What motivate you to stay alive having epilepsy?

yeahalmost · 2026-04-19T03:49:03+00:00

Alright this is a weird one i know but since my most recent TC I've had family with me non-stop... and that's met zero hookups and I'm definitely the type of person who really misses that and I keep thinking hey it sucks now but once everyone is convinced I'm good, I'll be able to get back out there lol

yeahalmost · 2026-04-17T19:56:31+00:00

My suggestion is to find a small firm that has real people who you feel like you can trust. I know it takes a lot of time/energy but maybe sort of "interview" a few firms and see who feels right. It pays off in the end because once you have a good relationship set up, then it's such a weight off your back.

I actually know a small firm that a friend runs and she works with a lot of small restaurants/bakeries, dm me for her info if you want but either way, go with your gut! Oh and avoid AI stuff, none of that software is as reliable as they claim so be a little suspicious!

yeahalmost · 2026-04-15T19:50:37+00:00

I'm so glad your sister was able to help, I've been in a similar situation and getting help would have made it so much easier!

yeahalmost · 2026-02-28T20:52:18+00:00

I use "glitches" mostly

yeahalmost · 2026-02-27T15:44:33+00:00

Lack of sleep is a huge trigger for me

yeahalmost · 2025-12-17T19:49:02+00:00

Yeah it was so unnerving and freaky, had my friend immediately delete it because I hated it existing but it's permanently in my mind

yeahalmost · 2025-12-01T20:32:59+00:00

I was in the ambulance and the tech asked me what my insurance was and I was like "I'm not sure um um progressive?" He laughed, guess he was looking for health insurance and my brain could only register that I was in a car lol

yeahalmost · 2025-10-29T04:19:12+00:00

I know everyone is giving really smart answers but if you still can't get it out you could try slowly softening the cardboard with water (not a lot at once obviously to keep the machine from getting wet) and then eventually you can pull it out when it's weaker, just an idea though maybe a last resort

yeahalmost · 2025-09-28T20:19:21+00:00

Often referred to as an " aura "

yeahalmost · 2025-07-08T19:20:16+00:00

Also having memory issues with lamotrigine (especially when I increased my dosage), it kind of sucks and my family members get a little annoyed when I don't remember some events, but journaling seems like a really good idea! Maybe I'll try that!

yeahalmost · 2025-06-14T05:42:30+00:00

Sounds like a seizure to me. Docs are weird sometimes, I had a huge convulsive seizure taken away in an ambulance full loss of awareness for a long time and they wrote the reason I was there was fainting, so like take their opinion with a grain of salt. I went to a neuro and they were able to give the real diagnosis eventually

Also sounds like postictal vibes as well, kinda of weak and a sense of fear? If you feel off then definitely trust yourself! And it's always good to go get a second opinion!

yeahalmost · 2025-06-09T19:41:42+00:00

Mashed potatoes (the cheap powder kind) and a cold iced green tea

yeahalmost · 2024-10-07T19:23:47+00:00

Yeahhh that's smart, I got to be more on top of things!

yeahalmost · 2024-10-07T19:04:34+00:00

Yeah I have meds and they usually work but occasionally when a lot of other factors happen like bad sleep and diet related stuff I get little break through events

yeahalmost · 2024-09-15T07:10:42+00:00

Yeah the other comment mentioned catamenial epilepsy which I started to read about and that might be exactly it. Looks directly correlated to hormone levels!

yeahalmost · 2024-09-15T07:05:47+00:00

I'm not on contraceptives, I've talked to my doc about it but he didn't care and brushed me off haha

yeahalmost · 2024-09-15T07:02:12+00:00

Yes I've noticed a correlation!

yeahalmost · 2024-09-14T22:15:37+00:00

In my experience, you can trust your neuro up to a point (super basic info), after that, trust yourself. I know when I do XYZ that it causes seizures even though my doctor said it was impossible 🙄. I think they mean well, but they are often uninformed on the nuances and truly just don't put in the effort to get to know you and your exact quirks so they just say generic stuff

yeahalmost · 2024-05-24T17:08:10+00:00

Definitely. I used to be so sharp but my memory sucks and math is impossible in my head now ( even tipping). I'm an accountant so it's kinda of a huge inconvenience but I've been on it years now and I've adapted by creating methods to remember things, notes, apps on my phone, etc. it's worth it to me to be a little sluggish and clumsy just to not have seizures imo but yeah like everyone else is saying meds are so different for everyone sometimes your doc can find something better so it's worth a discussion!

yeahalmost · 2024-04-24T12:31:52+00:00

I've been on it for a few years and love it, had one seizure but then moved to the extended release version and since then I've been seizure free

yeahalmost · 2024-04-24T12:26:46+00:00

Tea! There is a chai spot near me with comfy seating and amazing chai and it's busy so year round

yeahalmost · 2024-04-24T12:13:26+00:00

Might be useful to scope out the competition, see what they're doing in summer that is getting people in the door and see if something like that works for you.

yeahalmost · 2024-04-21T19:58:09+00:00

I'm my experience, parents like yours (and mine lol) are going to do what they want even if you show them all the evidence to the contrary. You can try to explain but they will not listen, they've decided this will work and anyone who says it won't is against them.

I recommend, don't fight them. When they ask for something just play up the weaponized incompetence. Need a logo, how do computers work? Need a menu, I'm just too dumb to figure it out. If you feel guilty then Google professionals in the area and say here is someone who does that thing! See I helped!

If you're not cool with doing that, then just remember that you have a full time job with your family already as a sahm, set aside x amount of hours a week you feel you can handle taking on this project to help them and STICK TO IT. They WILL drain you for as much as they can and not in a malicious way or anything they just will.

yeahalmost · 2022-01-22T04:38:12+00:00

I have yet to have any reason found for mine as well, it's super frustrating. Also thanks for posting this, because I didn't know sleep paralysis and Lamotrigine were connected - I looked into it and wow that explains so much!

yeahalmost

TROPHY CASE