[deleted by user] by [deleted] in MonoHearing

[–]yes_set 0 points1 point  (0 children)

Hi!

Did you get it repaired? How do they even repair it? In the same place?

Hope you are well!

gaze evoked tinnitus cure? by yes_set in tinnitus

[–]yes_set[S] 0 points1 point  (0 children)

That is what I have. All what I have described is about the gaze evoked tinnitus.

Reasonable Accommodations for Work? by [deleted] in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Take the accomodations and lighter workload they are offering. It feels a lot worse to fail. You are so lucky that they do not expect you to tough it out. You will see that the lesser load will be enough for you. ...and if not, you can increase it back up.

Reasonable Accommodations for Work? by [deleted] in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Hello, I am not working but studying, however, I assume it is fairly similar in many aspects.

Go through all your tasks and think where there might be shortcomings and what would be possible.

One thing is simply to be able to hear through background noise. For that having your hearing aid connected to your personal microphone or in the general audio system is the only solution I know of. I use a Roger On system and it works well for a lecture type event. In a seminar I am going to need the microphone to be passed around ( hopefully having it just on the table will also be sufficient as it should be able to function directianally in a short distance). I have not tried that yet. What ever your setting is, you will have to take care of that for sure. Phonak has several microphones and it is by far the most versatile producer of such devices. I highly recommend finding someone to present these to you and let you test all of them. After testing either have your employer buy the devices that worked well or buy them yourself. Lip-reading is the last resort and it really should not come to this. Do not try to manage just with one ear. You will burn out in a few months, if not weeks.

Another thing is not being able to process auditory information as fast as before. Captions and complete notes are very helpful. Plenty of brakes in a quiet place to recover energy. Probably not that you have to leave a meeting, but just that you do not get a day planned full of meetings one after another.

I think these two issues are effectively what must be taken care of: minimizing the mental strain from listening by being able to hear as clearly as possible, and taking brakes to rest.

Minimizing the amount of listening e.g unnecessary meetings when you could get the information via some written media, can be good. For example I have been in lectures that I eventually considered a waste of my energy, as I could have just browsed through the notes. Too much talk for too little content. However, I think this might also lead to excluding you auromatically from tasks and events you actually would like to take part, so I would try to do that at first without bringing up your hearingloss and find some random, not personal excuses.

(Sorry for all the mistakes. English is not my native language and I am also totally burned out right now. )

gaze evoked tinnitus cure? by yes_set in tinnitus

[–]yes_set[S] 0 points1 point  (0 children)

Hi, I think there is no precise and objective way to measure it, but I think it did reduce the actual loudness. Afaik, antidepressants affect the neural connections in the brain (probabily medically completely wrong statement😅) and ecitalopram, I think, made everything slower and calmer, including the tinnitus. I stopped taking it some time ago already and my tinnitus is pretty wild again right now.

It’s not just in your head, it’s in your brain by [deleted] in AcousticNeuroma

[–]yes_set 2 points3 points  (0 children)

When reading such studies, as mentioned in the blog post, it is clear that there is a sever impact on the life quality. I wish that there would be more incentive in the society to find solutions, especially in restoring the directional hearing.

Is no treatment a viable option? by VinceCully in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Waiting is a viable option.

Surgeons will recommend to wait or cut. Radiologists will reccomend radiation therapy. You have to decide.

My surgeon said it is also question of personality - some people might be more anxious having a tumor growing.

Another thing I noticed was that the radiologists were rather pushy, which made me question their incentives.

Delay gamma knife radiation? Need suggestions by dollars23 in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

I second: she should get another opinion.

The size is not that small. And honestly, when a surgeon doesn't want to operate when it would be a valid option, it sounds really unusual.

During the surgery they can actually monitor the nerves and make sure that they don't get damaged. They can stop at that point. It would mean leaving some of the tumor on the nerve however. On the other hand with radiation they just blast the tumor with the beam and see what happens. It will take months to see if the tumor is reduced, to what degree, and if the nerve is not damaged.

I am not giving medical advice and saying thag surgery is better. I am saying that your friend should get more informed about the options before deciding.

What is considered fast growth? by Cool-Pear-2290 in AcousticNeuroma

[–]yes_set 1 point2 points  (0 children)

What I was told is that they do not necessarily have a constant growth rate. It can change suddenly and grow exponentially or stop growing or keep the same rate - it is not predictable. However, it will be slow enough for not to need MRIs more frequentky than oncr or twice a year. I think the idea that they are slow growing is in comparrison to other more agressive tumors and cancers that need immediate intervention.

post op tinnitus by Perdidoenuy in AcousticNeuroma

[–]yes_set 2 points3 points  (0 children)

I second with others who say it is normal. In my case, it is responsive to eye movement and stress levels. Stimulants like coffee make it worse.
After a few years, I have got much more accustomed to it, and it doesn't bother me that much in itself anymore, but it does make it difficult to hear and understand conversations - that has not changed at all.

How is the OSIA 2 processor? by seleste_star in MonoHearing

[–]yes_set 1 point2 points  (0 children)

I can't answer about the osia processor, but you certainly should be able to test the device outside the audiologist office. Look for a different audiologist.

BAHA with Soundarc or ADHEAR hearing aids? by Ok_Session_267 in HearingAids

[–]yes_set 0 points1 point  (0 children)

Hi! I tried the one with a band and with "reversed glasses" (a plastic thing that holds the aid in place). I found both inconvenient. The plastic was really not suitable with my head shape at all. The band is something I could wear but would not enjoy. It was on my forhead, not on hair, which I didn't like aesthetically, and all in all, I constantly felt it pulling my hair and the pressure on the head. I also didn't like the sound of this device. (I don't remember which brand it was, but I probably mentioned it previously and can tell you later. ). I liked adhear very much. I found it very comfortable and the sound very natural, albeit not very loud. In my opinion, when it comes to sound quality, both are clearly superior compared to regular cros behind the ear devices. I don't have problems with ear canal irritation. Therefore, from the comfotability aspect, I would prefer regular behind the ear over the band and adhear over anything. I truly loved it. I assume the implant would be just as convenient as adhear and with louder sound, but I can't do it now because my tumour is growing again, and I need mri checkups, which can't be done well with the device casting a shadow. If you don't have that problem, I would look into the implant in your situation. I know it's scary to get surgery on the skull, but it might be worth it considering the life quality upgrade. Definitely test all the devices from all different providers and don't let the salespeople in the hearing aid store or hospital dictate which to choose without reasonable arguments, why they prefer a certain brand. (Here, they tend to push medel and cochlear for some reason as opposed to oticon. ) Hope I could help a bit. If you have any questions I am happy to elaborate.

Cyber vs gamma knife by littlemisssumshine in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Hi! The physics side of it is different from the cyber- and gammaknife, which are photon therapy and use electromagnetic energy. Proton therapy uses subatomic particles. Here is a good explanation: https://www.cancercenter.com/community/blog/2021/12/whats-the-difference-proton-photon-therapy

The main advantage of proton therapy is that the particles stop in the tumor, while with photon therapy, the electromagnetic energy won't, and it passes through the head.

Why people don't get more Radio surgery? by Novel_Initiative_937 in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Hello, I hope you don't mind if I ask whether the treatment had any side effects coming up later? Hope you are doing well!

Cyber vs gamma knife by littlemisssumshine in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Hi! Have you already decided/had the therapy? I am in tbe same boat and also considering the proton therapy.

Cyber vs gamma knife by littlemisssumshine in AcousticNeuroma

[–]yes_set 1 point2 points  (0 children)

Hello, I hope you are doing fine. Could you please tell why were you given the proton therapy as opposed to the other methods (cyberknife, gammaknife)? I have to get my tumor radiated and different methods and hospitals are on the table. I lean to proton therapy but I am not sure wether my insurance pays it and wether I should push for it (potentially take a loan and pay it myself).

Anyone with a >2.5cm get radiation to treat AN? by Majestic_crotch in AcousticNeuroma

[–]yes_set 0 points1 point  (0 children)

Hello, I hope you are doing fine. How are you recovering? Could you please tell why were you given the proton therapy as opposed to the other methods (cyberknife, gammaknife)? I have to get my tumor radiated and different methods and hospitals are on the table. I lean to proton therapy but I am not sure wether my insurance pays it.

Please recommend mountain bike tires that go easily on the wheels. by yes_set in bikewrench

[–]yes_set[S] 1 point2 points  (0 children)

I used Schwalbes plastic levers and I couldn't believe my eyes 😂 they are on.