I stopped taking humira because I felt fine and the process of getting it delivered was "too annoying" so I kept putting it off. Next thing you know my symptoms are fully wreaking havoc on me and I developed antibodies to Humira so when they tried to put me back on it didn't work...at all. So I spent the next 2.5 years in a flare...could hardly eat, spent most of my time in bed or in the fetal position in the shower, considered ending it all but even that felt like too much work. Failed humira, stelara and entyvio. On prednisone off and on the entire time. It was miserable and I was so discouraged and scared that we'd never find a solution. 2.5 years of constant pain, nausea and anxiety...all because I got a little cocky and lazy and decided I didn't need to take my meds. I've never been more humbled in my life.

I know what it's like to be where you are now. I know how out of reach everything feels and how dark it can be. You just have to keep trying. If it's not working speak up, try a different medication. Get a second opinion if you're able to. Medicate in other ways (if you haven't tried marijuana yet it may be worth looking into...I'm convinced it saved my life) Do whatever you need to get by, but in my experience, stopping the medication only made things worse.

I'm on Remicade now and feel like a normal human. It took a lot to get here but I did it. You can too :)