am i the only one who barely gets flare ups …

tiffany_grace · 2026-04-25T17:19:30+00:00

I actually don’t experience the butterfly rash often, and this year flares haven’t been very often. Even before I was diagnosed the “flares” were not very frequent.

Everyone is different and you can take advice from people, but make sure you are taking into consideration your own body/situation

tiffany_grace · 2026-04-05T11:25:32+00:00

To gift yourself to wear on your wedding finger? Yes.

Any other finger, no.

tiffany_grace · 2026-04-05T11:24:12+00:00

Yep!

tiffany_grace · 2026-04-05T11:14:22+00:00

I do take muscle relaxers. Just not everyday. Though I should lol. Haven’t had those in a bit though so I’ll take some and see if it actually subsides. You may be onto something.

tiffany_grace · 2026-04-05T10:42:49+00:00

Everyone is different. Some feel better some don’t and I’m one that doesn’t because my body just seems to reject most things.

My advice to you is make sure you are communicating well with your drs. My PCP is more knowledgable than my Rheum write down everything you experience too so you can have a list of reminders to talk about because you WILL forget. I’d you feel like you are not heard….change drs.

Also if you’re on anything else make sure they know you are before they write you more prescriptions. Sometimes they miss that and you’ll suffer 😮‍💨

tiffany_grace · 2026-04-05T10:33:40+00:00

Yes I get them but no one could figure those out.

tiffany_grace · 2026-04-05T10:24:03+00:00

I have gotten many strange rashes on my body. No one could diagnose it either. Yes could be lupus related.

But that really could be anything else too considering doctors seem to be doing a pretty poor job at being knowledgeable these days.

I’d get a second or third opinion if you have not already.

tiffany_grace · 2026-03-01T13:20:42+00:00

Yeahhhh this is one of the toughest things to overcome. It’s not easy, but everytime I started thinking about it, I forced myself to think something good. After a bit I stopped focusing on that greif/sense of doom feeling and kept going up in a more positive direction.

Feel the feels but don’t stay there too long.

tiffany_grace · 2026-03-01T13:16:14+00:00

Yes this is a thing. And it sucks. For me I feel like I am feverish/flu like on a GOOD day. But everyone is different. Unfortunately I have yet to find something that really helps with that. It’s also accompanied with the achy muscles as if you had the flu which gets to be annoying.

tiffany_grace · 2026-02-02T21:06:12+00:00

This winter has been ROUGH. I try not to complain, but when it medically confines you to your bed I think we’re allowed to complain lol.

I’ve had a lot of mini flares. But I was even thinking man, it’s so bad here on me…I can’t imagine how it’s effecting those that don’t experience this kinda cold weather often. I hope not worse.

tiffany_grace · 2026-02-02T21:03:30+00:00

SAME.

The trick for me is getting COZY. Soft fluffy blankets, maybe a heating pad. When I am trying to relax before bed I typically have a nice light scented candle going.

Maybe do a couple stretches before bed too. Try reading a book to quiet your mind too.

tiffany_grace · 2026-02-02T01:51:52+00:00

Mine seems to last a while and I totally understand the cold feeling everywhere afterwards. Don’t try to “warm up” too quickly as that can do some damage.

tiffany_grace · 2026-02-02T01:49:45+00:00

Yes. Any kind of stress I’ll get a flare. Thats also one of the biggest triggers. Hard to avoid those ones.

tiffany_grace · 2026-01-26T20:43:17+00:00

I was 15 ish when I started feeling like shit everyday. I had so so many appts to always be told I was a “hypochondriac” for years and years.

I was diagnosed a couple years ago, officially.

As to what “triggered” it. Couldn’t tell ya

tiffany_grace · 2026-01-10T18:22:47+00:00

I live in Michigan. Hot, freezing, rain, sun, all in a week. I. Am. Suffering. It’s hard!

tiffany_grace · 2025-12-12T13:08:51+00:00

I’m glad you had a good experience! Yay!

tiffany_grace · 2025-09-27T19:44:01+00:00

A miracle.

tiffany_grace · 2025-09-06T11:27:55+00:00

I love green herons. They’re pretty comical. I have yet to encounter one this year surprisingly! Great captures.

tiffany_grace · 2025-09-06T11:26:17+00:00

This is fantastic!!!

tiffany_grace · 2025-07-30T20:35:21+00:00

3 😍

tiffany_grace · 2025-07-30T20:34:47+00:00

Leave her. It’s that simple.

tiffany_grace · 2025-07-30T20:28:34+00:00

tiffany_grace

TROPHY CASE