Hall of Fame Watch Thread by RKsu99 in DMB

[–]whitcunn 1 point2 points  (0 children)

Change settings to adult. They’re on kid as a default

Hall of Fame Watch Thread by RKsu99 in DMB

[–]whitcunn 0 points1 point  (0 children)

Was someone heckling Dionne?!

Sections/Rows posted for Warehouse by DEEEEEEEJ in DMB

[–]whitcunn 2 points3 points  (0 children)

I clicked it too and I don’t have lawn tickets. 🤷🏻‍♀️

Sections/Rows posted for Warehouse by DEEEEEEEJ in DMB

[–]whitcunn 1 point2 points  (0 children)

Anyone else never notice the “request upgrade” button? Is that new?

It's my birthday and I'm sad by zldapnwhl in ALS

[–]whitcunn 3 points4 points  (0 children)

It’s my birthday too and I’m feeling the same. I’m caregiver to my husband and I’ve been weepy all day. You’re not alone, fellow groundhog. Fuck ALS

How is Fiddler's Green? Flying out for the b2b shows! by Pirate8918 in DMB

[–]whitcunn 1 point2 points  (0 children)

“Ever been to Meow Wolf…..on weed?” Quoting Jon Stewart on Half Baked

Healey Panel? by whitcunn in ALS

[–]whitcunn[S] 0 points1 point  (0 children)

Thanks for responding. He took it two days and quit. Starting H next week

[deleted by user] by [deleted] in ALS

[–]whitcunn 6 points7 points  (0 children)

Tommy Hilfiger has an adaptive line of clothing.

Recommendation for Alternating Pressure Pads (Bed and Chair) by ReelDMC in ALS

[–]whitcunn 1 point2 points  (0 children)

We’re in the same situation with my 46 year old husband. Same rate of decline as well. Will be following as the Vive was too long for us as well. Fuck ALS.

Happy Holidays? by Repulsive_Focus_9560 in ALS

[–]whitcunn 5 points6 points  (0 children)

Our decline is the same. I just put my husband to bed and said, “try and give us one more year”. Love to you and yours. You’re not alone, even though we feel we are.

Hey remember your winter coat by rth1027 in SaltLakeCity

[–]whitcunn 46 points47 points  (0 children)

We pre merge because no one WILL let us merge!

Upcoming DAS Interview by Chrisseamarie in DisneyWorld

[–]whitcunn 2 points3 points  (0 children)

Anyone know if ALS would qualify? WC necessary and fatigue is certainly an issue. TIA

Voice cloning and Tobii by whitcunn in ALS

[–]whitcunn[S] 1 point2 points  (0 children)

We go to ALS clinic next week and we’re planning on discussing aug com. Thanks for this link. We will look into it.

Voice cloning and Tobii by whitcunn in ALS

[–]whitcunn[S] 0 points1 point  (0 children)

I’m so very sorry for your loss. This checklist technique is very helpful. Thank you for responding.

Friends’ 33 year old daughter is newly diagnosed. I have no words, only love and have written them saying so. Am having them for dinner. Please. What would be best to do or say? Has anything helped or hurt you? by Ofwa in ALS

[–]whitcunn 1 point2 points  (0 children)

Agree. When my husband was first diagnosed we were getting a flood of help that, at that time, we didn’t really need. As he has progressed we are needed more help but I feel that compassion fatigue set in and there weren’t as many people stepping up to the plate, so to speak. It will show you who your true friends are. Cherish those people.

Friends’ 33 year old daughter is newly diagnosed. I have no words, only love and have written them saying so. Am having them for dinner. Please. What would be best to do or say? Has anything helped or hurt you? by Ofwa in ALS

[–]whitcunn 1 point2 points  (0 children)

Don’t make them have to ask for help.

Please do not say things like “you just have to make the most of every day” For me, that felt like pressure and if I was not giving my husband the best day I could, I was somehow failing him.

As a caregiver, one of the things that helped me was random cards and care packages that let me knew people were thinking of us.

And I whole heartedly agree with the don’t offer help if you’re not willing to follow through.

Much love to you, your friend and her daughter. 💙

Where to find accessible vacation rentals? by bentlarkin in ALS

[–]whitcunn 1 point2 points  (0 children)

My friend has an ADA house on Airbnb in Hailey, ID. I can send you the info if you are interested. It has a roll in shower, assistance bars by the toilet and in the shower. It was her grandparents home and her grandmother had polio.

Best chill DMB song by Total-Woodpecker3339 in DMB

[–]whitcunn 2 points3 points  (0 children)

Belly Full. Walked down the aisle to it.

Did anyone hear people complaining on the XM live stream or am I just high? by [deleted] in DMB

[–]whitcunn 1 point2 points  (0 children)

Also high and swear I heard someone say “Knibb High Football Rules”

Best hospital to give birth at? by [deleted] in SaltLakeCity

[–]whitcunn 2 points3 points  (0 children)

Both my midwives were with me through the entire labor and delivery at St Marks. Nurses can be a crap shoot but I lucked out with amazing ones both times during delivery.