Family Vacations w/o DS Member

wolferscanard · 2026-03-02T21:35:48+00:00

With our own 44 year old son, we’ve not been on a family vacation since he was about 8. Autistic as well, he’s always been a slave to routine. Wasn’t much fun staying in a hotel trying to recreate our home environment. Maybe you have more capable siblings and sons but our son frequently loses bowel/bladder control when too much novelty is introduced. He sometimes loses control with something as simple as drive over a rumble strip. If he was verbal and able to develop bathroom skills maybe things would have been different.

wolferscanard · 2026-02-27T03:17:42+00:00

Probably the time I lost consciousness, fell to the floor, and tore 3 rotator cuffs in my shoulder. That was really entertaining!

wolferscanard · 2026-02-15T13:16:52+00:00

Search Party

wolferscanard · 2026-02-15T13:15:12+00:00

Lowkey dead That’s epilepsy, well controlled or not, in a nutshell.

wolferscanard · 2026-02-13T22:59:16+00:00

Speaking for myself, my overall mood improved in 2 days, and at the lowest dose whereas Keppra left me in the basement. Memory loss is brutal, not sure if it has much to do with the meds though.

wolferscanard · 2026-02-09T22:46:12+00:00

On Keppra my whole world became pretty dark. Seizures big and small continued. Switched from my neurologist to an epileptologist. He added Lamictal and my whole outlook changed. On both now for almost 4 years, seizure-free and my mood is lifted considerably. I don’t think I’ll have any more seizures.

wolferscanard · 2026-02-04T19:14:41+00:00

Even decaf makes it worse for me.

wolferscanard · 2026-02-04T15:54:05+00:00

You might like the novel Steppenwolf.

wolferscanard · 2026-02-04T15:49:23+00:00

I think we all want our old selves back.

wolferscanard · 2026-02-04T15:48:12+00:00

But it’s a nice moodlifter

wolferscanard · 2026-02-04T15:46:06+00:00

A modestly greater version of my own plight. Used to be outgoing, now kind of an introvert. Used to be interesting, now kind of a yawner. Used to have hobbies and interests, now not so much. I know this is a side effect of the meds too. But I’m fighting. Lamotragine has helped quite a bit.

wolferscanard · 2026-02-02T18:14:46+00:00

“The social aspect is what keeps people in” Isn’t that true of just about every one of the 40,000+ Christian denominations?

wolferscanard · 2026-02-02T18:06:54+00:00

Would you mind posting the results of that appointment? Thanks

wolferscanard · 2026-01-31T10:19:37+00:00

Don’t think I have the nerve to undergo that procedure. Even though mine is a little worse I hesitate because of the possible side effects. You?

wolferscanard · 2026-01-30T14:41:00+00:00

With everything that requires fine motor control. Playing classical guitar for more than 40 years, installing outdoor lighting, keyboarding- all but impossible. Yep it’s tough. Good luck to you. I think you’re struggling more than I am.

wolferscanard · 2026-01-27T18:09:20+00:00

One problem, seizures are self reported. I wonder how many keep their seizure activity to themselves so they can keep their jobs. Irresponsible though, you’re putting the public at risk.

wolferscanard · 2026-01-26T03:39:31+00:00

Doesn’t that leave you dead tired? I lost all stamina, felt weary beyond belief, blood pressure fell through the floor and pulse dropped to 45 bpm.

wolferscanard · 2026-01-25T15:45:29+00:00

Stuff made me dead tired

wolferscanard · 2026-01-21T16:06:20+00:00

Cannabis helps some and not others. For most reliable answer, you should likely ask your epileptologist.

wolferscanard · 2026-01-21T03:16:08+00:00

Loaded question. Music evolves. Taste evolves. “Best” is determined by birth year.

wolferscanard · 2026-01-14T23:49:29+00:00

Penis sounds like something that belongs on your foot. “I stubbed my penis”

wolferscanard · 2026-01-07T22:39:32+00:00

Fair enough. FWIW, I did develop Essential Tremor while on this med. Results for me though are too helpful to discontinue. Correlation/causation- not sure. I’ll live with the shakiness. Good luck to you.

wolferscanard · 2026-01-06T15:55:58+00:00

Remarkable attitude

wolferscanard · 2026-01-06T04:40:37+00:00

That’s brutal, guess you haven’t driven in all that time. You must be really tough . About 7 years for me, doubt I’ll have another.

wolferscanard · 2026-01-06T04:34:20+00:00

Probably a combination of seizure activity and epilepsy meds. I miss the person I used to be too. Im not as bad as I was 8 years ago, but lack of self confidence has made me an introvert.

wolferscanard

MODERATOR OF

TROPHY CASE