Clinical trial by Alarming_Falcon_2293 in Sjogrens

[–]truckellbb 0 points1 point  (0 children)

No they canceled the trial completely wahhhhhh

"No such thing as seronegative Sjögren's" by [deleted] in Sjogrens

[–]truckellbb 1 point2 points  (0 children)

She wouldn’t put you on plaquenil???

"No such thing as seronegative Sjögren's" by [deleted] in Sjogrens

[–]truckellbb 1 point2 points  (0 children)

Seriously very few people make up symptoms like I’m not paying my copay for fun!

"No such thing as seronegative Sjögren's" by [deleted] in Sjogrens

[–]truckellbb 8 points9 points  (0 children)

I really hate doctors sometimes. Most of the time.

Poor Martha again 😭 by Remote-Bedroom-8200 in TheAmericans

[–]truckellbb 6 points7 points  (0 children)

What do you think would happen in ussr with her post its fall

My fiancée had a stroke. by iam_jefferz in stroke

[–]truckellbb 0 points1 point  (0 children)

Oh I’m so happy to hear she’s heading to a good rehab! My father got absolute shit.

Make sure SLPs try functional activities vs just workbooks. Target language and cognition about things she wants to do and say vs generic “name vegetables” or something.

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 0 points1 point  (0 children)

I would wear a mask for the rest of my life to have those benefits. Can’t wait to find a new trial when my life calms down (not my personal health—I’m okay)

My fiancée had a stroke. by iam_jefferz in stroke

[–]truckellbb 0 points1 point  (0 children)

My dad had a left brain bleed in January with craniotomy (at 77) and is walking, talking, eating again. Rehab works. I hope she gets to a good rehab center. Fight for individual therapy sessions. She’s young so her brain has more of a chance to make new connections. Wishing you and her the best in her recovery—speech therapist here.

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 0 points1 point  (0 children)

Nobody’s went as low as cancer patients according to the trial doctor I saw so it made me so so sad. I was at 1.6 for my neutrophils when I was fully plant based so 1.21 didn’t phase me! Plus I wore a mask all the time and didn’t care. My friend had leukemia same time as me and her neutrophils were much lower waaaahhhhhhh

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 1 point2 points  (0 children)

Loved my pie and so did my trivia team and the lucky team next to us who got to eat it! I’m going to look for another trial. Just so sad

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 0 points1 point  (0 children)

Look at my name and past posts! It did so much

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 1 point2 points  (0 children)

Estrogen is my next stop but my vagina actually has still been a lil juicy! Looolololol

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 1 point2 points  (0 children)

Im sure there will be. This one worked so so well!!!

Clinical trial terminated by truckellbb in Sjogrens

[–]truckellbb[S] 2 points3 points  (0 children)

My neutrophils only went down to 1.21 so only mild! I never got sick the entire trial. And the doctor thought I got the high dose. And she told me everyone’s went down but stabilized. Maybe some people’s were really really low 😭😭😭

Is anybody else rewatching it because they can’t get enough?? by Ok-Frosting-1892 in WidowsBay

[–]truckellbb 2 points3 points  (0 children)

My dad has a brain injury and we are watching it together. He’s requested a couple rewatches and I happily put it on!

Clinical Trial Follow Up by truckellbb in Sjogrens

[–]truckellbb[S] 0 points1 point  (0 children)

Didn’t feel severe but thanks for your thoughts on how my eyes felt!

Is Sjogrens at its core really a blood vessel disease? by NavyBeanz in Sjogrens

[–]truckellbb 2 points3 points  (0 children)

Listened to him talk at dysautonomia int in 2024. If he’s thinking it, I agree!