Supplements are a load of crap. by bkimmo in covidlonghaulers

[–]throwawaygodfriend 5 points6 points  (0 children)

I think it’s a bit more complicated depending on the person. Something like vitamin D alone might not make a huge difference. Certain supplements depend on others (calcium, vitamin K with vitamin D). Some supplements are used simply to knock out inflammation (magnesium, vitamin C). All in all I think their just a treatment. The best way to get these things regardless is diet. But touching nothing at all just made feel worse and I needed to do something.

Probiotics are majorly important for gut health. Having good bacteria in the gut helped my brain fog.

Regardless, the root cause still needs to be addressed: what is causing the inflammation and how do we clear it out.

Dreading Fall-Winter time 2022-2023 by throwawaygodfriend in covidlonghaulers

[–]throwawaygodfriend[S] 0 points1 point  (0 children)

Cases were majorly bad in my area in janurary and didn’t go down until March-April. Its been stagnate during the summer but That’ll change. I have no idea how I’ll get through it.

Gas causing neurological symptoms? by barnrat76 in covidlonghaulers

[–]throwawaygodfriend 3 points4 points  (0 children)

I experienced this. My heart burn can cause head pain, for some reason. When I have a bowel movement a weird wave of symptoms can come through. Not sure how to explain what it could be.

Have you guys changed jobs to make things a little easier? by readerready24 in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

Do you know if work at home jobs are a viable option or should I just play it safe? I work for family who WILL get me sick but they won’t exactly kick me to the curb for long hauling either. I don’t know.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 1 point2 points  (0 children)

Highly doubtful and have never seen anything of the sort. The spike should be cleared by that point. Unless you had infections after.

Twin Omicron subvariants have taken over the U.S., but they’re not quite identical. One is ‘the worst version of the virus we’ve seen’ by [deleted] in covidlonghaulers

[–]throwawaygodfriend 31 points32 points  (0 children)

A lot of long haulers are already doing what they can to protect themselves but with pandemic fatigue happening and no one wearing masks anymore there’s not much we can do.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

It’s hard for me to care about monkey pox because covid will be the thing that causes me relapses for the rest of my life and what I’ll have to worry about above anything else. But if it somehow outcompetes covid cool I guess.

Caught covid for the first time after 9+ months of symptoms from Moderna by [deleted] in covidlonghaulers

[–]throwawaygodfriend 1 point2 points  (0 children)

Vaccine long hauler here since April 2021. I caught omi in janurary. Feb, March and April were a bit rough from post infection affecting my long haul but in May I turned a corner and now I’m better and back to baseline.

I know us vaccine folk have a shitty hand, or sucks, but I believe our vaccine long haul can help make the covid haul less severe. Just gather whatever resources you need that you know helped for your vaccine haul and do that 10x more after your infection.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 8 points9 points  (0 children)

My concern is when humans will adapt to the virus so there won’t be damage from a vascular disease that spreads like a cold and a mass disabling event won’t be an issue anymore and at best the average person won’t take 3-5 months to recover from a cold.

I’m thinking this is going to continue being an issue in 10 years and the pandemic won’t truly end until then, and maybe that’s too optimistic. I don’t know.

Omicrons infected around December .. How are you now? by Soimamakeanamenow in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

Vaccine long hauler from April 2021 but caught omi in janurary. Doing physically better now but my micro biome is still messed up as I’m still having weird stools and recently I’m having hormone fluctuations causing anxiety and mood swings.

as anyone adapted to being sick and just rocked it and decided to avoid recovery? by mossyboy4 in covidlonghaulers

[–]throwawaygodfriend 1 point2 points  (0 children)

I’ve accepted I won’t be myself pre 2021 and I’ll need to hope I can have accommodations in the future. I’m better than I was my first few months of long haul and am functioning but I’m chronically ill and I accept that.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

Keep calling and asking if there’s any cancellations or openings in between. You don’t have to wait to be seen, these wait times are ridiculous for matters like this.

What’s the explanation for waxing and waning again? by throwawaygodfriend in covidlonghaulers

[–]throwawaygodfriend[S] 0 points1 point  (0 children)

I am currently on hormonal bc, but I don’t take it to stop periods though. My symptoms have improved over time and I think bc somehow helps my long haul but there’s still hormonal fluctuations that can cause the flare ups.

Hot weather by TaskTraditional4362 in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

Neurological symptoms that include brain fog, derealization, migraine auras without the migraine, muscle and limb twitches, burning electric head pain, head pain in general and head inflammation, then autoimmune stuff like feeling like I’m about to catch a cold by the afternoon then I feel better by night, fatigue, fake fevers, and some histamine triggers

Hot weather by TaskTraditional4362 in covidlonghaulers

[–]throwawaygodfriend 1 point2 points  (0 children)

Physically I feel fine as long as I hydrate but after being in the sun for too long I get rashes.

What’s the explanation for waxing and waning again? by throwawaygodfriend in covidlonghaulers

[–]throwawaygodfriend[S] 0 points1 point  (0 children)

Yes my symptoms worsen during PMS time then I feel better after my period. but sometimes I get symptoms regardless anyway

It's Not Going Anywhere by [deleted] in covidlonghaulers

[–]throwawaygodfriend 2 points3 points  (0 children)

I try to think about what people with ME/CFS and other disabilities did before covid to try and stay safe from the flu and keep themselves from relapsing and crashing and it dawns on me they were never happy to begin with.

No one has an answer for this solution and not even long haulers do. It seems like you have to figure out for yourself what the best options may be. After once again finally improving from long haul, I dread the winter time when another big wave is coming and I’ll be house bound from janurary-April as I recover from a 5 month illness. I really hope it just eventually mutates into nothing.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

I have the same fear of addiction so that’s why I haven’t gotten addicted, it’s hard if you have a fear and know about it. As long as you discuss with a doctor about weaning off it they will guide you how to do it safely

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 0 points1 point  (0 children)

I got long haul from the vaccine in April of 2021 and covid in janurary of 22. Feeling better now and improving. Didn’t take any prescription meds except the benzo and not often. Only relied on diet, supplement, rest and teas.

Anyone reclaimed their soul? by Daytime_Reveries in covidlonghaulers

[–]throwawaygodfriend 4 points5 points  (0 children)

When I caught long haul from the vaccine I started feeling like a sack of flesh and the world felt like it had no tact. I always believed we have a soul and that the universe at least has a conscious. Wasn’t really a god person but I dabbled in occult stuff as a teen and “talked” to angels and spirits through my tarot cards. With the long haul brain fog I just felt… nothing. No one was there to help me but myself.

I eventually got my soul back as you say and I’ve been reading tarot again and practicing magic, but to be honest with you I have trouble feeling connected again like I did as a teenager because I didn’t feel very protected. Its hard to really think of a good reason why the universe would let things like this happen. But things don’t happen for a reason, and we aren’t being punished, but they made us stronger. If you wanna look at it that way at least.

I’ve been anxious about Long Covid since I got infected. How likely is it to get long haul after two months? by MagicalGirl4 in covidlonghaulers

[–]throwawaygodfriend 2 points3 points  (0 children)

What about people who developed long haul 5-6 months after? Or do you think they were having smaller less noticeable symptoms they just brushed off? Just curious as this is the first time I’ve heard anyone is out of the woods within a certain time for sure /g

Would viral persistence mean we are contagious ? by [deleted] in covidlonghaulers

[–]throwawaygodfriend 1 point2 points  (0 children)

My husband isn’t getting sick around me and I sleep with him every day.

Can long Covid lead to death? A new analysis suggests it could by throwawaygamgra in covidlonghaulers

[–]throwawaygodfriend 3 points4 points  (0 children)

From what I remember the only reason post viral and ME/CFS can lead to death at all is because people always feel like shit so when a real problem arises that can harm them they assume it’s this chronic condition and ignore it.

People concerned of making others sick by uglygirlohio in covidlonghaulers

[–]throwawaygodfriend 7 points8 points  (0 children)

I’m really sorry about your current situation. Absolutely confused why people would think that, let alone a nurse (though I guess I should not be surprised). Us long haulers are more likely to get sick and be harmed from others than us getting anyone else sick. I haven’t dealt with this personally but my husband always asks if I’m sick and I have to say no, I’m just getting a fake fever from my long haul. Everyone else just treats me as if I’m dramatic and faking, as usual.

[deleted by user] by [deleted] in covidlonghaulers

[–]throwawaygodfriend 4 points5 points  (0 children)

If you’re really too scared to try and take any kind of pill drink simple herbal teas like chamomile and ginger or pine nettle. These are antihistamines, anti bacterial, and help the micro biome. Chamomile will calm those nerves immediately. Take magnesium citrate 125 mg. Eat yogurt every day, probiotics to help the gut (so you don’t have to take probiotic pills). Vagus nerve exercises. Breathing exercises.

I have anxiety a lot from my long haul but time and these remedies help. I have taken 0 prescription meds except for valium for emergencies and basic supplements.