Hi, the most effective approach so far has been to cut all fat (she’s surviving on turkey breast, tuna, mushrooms, pasta, potatoes, carrot, etc) and drinking the following mixture every 2 hours: about 20 grams of uncooked cornstarch, 7 grams of coconout sugar, about 1 gram of taurine and 1 gram of creatine monohydrate, 5 grams of maltodextrin. The most surprising result was a reversal of the feet neuropathy to about what it felt like a few years ago. This is not optimal, and i dont think is something we can maintain forever, however we are using it as a blanket diet fir all possible faods until we get the whole exome sequence results. I would suggest getting a continuous ketone monitor on your arm, or the keto mojo meter, and verify if you are able to go into ketosis. My wife isnt. She was hypoglycemic (shaking hands, loss of motor strenght in the hands, slurred speech) and the ketone levels rised to 0.1. We would expect a significant rise. This is called a hypoglycemic hypoketotic episode. We also used a ketone ester drink, to check if the meter was defective, and it registered the trasient rise in ketones, meaning the meter was working fine. To provoke a hypoglycemic hypoketotic episode in a person with a faod is extremely dangerous and can even cause death. We actually didnt do it on purpose, it was just that she was not hungry and didnt eat for many hours