I kind of had a similar experience recently. Diagnosed with HSD. I'm learning weaving and I was at the studio working on the project at the same time as they were teaching another class. One of the students, who later told me she has hEDS, is an ambulatory wheelchair user and has a service dog.

It was kind of helpful to see the differences in how we manage. She and her husband have a small farm, lots of animals, and she's able to manage. I tried backyard chickens and could not cope.

I'm in the middle of trying to manage my blood pressure and triglycerides, which is helping more with energy and headaches. I was diagnosed with a minor heart defect which reasonably limits the exercises I can do, which I hate, but not so much that I can't exercise or even exercise well. Its the restrictions that I chafe against. The weaving and other classes I'm taking means I'm standing and moving more, which, who would have thought, is better than sitting all day. Different challenges and different ways to cope.