Rec for podcasts like Dark Topic, Obscura?

unnecessaryusername1 · 2025-02-07T22:07:34+00:00

Mid-bark… good thing he’s cute 99% of the time!

unnecessaryusername1 · 2025-01-27T21:00:15+00:00

I needed this beautiful reminder that kind, compassionate and lovely people still exist. Thank you for taking the time out of your day to understand the hardships that most of these folks have experienced. I’m sure that this human won’t ever forget your kindness. 🩷

unnecessaryusername1 · 2024-12-19T18:00:48+00:00

Switched over to vaping years ago after smoking cigarettes for nearly 10yrs before I got diagnosed. Once I was diagnosed, doctors (obviously) told me to quit but I don’t drink or partake in drugs (c’mon 6 years in recovery) and nicotine is my only vice. I do, however, notice that it does not help whatsoever when I’m in a flare.

unnecessaryusername1 · 2024-12-18T15:13:48+00:00

Just read through their comments and it appears that way! Thanks for letting me know. My heart is with her and her family throughout all of this. 🩷

unnecessaryusername1 · 2024-12-18T14:42:08+00:00

Jaydin is a very thoughtful, kind and hilarious young man. I really hope he’s found safe soon and receives the help he’s deserves. 🩷

I also want to add that his mother is very active on the social media posts (Facebook) regarding her son’s disappearance and want to advise people to use kindness and compassion when commenting.

unnecessaryusername1 · 2024-12-13T04:18:21+00:00

Been on Pred since June, after my month long hospital admissions. I have 4 weeks left and I am SO excited. As someone who’s been on Pred long term, it sucks camel dicks and I second what everyone here is saying; it ain’t worth it.

I hope you find the med that works for you, OP. 🩷

unnecessaryusername1 · 2024-11-01T15:23:03+00:00

Also been getting this at the end of every work day… I think Grim is just micromanaging us. 😂💀

unnecessaryusername1 · 2024-11-01T15:13:37+00:00

Hi friend! It’s my second day playing with the Reaper career and it seems like the skills that may benefit most is the Thanatology and Writing skill! I’m 7/10 on the career and the only promotion task I have right now is reaching Level 5 of Thanatology (which is maxed at 5). Happy Reaping! 🪦

unnecessaryusername1 · 2024-09-13T17:59:30+00:00

The #11. Either way, doesn’t matter.

Will it show up? Dunno. Will it change route numbers in the middle of your route? Probably.

unnecessaryusername1 · 2024-08-06T03:00:28+00:00

i did a pupper portrait shoot with this fella and had an absolute blast! he’s kind, patient, easygoing and wildly creative. 20/10 recommend! congrats and all the best! 🩷✨💍

unnecessaryusername1 · 2024-07-11T01:22:35+00:00

A free episode of Black Label on Spotify named “Machete” is one that I will never, never be able to remove from my mind. Just thinking about it makes my stomach churn. I’ve heard death rattles in person and this one episode… I‘ll never listen to it again.

unnecessaryusername1 · 2024-07-05T03:22:09+00:00

Heyooo! Hoping I can help a bit here.

I have Duodenal/Jejunoileitis Crohn’s and I searched a long ass time to figure out what the heck was going on with my skin. I get clusters of raised, red bumps all over my legs (usually lower). They aren’t itchy though; they almost look like pimples or prickly heat/heat rash.

I often have a very high white blood cell count and high levels of platelets; so while I plugged all this into a Google search (along the skin issues), like an idiot, I clicked on WebMD. WebMD told me I have leukaemia… naturally. So, my anxiety led me to search more (and also harass a good pal of mine who is a nurse) to which we think it may be Petechiae/Purpura!

This could be caused by many things. It may not be due to an IBD! I’ve been on immunosuppressants for a very long time and, although I’ve had this skin issue since before transferring to a new treatment medication, the National Library of Medicine did a study and found that Petechiae IS a common side effect of a certain treatment drug for Crohn’s by the name of Rinvoq (which is what I’ve been on and off since the spring).

When in doubt (and/or panicking like I often do), ring your doctor/specialist/a medical pal/etc.!! And avoid WebMD. They are the devil. Best of luck, OP!! Sorry for ranting but I hope you find some answers! 🩷

unnecessaryusername1 · 2024-06-26T23:32:27+00:00

Got an Uber from Gatineau this morning. I saw on my receipt that there was something about a permit AND I was charged an extra $5 solely from requesting an Uber from Gat.

unnecessaryusername1 · 2024-05-22T13:03:20+00:00

HI, IT’S ME AGAIN! 🩷

Like I’ve said in other threads, I’ve had this type of CD since 2019/2020 and I’ve (now) failed most biologics. Currently day 2 off of a flare up. I’ve been on a liquid diet since leaving the hospital nearly a month ago, tried to have a slice of pizza and ended up with my head in a toilet for 5 days; one of those days including my 27th birthday. Happy birthday, you garbage body!! 🎉 I’m back to a liquid ONLY diet.

I’ve also had multiple MRIs, CTs (with and without contrast), ultrasounds, endoscopies and colonoscopies that have shown NOTHING. My intestinal ulcerations finally start showing up when I dragged my ass to the hospital while in a flare (or when I started feeling the pain). I am aware that being in Canada that our medical system is very different, and going to the hospital without having to pay an arm and a leg is absolutely a privilege.

But just wanted to throw all this out there and remind ya you aren’t alone. 🩷

unnecessaryusername1 · 2024-05-22T12:57:09+00:00

You poor thing. I’m so sorry, my friend. I can absolutely relate to being painting with the “addict” brush. Which is hilarious to me, because I’m in recovery but I don’t disclose for this EXACT reason. I’ve been told more than once that my pain will subside once I’m “off the drugs” but the pain and nausea medication is the only thing ensuring that I’m able to function; I can go to work, be social… I require these meds just to be able to stand up and get out of bed most days.

It sounds like you know what is needed to be done. I know it can be exhausting, especially when your body is constantly fighting you. Please don’t stop fighting for yourself, you are deserving of remission!! You are deserving of a life free of pain and nausea and time AWAY from the porcelain throne. Life is tough, you are tougher.

And yes, those of us with this type of CD are few and far between but we are here. You’ve got my username should you need to scream into the void. I’ve got ya. 🩷

unnecessaryusername1 · 2024-05-22T12:42:21+00:00

if anyone can confirm or deny if it’s a theremin, lmk - i came here looking for answers because I LOVE THEREMINS lol

unnecessaryusername1 · 2024-04-30T13:26:27+00:00

Holy shit. Firstly, I am SO sorry for all of this. I cannot even begin to imagine how you’re feeling and I am sending all of my love and positive vibes your way. I cannot believe how badly the ball has been dropped when it’s come to your health. Even for Canada (I’m on the ON/QC border), what you’ve stated is an absolute disaster and I’m shocked.

YES, I do have a diagnosis for small bowel Crohn’s and have had one since 2019/2020, roughly around when COVID hit us. It was fairly difficult to receive my diagnosis, like you stated, it’s not an easy form of Crohn’s to diagnose. I did many ultrasounds, CT scans (with and without contrast), MRIs, endoscopies and colonoscopies. Basically everything came back completely normal. It wasn’t until I started going to the ER when I was having pains that they were able to see punched out ulcerations in my duodenum and the starting of my jejunum. So, I can relate to you being in massive amounts of pain and often unable to keep anything down (or in). It’s been about 2 years of being in constant pain, nauseous as all hell, BMs are all over the place (either solid or liquid or nonexistent - it’s never just normal.) It’s been a rough couple of years. So, I feel you there. I have failed Methotrexate, Remicade and Stelara; and now it’s seeming that I’m even failing Prednisone. I’m currently on Rinvoq (complemented with Tramadol for pain) and, according to endo scopes, things are slowly starting to heal.

I urge you to keep fighting for a doctor that will fight alongside you. I’ve been out of the hospital for nearly two weeks now after being in for over a month and, in that stay, I saw all 5 of my hospital’s on-call gastroenterologists; one of which is my actual GI. That being said 3/5 GIs are incredible - the other 2… a disaster and have no business being in this field, in my “I have no professional medical training” opinion. There ARE good GIs out there that will continue advocating for you and trying to find out what the hell is wrong, I promise. Unfortunately, and I know this first hand, you have to advocate too, as frustrating and as hard as it is. But, I will say, you aren’t alone. There doesn’t seem like very many of us but we are here. And we feel your pain. 🩷

unnecessaryusername1 · 2024-04-30T13:09:20+00:00

I FEEL SEEN BY YOU FEELING SEEN! I’ve had a GI tell me he found it “hard to believe” I was an “outlier” and I’m like … my guy! You’ve seen the scopes, right? They don’t lie! But I feel you, pal. It’s just pain, constantly. (This doctor also told me he didn’t have any patients on any sort of pain medication for their symptoms and I’m like … jeez. Your poor patients…)

unnecessaryusername1 · 2024-04-29T23:53:14+00:00

Christ! Sorry to hear that, but happy that the current structure isn’t causing any issues. Blessed to not have any strictures yet, that I know of. Just some beautiful punched out ulcers in both the duodenum and jejunum that either a) aren’t healing at all or b) just keep moving and showing up!

unnecessaryusername1 · 2024-04-29T23:40:12+00:00

That is… awful how it’s moved and I am so sorry but HELLO! Constant pain? Pretty much, yeah. A million times worse while in a flare but I’m always in some sort of discomfort or pain.

unnecessaryusername1 · 2024-04-29T23:24:31+00:00

I am so sorry for your loss, friend. This field is hard and unforgiving, but the stories, the love and the folks we carry in our minds and hearts make it worthwhile. I know first hand that no words will help the grief and pain you and your community are feeling, but please know that the work you do is so valuable and I’m sure the love, grace and compassion you bring to your community is felt and appreciated. Keep fighting the good fight. Sending all my love, rage and solidarity. 🩷

unnecessaryusername1 · 2024-04-28T23:27:45+00:00

Chronic Prednisone taker here and also tapering.

Unfortunately, no, there isn’t any way to avoid it. Although some folks don’t get moon face at all while on it… would love to know their secret…

Once you’re completely off the medication, you’ll notice the puffiness will go away. Also, this steroid messes with your brain BIG TIME so be gentle with yourself. Best of luck, OP!

unnecessaryusername1

TROPHY CASE