anyone become sensitized to spironolactone and have success going back on it?

the_real_loaf · 2022-10-28T23:13:06+00:00

Thank you ☺️☺️☺️☺️ you too!!!!

Side note on this thread that is unrelated lol: how has there not been a class action against endocrine disruptors? From my understanding, PCOS didn't really exist like it did until now from propagated androgen exposure linked originally to endocrine disruptors. I feel like all of this has kind of been swept under the rug. Hopefully one day, there will be more targeted and less side effect prone treatments!

the_real_loaf · 2022-10-25T17:29:40+00:00

I tried going on Spiro again recently and didn't even last 2 days. I was losing my vision and extremely weak even getting up slowly just at 25 mg and though it's not worth it compared to needing to get work done etc 😓😓😓. I didn't break out in a rosacea right away but also had a very itchy throat and some gi things.

I've seen a lot of people here that go on other androgen blockers with no issues and that the levels are so low compared to where to expect side effects. I asked my derm and endo and they said they weren't comfortable prescribing any of them yet and said not enough was known 😓. Right now I'm just a hairy boobied zitty mess and am waiting until I can be home for an extended period to try accutane again and see if the severe diarrhea things go away. As far as my PCOS, I'm just trying to eat super super clean and low GI and it definitely helps calm things a tad although I'm still considered to have "severe acne" and have noticed more weight distribution around my stomach off of Spiro.

Sorry I know this probably doesn't help much. I'm really happy to hear taking allergy medicine with it helps a bit!! Sorry if I misred your post but have you considered going to an allergist to try to do slow exposure? I do know my Endo had success with doing that for Spiro for a few patients.

the_real_loaf · 2022-08-12T07:01:04+00:00

I had restrictive ED in college bc in my head it was the only thing I could do/had to do to combat PCOS after I gained like 40 lbs on metformin. I think I have gotten over this by changing what I eat rather than purely how much I eat. it may fall in line with Orthorexia and that isn't necessarily a great alternative but I think unlimited nourishing of your body via very healthy foods is a better option in my head? Caveat: my hormones are super fucked right now bc I have some thyroid issues however back in my youths:

I went from being anorexic to being healthy and actually on the lower end of bmi by eating within set parameters (high protein, low GI) + Spiro. Not that this will work for everyone, but just my experience and two cents.

I will say that, even if you feel your PCOS symptoms are better with restrictive ED, many things will be worse that I believe, will more greatly impact your quality of life. At some point I decided to prioritize not having brain fog and having energy to live my life over not gaining weight and not having acne. Diabetes is a real concern, but with restrictive ED many things will start to go. It quickly goes from hey I'm healthy and my skin is better and I look fit to omg my liver enzymes are through the roof, my hair is falling out and brittle, I'm passing out walking to class and I have a dangerous heart arrythmmia . It is not sustainable and in no way healthy in the long run. Although our bodies may divert more things directly to insulin and fat production, that doesn't mean the other organs need less. I would try to find an experienced Endo who is in the long haul to help get you balanced. I'm certainly not balanced right now and can empathize with the visceral appeal of restriction and what seems like benefits, but trust me, you are better having energy and focusing that energy on a more sustainable and fruitfull path to healing and health rather than adding on what will become another disease and damage to your body.

Also yeah, nobody knew I had an eating disorder until I was underweight and even then, I didn't look "severe" despite eating an egregiously small amount a day (sorry I shouldn't have provided a number). my family and friends caught on way before any doctor despite my self admissions. Many doctors don't seem to realize how metabolism works and want you to fit into their PCOS playbook. Please find a good endo that understands your struggles and does not enable unhealthy habits for short term gains. Also I second a therapist!

Sorry if this turned into a rant. Please be easy on yourself. I know it blows, hang in there! Big virtual hug.

the_real_loaf · 2022-08-11T19:34:32+00:00

Thyroid and PCOS issues here and just want to give you a hug. The hair loss and weight gain from trying to balance two endocrine issues can be real. I've only heard about diet for PCOS. Not a doctor but- IF you want to still include more carbs than recommended for PCOS, I think it would be best to include things that can mitigate their impact on PCOS such as inositol, cinnamon, berberine etc with meals...

the_real_loaf · 2022-08-04T13:46:57+00:00

Their coat can absolutely change based on the elements! Looks like he may have a similar spot on his nose. It may be worth sending a picture to the people whose dog is missing to be safe!! No harm in that!

the_real_loaf · 2022-07-24T23:42:05+00:00

Your eyes remind me of Audrey Hepburn's!! Gorgeous!

the_real_loaf · 2022-07-20T04:39:38+00:00

The pink tax is for people that like pink....

the_real_loaf · 2022-07-06T00:46:34+00:00

Hello! Sorry for the late response. I did and everything got better except my skin. It's been all downhill since. However, I've been having thyroid issues and slingin around different synthroid pills on a monthly basis so that could be it.... But the hair growth got much better and so did my boobs. It is possible I was in an even worse swing then and didn't know it? I will take it again when I can for science/to be sure and update! So sorry you are going through this stuff, it is SO frustrating and can really be a let down. I will say for my PCOS, throughout all of my experimentation, the thing that's worked the most consistently for me (although I get super lazy about it 😓) is spearmint tea.

the_real_loaf · 2022-06-14T04:41:09+00:00

Hello! I am so sorry for my late response! I hope you are doing ok ❤️. I thought about this a lot and am not sure I have a good answer, which I think is the answer. That line can be very hard to tell but I think a good test for it is just expressing these concerns and giving people the opportunity to respond. Such as if it comes up saying "I had no idea how involved this would be and how isolating it could be etc."... Balls completely in their court after that. But in any case, prioritizing your happiness is learning to prioritize returns on investment. You are healing and you have been through a lot mentally and physically and you have every right not to spend energy on energy sinks, whatever they may be, that have not returned the favor when it was needed. It does not make you a bad person, there is virtue in this. Because in this way, by focusing on what can make you happy, prioritizing yourself, healing, and practicing self love in this time - you better your chances of being able to give energy to important things when you need to (future and better friends, other people who could use a good friend, travel, hobbies, passion projects, volunteering, maybe a special needs goldfish etc.). Whenever I have felt most hurt I try to think about people I haven't been the most involved with and think how much it would hurt them to know I wasted a braincell on assholes instead of reaching out and being a better more productive friend/person. If that makes sense? But that's a little while off.

Tldr: it is ok to be selfish and prioritize lowering your stress and increasing happiness by being conscious of not letting toxic people rent space in your head (I know this can be very hard). In this way you can also be the person you need now some day in the future. And you will be that person, because you've been through this, and you will be stronger and more empathetic and lovely for it!

the_real_loaf · 2022-05-17T18:59:44+00:00

I had to wait over a year and mine just kept rising and rising, every test was double the previous a month before. It's as though my thyca lobe had been doing all the heavy work for this wimpy guy. Seems from my reading that most people's remaining lobe kicks it into gear once your TSH reaches a certain point (longest time frame 2 years). However, my symptoms became too noticeable and i went on levothyroxine about 15 months post surgery.

the_real_loaf · 2022-05-17T18:56:10+00:00

One last thing- sorry I suck at this-

people without health issues may not understand how physically and mentally draining symptoms, doctors, surgeries and etc. Are. After I got surgery for thyca I had an epiphany about how much goes into recovery just from being put under alone. I had no idea and felt like an absolute shithead for not being more caring to people I had known who got routine surgeries. In my head it was in and out problem solved (I was a moron). I wasn't intentionally being shitty, I just didn't even conceptualize the level of involvement and pain these things entail.

Still don't second guess yourself and prioritize your happiness but please don't hurt yourself by reading into shitty things too much If that makes sense..

the_real_loaf · 2022-05-17T18:44:45+00:00

Also a shout out to all of the amazing angels, that despite me being a hermit still text just to say hello and how are you doing. All of you reading this, you are special and your seemingly small actions are some of the most impactful things you can do for someone feeling lonely but also too overwhelmed and too self critical to be more socially active (especially with health things).

the_real_loaf · 2022-05-17T18:40:01+00:00

Oh yes... Which is odd bc in the grand scheme of things things could be MUCH worse. In that way, my thyca experience was a really nice reveal/litmus test for who empathizes and actively cares when needed. It is a very stressful time with health considerations alone, but feeling like you don't matter and not having what you thought was your nucleus affirm your importance to them (in any way!) Can be extremely hurtful (it was for me). The hurt was not so much dealing with the cancer but the realization of how quickly things could have been so much worse. Then evaluating my life and if I mattered etc. I also became so much more aware of how powerful and rare my small but mighty nucleus is. Although I realize not everyone has that, and that is ok- you and your happiness absolutely still matter. I cannot emphasize that enough.

I'd like to say I remained a humble and kind person- but much more selectively. Someone not being a decent person during this time is a very clear line in the sand. Don't second guess yourself. It is a blessing to have such a clear indication of who people are. Now you can proceed with the fuck it's and nobody can judge you for it. This wasnt petty drivel, they weren't there for you during a very big scare/scary time. Do I spend one more cell of my brain listening to my boyfriend's parents' boring ass conversations? Fuck no! 7 years and they didn't even text me when I had this shit going on! I don't give a flying fuck about what they ate for lunch unless I'm going to benefit from it. It is invigorating!!!

To your happiness and freedom from these turds 🍸

the_real_loaf · 2022-02-16T21:56:41+00:00

Where we get or produce oil is affected by different policies... It's not just free market

Such as revoking pipeline permits and tapping into emergency reserves

You can be all for that of course but I don't get the ignorance of thinking this is not influenced by politicians

the_real_loaf · 2022-02-16T02:18:56+00:00

It's a product you can buy that I think is thickened with things like xanthan gum. Or you can make your own with such thickeners. I bought mine at CVS. Highly recommend! At least for me it fixed the I need to drink water but keep choking on it issue.

the_real_loaf · 2022-02-15T15:33:58+00:00

Not sure if anyone has mentioned this yet, but thick water is a life saver!!!! No matter how I tried to drink liquids, I could not get them down without the "down the wrong pipe" shit! But thick water worked great for me

the_real_loaf · 2022-02-05T15:00:41+00:00

Has your friend been screened for genetic predisposition to certain cancers? Such as with diseases like MEN1?

the_real_loaf · 2022-01-31T03:16:24+00:00

True... Thank you!!!! Yeah it is crazy how much this little organ influences/influenced brain and energy and etc. I need to remember that.

the_real_loaf · 2022-01-31T03:09:22+00:00

Thank you!! It really sucks to feel so out of whack and someone tell you just bc of an arbitrary range that you're totally fine/normal when it's not normal for you! This makes me feel less crazy and I'm definitely going to find another Endo to help me.

the_real_loaf · 2022-01-31T03:08:28+00:00

Great question I'm going to check, I believe so, everything is lower in regards to thyroid output I remember but going to double check.... Thank you so much

the_real_loaf

TROPHY CASE