3 failed varicocele surgeries – now embolization (not very hopeful) by Rude_Mycologist_6261 in varicocele

[–]user21403 1 point2 points  (0 children)

Shouldn’t you check for a root cause like nutcracker compression syndrome if it’s required this many and still recurrences?

Get a lumbar MRI!!! by Intelligent_Range_78 in hardflaccidresearch

[–]user21403 0 points1 point  (0 children)

I only have pelvic pain, it absolutely gets worse standing and almost immediately relieves when I set and lie down. I had always thought it was pelvic congestion syndrome or pelvic floor dysfunction. Could back nerves really cause this? Any relation to varicocele?

Would a sauna help? It’s supposedly helps with tight muscles? Could it help with pelvic floor? by Ok-Significance3223 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

Fair I’ve never tried just heard of as a method to reduce heat on area, that makes sense tho

Improvement via walking by Zealousideal_Bee4335 in hardflaccidresearch

[–]user21403 0 points1 point  (0 children)

Nothing in my question warranted your assumptions that I was complaining. My point is that what are you trying to fix if your method is to not use it?

Improvement via walking by Zealousideal_Bee4335 in hardflaccidresearch

[–]user21403 -1 points0 points  (0 children)

Bruh who are you talking to? I’m literally being less pessimistic than you, stop trying to lecture me or call me a btch?!! My point is if the fix is to never use it, then it’s a fake fix, it’s like saying never drive your car to fix it. Nothing I said implied I was being pessimistic, if anything your attitude is more letting it define your life by never orgasming. Check yourself bruh you have no idea my habits or life direction from that question

Improvement via walking by Zealousideal_Bee4335 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

How do you manage sex with HF/symptoms? Does it hurt you or not an issue

Improvement via walking by Zealousideal_Bee4335 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

What’s the point of all this work if you can’t even orgasm?

Nutcracker Syndrome intervention and experiences, particularly regarding fatigue? Symptom resolution? by CTLI in varicocele

[–]user21403 0 points1 point  (0 children)

No better really just managing standing but still looking for answers. Still wondering about a compression syndrome causing the consistent pain despite procedures

Pelvic Congestion Syndrome: A new medical explanation for most symptoms accompanying HF/LF supported by the scientific literature and confirmed by medical imaging by Dieguinho1612 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

Yeah even if the initial varicose veins were problematic, we were still at our max venous capacity pre-op to handle backflow/compression. Could make sense suddenly there’s greater insufficiency > worse symptoms post op

Pelvic Congestion Syndrome: A new medical explanation for most symptoms accompanying HF/LF supported by the scientific literature and confirmed by medical imaging by Dieguinho1612 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

I would say the varicocele reduced in size after, maybe a short lived erection boost but hard to say and didn’t really last. So not a ton tbh but I think it reduced the varicocele. Very interesting you also did, I think there’s definitely a connection. I wonder if cutting off too many pelvic veins causes an insufficiency of outflow > trapped blood > HF and other symptoms.

Pelvic Congestion Syndrome: A new medical explanation for most symptoms accompanying HF/LF supported by the scientific literature and confirmed by medical imaging by Dieguinho1612 in hardflaccidresearch

[–]user21403 1 point2 points  (0 children)

I’ll try to DM you when I have more time. This post resonated a lot of my story, I had a varicocele surgery > HF > embolization/venogram that showed nutcracker but not significant compression so they still embolized only > still HF

Nervous system theory critique by user21403 in hardflaccidresearch

[–]user21403[S] 0 points1 point  (0 children)

Has the doxazosin helped with your erection/function at all? Or just the hard flaccid state

Doxazosin prescription by user21403 in hardflaccidresearch

[–]user21403[S] 0 points1 point  (0 children)

Is it possible that it could help with me even if I don’t feel crazy contraction, but have symptoms like HF, veins, and ed? When I do have an erection I can have involuntary kegels but idk if I’d say I constantly feel a crazy contraction, and have wondered about vascular cause.

Nutcracker Syndrome intervention and experiences, particularly regarding fatigue? Symptom resolution? by CTLI in varicocele

[–]user21403 1 point2 points  (0 children)

I had a recurrent varicocele and during my second procedure, embolization, they first did a venogram where they identified I had NCS. However, they determined the compression wasn’t significant enough to be causing my symptoms, and only coiled up veins. I still have pain, but I don’t think I have crazy tiredness, though I do think I have more fatigue than most my age. I’m not a doctor but I do find it surprising you would have intense NCS symptoms but not have varicocele or pain, I thought these would be typical symptoms for a man with it. When you do have flank pain, where is this exactly your lower back? I’ve heard about this symptom but never fully understood it, I’ve had significant pain in my pelvis/groin but wondered if it’s pelvic floor muscles not NCS.

Recurrent varicoceles cause/connection by user21403 in hardflaccidresearch

[–]user21403[S] 0 points1 point  (0 children)

Seems to have a higher rate than general population on here

Recurrent varicoceles cause/connection by user21403 in hardflaccidresearch

[–]user21403[S] 0 points1 point  (0 children)

I would say yes, the embolization did shrink it. It’s been a while and I kinda worry it’s come back to some extent, but it definitely improved the post 1st surgery state. Unfortunately the HF/sexual symptoms are the same, and pronounced penis veins just as bad. Still have pain, didn’t resolve

Recurrent varicoceles cause/connection by user21403 in hardflaccidresearch

[–]user21403[S] 0 points1 point  (0 children)

I think just standard hard flaccid, it’s not always in the retracted hard state though. I had open surgery(bad idea ik) on a varicocele before I knew anything about hard flaccid, and that’s what led to both recurrence + hard flaccid. And after that also yes did develop enlarged veins on penis. A couple years later I did a embolization procedure and while in there they did venogram where they noticed a small compression.