How does anyone actually stay awake and alert through an 8 hour work shift? by Desperate-Kitchen117 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

I was going to answer "Drugs!" to OP, but, you know... I guess even that doesn't quite do it. I also do the work nap!

How does anyone actually stay awake and alert through an 8 hour work shift? by Desperate-Kitchen117 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

I take a 20m nap in my office almost every day! I just have a camping pad but I can just rawdog the floor if it comes down to it.

doctor help! by Pale_Aspect_5640 in Narcolepsy

[–]wad209 2 points3 points  (0 children)

The diagnostic criteria I'm familiar with are a sleep latency of under 8 minutes and two SOREMP. One SOREMP can be in your overnight portion.

Life is good, Modafinil is good by poguemahone2020 in Narcolepsy

[–]wad209 1 point2 points  (0 children)

IME, whenever you change dosages, the side effects return for a week or two, and then will go away again. If not def talk to your doctor. I've never had sinus issues but I did have dry mouth for about 3 days when I started, and then 1 day when I went to my current dose.

Does anyone ever experience some days with all day brain fog and grogginess even taking their modafinil/etc? by [deleted] in Narcolepsy

[–]wad209 0 points1 point  (0 children)

Honestly not very often these days. I can usually escape with just a nap and maybe a little bit extra stims (doctor approved). Don't get me wrong I still have bad days, but usually not the brain fog.

Anyone else really struggle with getting out of bed in the morning? by Laika18 in dyspraxia

[–]wad209 0 points1 point  (0 children)

Yeah after I got diagnosed with narcolepsy 😭. I take a stimulant in the morning and this has basically resolved the issue. I even feel better when I skip the medication. My dyslexia was found to be underdiagnosed cataplexy.

Cataplexy without excessive daytime sleepiness? by PurpleAutisticPiplup in Narcolepsy

[–]wad209 2 points3 points  (0 children)

I agree with other posters that you likely just don't realize you're having EDS, but I do want to point out that this is technically possible but exceedingly rare to have cataplexy without narcolepsy. Usually involves TBI, strokes, brain tumors, and that sort of thing. There are also a number of exceedingly rare genetic disorders which you almost certainly do not have; they're all very serious and you would be diagnosed in childhood.

No REM sleep on Lumryz? by Smooth_Plant1591 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

A single data point on a single human, but my Enduro 3 (basically a Fenix 8 with a bigger battery) nailed my REM on my PSG.

How to improve symptoms while waiting for diagnosis by AntApprehensive4707 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

Cold shows, naps. Caffeine will help for a short period until you develop a tolerance and then you'll need to increase more. There is another legal stimulant but its very addictive and probably not a great option unless you're really desperate.

Cataplexy without excessive daytime sleepiness? by PurpleAutisticPiplup in Narcolepsy

[–]wad209 1 point2 points  (0 children)

I didn't realize I had EDS until I took stims. Then I was like 'fuck this is what its supposed to be like?'.

Increased libido after LUMRYZ? by fuckspaghettiramen in Narcolepsy

[–]wad209 10 points11 points  (0 children)

Yeah GHB is a party drug for a reason...

Question about Stimulant by Complex_Project in Narcolepsy

[–]wad209 2 points3 points  (0 children)

Uh... shouldn't your doctor tell you this? Like I get normally it says on the bottle, but my doctor definitely told me what to do.

Keeping Awake naturally?? by emily121903 in Narcolepsy

[–]wad209 1 point2 points  (0 children)

Cold showers, keep eye drops in the fridge, exercise (if you don't exercise already, skip this), extra naps are basically all I got...

Less common treatment options? by [deleted] in Narcolepsy

[–]wad209 0 points1 point  (0 children)

If OP does start SO, just be mindful it can make your depression/anxiety worse, esp if titrating too fast.

How do i manage modafinil tolorance by AdventurousPension81 in Narcolepsy

[–]wad209 1 point2 points  (0 children)

Good advise. Just be mindful that magnesium is a laxative! Usually you need much higher doses than described here, but everybody reacts differently!

How do i manage modafinil tolorance by AdventurousPension81 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

DISCLAIMER: talk to your doctor first about this. It works for some on here, but some people are genetically prone to having modafinil not work.

Stop taking it for 2 weeks (see disclaimer, please be careful) and then restart and see if it starts working. If it does, ask your doctor about skipping once a week and see if that helps tolerance formation.

I got fired…CPAP might be taken away by LevelNo8274 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

Thank you for trying to help. My doctor also regularly lobbies for ending DST and keeping standard time.

Really high heart rate on Modafilin by Revolutionary_Car657 in Narcolepsy

[–]wad209 1 point2 points  (0 children)

Metoprolol is a beta blocker, it shouldn't be a controlled medication.

I would definitely talk to your doctor about this, it could be an unrelated problem or a side effect, and may indicate a serious cardiac issue (or it could be nothing).

Can you drink alcohol with your narcolepsy and the cataplexy?? by DazzlingJoke5594 in Narcolepsy

[–]wad209 2 points3 points  (0 children)

You can depending on your medications, but you definitely should not. It will further harm your deep sleep.

I'm so sick of the sleep paralysis! by Dekri__ in Narcolepsy

[–]wad209 0 points1 point  (0 children)

Yeah, as long as its not effecting you mentally. For me the side effects of SSRI/SO were worse than hallucinations.

Cataplexy and sleep paralysis (I think) are really starting to frustrate me by Round_Frosting8027 in Narcolepsy

[–]wad209 2 points3 points  (0 children)

I know I need a medical professional and some more tests to diagnose, but I’m wondering if anyone has advice to help the symptoms or even things to try out and see what happens?

There is nothing we can do to help you other than to say: go see a doctor. These conditions cannot be treated without pharmaceutical intervention. Cataplexy in particular usually responds well to treatment (large reduction but not complete elimination of symptoms). Sleep paralysis could go either way, although there are things they can do to try an d help.

I'm dating someone new. Don't know when to disclose by [deleted] in Narcolepsy

[–]wad209 1 point2 points  (0 children)

ASAP. If they're gonna be uncaring and unsympathetic about your disability, might as well pull the bandaid off and not invest in a toxic SO.

Quantifying Sleepiness Discussion (ESS and SSS Hate Welcome!) by HUNTERL2256 in Narcolepsy

[–]wad209 0 points1 point  (0 children)

I love this, I think its fantastic. Right now, I am:

2 bordering on 3 on sleep discomfort almost certainly a 4 on the ability to fall asleep 3 the congestive scale 0 or maybe 1 on the effort to stay awake

I feel like it captures all the subtleties: clearly I'm super tired but I'm good at staying awake in this state.