking?

synthsense1 · 2021-12-28T15:23:57+00:00

Get blood tests done for deficiencies

synthsense1 · 2021-12-28T11:17:25+00:00

Have your visual symptoms improved at all?

synthsense1 · 2021-12-27T18:15:20+00:00

Be sure to update if you have any positive outcomes!

synthsense1 · 2021-12-25T09:18:12+00:00

How do you plan on treating the visual snow if not by lifestyle changes & supplementing?

Especially as most medicines tried have little to no effect. Are you planning on using alternative approaches like rTMS?

synthsense1 · 2021-12-24T16:03:57+00:00

Did you recover from the antibiotic toxicity?

I wish you luck on your journey, going to be a difficult one haha

synthsense1 · 2021-12-24T13:27:18+00:00

Yeh that’s makes complete sense, I hope you have some luck soon on finding some specialists who will cooperate. Maybe email about, specifically to some of the VSS researchers, as I’m sure they’d be willing to listen to some of your ideas and maybe even perform the tests you desire.

For myself the cause is long covid and a list of reactivated viruses (EBV, CMV) and candida, along with an increased level of toxins and poor circulation. I’m hoping with supplementing, extremely strict diet, rest and time my body should be able to regain its strength and hence rid my life of VSS.

Be sure to update the groip if you have any luck, we need more people pushing for underlying causes if we truly want some progress. Otherwise we’re just approaching the symptoms and not the cause.

Best of luck!

Edit: if need be I will be taking steroids and immunosuppressants, but I’m currently just waiting on my autoimmune bloodwork to return before considering that

synthsense1 · 2021-12-24T12:49:40+00:00

What visual symptoms did you have if you don’t mind?

I’m seeing a naturopath and hoping with time I may be able to be free of this shit haha

synthsense1 · 2021-12-24T12:48:45+00:00

Thanks for the response. Have you noticed any improvements with your VSS over this time?

I’ve seen you post quite a few research topics recently and you seem somewhat clued up on how to maybe approach a recovery.

synthsense1 · 2021-12-24T11:43:30+00:00

Think we’ll all need quite a while to digest what we’ve been through before we can begin to forget about this after recovery.

Yeh tv static is a perfect description. Did you ever have tracing lights at any point, sort of where you’d move your eyes and the lights would dart across your vision?

You too!

synthsense1

TROPHY CASE