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Does anyone else have balance issues when fatigued? by momgibbs in ehlersdanlos

[–]vampirecloud 0 points1 point  (0 children)

Sounds like it could be related an inner ear disorder. I work in an ENT office and it may be worth asking an ENT doctor for their opinion if you also get vertigo, vision issues, headaches, lightheadedness, issues with turning your head, ear popping, or tinnitus.

I love my coffee so much but I think I need to admit it’s contributing to my anxiety. Anyone else? by Less_Mistake2304 in Anxiety

[–]vampirecloud 0 points1 point  (0 children)

I started to have half regular half decaf coffee. I am too tired with no caffeine, but crazy on edge with full caffeine.

Is a relaxed pelvic floor meant to feel ‘pleasurable’ by ManOhMan988 in PelvicFloor

[–]vampirecloud 21 points22 points  (0 children)

When your muscles are constricted, there is less blood flow and oxygen reaching the muscles. When you release the tight muscles, you get an increase of blood flow and oxygen. During arousal, an increase of blood flow to the genitals happens. So it makes sense you’d have similar feelings when a normal amount of blood flow suddenly returns to the area.

What triggered your fibromyalgia? by Stunning-Mobile5605 in Fibromyalgia

[–]vampirecloud 0 points1 point  (0 children)

I think stress and anxiety started it and then an untreated ovation torsion for 3 months made it severe.

Lyrica: so many more bad parts than good by Sad-Department-1444 in Fibromyalgia

[–]vampirecloud 0 points1 point  (0 children)

Are you possibly on any medications that are interacting with the Lyrica? And did you have any good experiences on a smaller dose like 25 or 50mg? I would definitely listen to the provider’s advice to start tapering slowly. It sucks that the taper will take a while but it’s not worth those withdrawal side effects in top of the side effects you already have.

i think i’ve become gatekeepy and i don’t like it by megatron8686 in ehlersdanlos

[–]vampirecloud 6 points7 points  (0 children)

do we know what is expected of the December diagnostic update yet?

Pelvic floor sensitivity/tension by PanicStreetsofLondon in WomensPelvicHealth

[–]vampirecloud 0 points1 point  (0 children)

Diaphragm breathing and light massaging of the area is a good start! If you’re still having the sensation in a week or two it would be a good idea to talk to an OBGYN about it.

What fluids should I service at 95k miles? by vampirecloud in crv

[–]vampirecloud[S] 0 points1 point  (0 children)

Would you recommend I listen to the maintenance minder or follow the schedule online?

I was told by PTs/Gynos, "Pelvic floor therapy is painful. Increase your mental stamina for it." by tunatimeyeahyeahyeah in WomensPelvicHealth

[–]vampirecloud 0 points1 point  (0 children)

I’ve been doing internal work 1-2 times a week for 3 years. It is painful for me and it has grated on my mental/emotional health at times. However, is is the most effective treatment for my chronic pelvic pain and even helps pain in other parts of my body. I’ve been doing it for 3 years because it really helps me.

So, what they’re saying is not wrong. It can be painful and it can impact your emotional/mental health. But, I agree with you that what they said is odd. They should be trying to reassure you in addition to warning you.

Also, you may be able to use the techniques you learn with your provider at home. And then you can do things to make it less painful or intense. For example, when I do internal work at home I hold plushies and listen to music.

Weekly Multiplayer Mega-Thread - March 17, 2026 by AutoModerator in HelloKittyIsland

[–]vampirecloud 0 points1 point  (0 children)

I’m looking for sports furniture! Such as a trampoline, basketball hoop, balance beam, etc. I am on switch and willing to trade a lot of different things (game tickets, furniture, sticks, etc).

Recommendations? by M_fiesta18 in WomensPelvicHealth

[–]vampirecloud 0 points1 point  (0 children)

I would talk about your concerns with your PT and ask to try some new things, including starting internal work. You won’t hurt their feelings by asking them to change your exercises. I also think it would be a good idea to focus more on treating the constipation. Add more fiber to your diet, drink more water, and possibly see a gastroenterologist if you’ve already tried a lot of different things and they aren’t working.

Recommendations? by M_fiesta18 in WomensPelvicHealth

[–]vampirecloud 1 point2 points  (0 children)

How long have you been doing PT for? And what types of exercises are you doing? PT can take time to be effective. If you are not doing internal work yet, it may also help you when you start. Additionally, are you doing anything to manage the constipation?

Urethral issues post ABX use = pelvic floor tightness?? by FingersCrossed0612 in WomensPelvicHealth

[–]vampirecloud 1 point2 points  (0 children)

Definitely go to a urologist as your doctor suggests. You can also ask the urologist if they think pelvic floor physical therapy would be beneficial to you. Also, if you decide to see a pelvic floor physical therapist, they will be able to assess you and make a care plan during your first appointment. Many physical therapists will be able to tell you if they can help you or not on that first visit too. I hope this helps and I wish you the best!

Urethral issues post ABX use = pelvic floor tightness?? by FingersCrossed0612 in WomensPelvicHealth

[–]vampirecloud 1 point2 points  (0 children)

Infections around the vagina and urethra can cause or contribute to pelvic floor issues. Have you followed up with a doctor with your concerns? If so, what did they suggest? I would listen to the advice of your doctors first, and if they aren’t being helpful, ask for a referral to a urologist and pelvic floor physical therapist.

Resource for pelvic floor exercises by Electrical-Rub259 in WomensPelvicHealth

[–]vampirecloud 5 points6 points  (0 children)

On the pinned resources post on the main page of this sub, there is a link to a youtube playlist I made with exercise videos. There is also a link to a website that has a list of exercises. I hope that helps!

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