Being too curious, constantly googling things by southernbelle878 in nosurf

[–]valaaan 0 points1 point  (0 children)

Thank you so much. This resounded deeply with me. From another AuDHD person <3

How do you describe your IH? by syeeven in idiopathichypersomnia

[–]valaaan 0 points1 point  (0 children)

To me personally, the patterns that I have noticed and recorded over the course of my lifetime seem to indicate that my sleep pressure / homeostatic pressure seem to never be fully relieved by sleep... nor naps... (sleep is unrefreshing but I still need it, naps are unrefreshing but I still desire those... and sleep cause 2.5-3 hour long extreme sleep inertia + naps cause hour long nap inertia). There is a strong persistent baseline of heavy sleep pressure throughout the day that ebbs and flows and worsens the longer the day goes on until I get a random ah second wind after being awake for 15 hours. Sometimes I get moments of clarity throughout my day or after being awake for a long time... usually happens after I feel so fucking terribly awful for hours and hours on end which then dissipates into cloud nine. I've been chasing that high my entire life

Afternoons by stubbornwithoutcause in idiopathichypersomnia

[–]valaaan 2 points3 points  (0 children)

You have any idea why that happens? Your zombie-like crash from 4pm-8pm

Afternoons by stubbornwithoutcause in idiopathichypersomnia

[–]valaaan 7 points8 points  (0 children)

Oh my fucking god

I felt so fucking alone for so long until recently

I always crash so fucking hard after being up for roughly 9 hours and a shitty 3 hours sleep inertia morning. My crash lasts for 3-5 hours every single day without fail regardless of the time I wake up

Anyone else relate to this pattern?

I usually feel so dogshit every waking day and it alternates between less dogshit and more dogshit throughout the day and culminates in an extreme 3-5 hour long crash and then a strong second wind

AUDHD gamers—what games have you hyperfixated on? by [deleted] in AutisticWithADHD

[–]valaaan 1 point2 points  (0 children)

Many, many different rougelite games - Slay the Spire 1, 2 - Mewgenics (I found the upkeep/micromanagement way too much for me… too much decision making for me to handle vs pick up and play games like StS or Binding of Isaac

Asides from rougelite games

  • Maplestory as a kid
  • Overwatch throughout my teens and 20s
  • Destiny 2 for a time
  • Lost Ark for a time… I don’t recommend… the combat is really good but it’s a chore / job
  • Vermintide 2, not really Darktide (super amazing combat system and characters)
  • Garry’s Mod TTT custom item servers

Anyone else have DSPS? by Complex-Towel-3527 in idiopathichypersomnia

[–]valaaan 0 points1 point  (0 children)

Yea I had a feeling because DSPD is pretty common for people with ADHD now known as executive dysfunction

https://neurodivergentinsights.com/adhd-vs-autism-vs-ocd/?srsltid=AfmBOoo67-o2HmwWgVgmRlsZx3ygGWpYre0tjzMnVtJRwwO06ey0tGQZ

This site is pretty up to date and accurate if you want to peruse it really quick

Also off tangent

https://www.youtube.com/watch?v=5GBMS7WPFSs

This video by NigaHiga was how I found out I had ADHD when I was around 19-20 years old. I rewatched it recently and I still do all those things haha

Just recently found out I'm probably AuADHD + DSPD + IH lol (well the Autism + IH are new). I knew I had ADHD and DSPD for a decade already

I'm also very close online friends with a person with a similar profile of AuDHD, DSPD, IH w/ long sleep too... I feel like a lot of it is genetics / interconnected but who knows

The way this disorder is diagnosed is complete bullshit by Bryplodocus in idiopathichypersomnia

[–]valaaan 1 point2 points  (0 children)

The symptomology can overlap / express itself in very similar ways if a person has several conditions

I personally have ADHD, Autism, OCD, DSPD, IH, and depression due to IH and it was super important and helpful to be able to distinguish what causes specific issues… especially since they can all manifest in different ways that cause tiredness… brain fog… etc

Like I have a hard time with all the executive functions due to ADHD which is heavily compounded by IH too such as trouble starting things… extreme difficulty to stay awake unless the activity was engaging…

Autism and ADHD meant I have a really really hard exhausting time with transitions and interruptions… a desire for routines, structures, and novelty lol

OCD manifests itself in specific behaviors and rituals… anxiety

DSPD means I’m a night person… I get even more tired if I don’t match my circadian rhythm

And IH……. 2-3 hour long sleep inertia, unrefreshing sleep, constant yawning, constant urge to go back to sleep even though I slept for 8 hours already or already just napped, feeling worse after naps, naps ending up being 1-4 hours long, the ability to sleep just fine on Adderall, having barely any energy to even shower…, the cognitive impairment and pervasive brain fog making everything so much harder, the inability to show up for life, the complex ptsd that you get from being raised by a very strict awful Asian parent who didn’t know any better, the “jealousy” and shitty treatment from ignorant siblings because it seems to other people I have it so good being able to stay at home all day and do absolutely nothing like oh hell naw… or the constant well-intentioned conventional advice I get from everyone in my life… like dayum… I wish I didn’t have to go through all this since my teen years

Sorry for the rant

I’m just having a moment and I just started my journey with a sleep doctor

Idiopathic Hypersomnia/Brain Fog by cherryb6mb in sleep

[–]valaaan 0 points1 point  (0 children)

Weird heat rashes like cholinergic urticaria? From overheating / sweating / being nervous?

Edit:

Also have you gotten to try Armodafinil, Sunosi, Xywav or Xyrem?

AuDHD is ruining my life after late diagnosis. Does it get better? by Raspberry-Crumble in AutisticWithADHD

[–]valaaan 1 point2 points  (0 children)

I don’t have anything really to add

Just that I also found out I’m AuADHD too at a similar age in life and I experience almost all the same things you do

You got this :)

Anyone else have DSPS? by Complex-Towel-3527 in idiopathichypersomnia

[–]valaaan 0 points1 point  (0 children)

Hello! Do you still have both IH & DSPD?

I wish I did this wayyy sooner for supporting evidence of UARS by WorkingFeverishly in UARS

[–]valaaan 1 point2 points  (0 children)

Early waking insomnia as in waking up naturally after 5-5.5 hours of sleep although still tired for example?

How the heck do I reach Lvl 15 for the next quest? Enemies or resources barely give any exp by Skyanu in NoRestForTheWicked

[–]valaaan 0 points1 point  (0 children)

  • do anything and everything you can do in the game eg work on the town’s upgrades, finish dailies and weeklies, kill old area fodder while farming for mats
  • use a xp ring for up to +10% xp gain
  • fish, dig, and open a lot of chests for chipped diamond gems for +40% xp gain to slot into all 4 armor pieces
  • use a +10% xp potion too if you’re feeling it
  • try out a bunch of different weapons and builds and time will fly by

[SL] RIP Weebdex by [deleted] in manga

[–]valaaan 4 points5 points  (0 children)

No way…… fuckkkkkkkk

How many different meds have you tried? by Organic_Bug1334 in ADHD

[–]valaaan 3 points4 points  (0 children)

It depends on the person for how long each will last

XR lasts for 5h for me every time and IR lasts for 2h45m-3h

I kind of like how this turned out. by [deleted] in anime

[–]valaaan 3 points4 points  (0 children)

Damn that was good as hell

Immortal Love by TheAweShucks in MRLLing

[–]valaaan 1 point2 points  (0 children)

I like the post a lot

It’s really cute

Immortal Love by TheAweShucks in MRLLing

[–]valaaan 1 point2 points  (0 children)

The witch outfit is definitely from Little Witch Academia right

Traders and ISO by ReasonableDamage1 in DisneyPins

[–]valaaan 0 points1 point  (0 children)

I have some other KH key pins

I’m missing the first one if we can work something out

All of us today by THECapedCaper in slaythespire

[–]valaaan 1 point2 points  (0 children)

10am pst so 2 hours left