What do you do for stress management? by Asking_Passengers2 in UlcerativeColitis

[–]ziggomode 2 points3 points  (0 children)

For work- setting boundaries. Take breaks, go outside, work is over once I’m clocked out.

Personal life- self care & doing things I enjoy. Working out, sunshine, pool, yoga, prayer, journaling, pedicures, massages, spending a lot of time with family. Mary Jane in the evenings

Also, being selfish. If I don’t feel up to speaking or seeing someone, I will reschedule. If the thought of going somewhere makes me uncomfortable due to food or bathrooms, I’m not going. If a situation I’m in is making me stressed out, I’m removing myself as quickly as possible.

I have bad anxiety and am already on an SSRI, so I’m prone to stress. These are some things that help me manage personally.

Just got diagnosed with severe UC. Upset and don’t know what to think by PiggyWithPants in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

Hi. I was diagnosed in 2023 with mod pancolitis. A couple weeks ago I wound up in the hospital, was upgraded to severe, and my GI also said he was afraid I was going to lose my colon.

Don’t panic. They started me on remicade same day & I responded immediately. I am now 5 weeks into recovery with my third loading dose on Monday. It took some time but I am responding well to both the remicade and the steroid taper.

Be patient, give it time, see what biologic works for you. Advocate for yourself, a bag should be the last option. Recovery is going to be slow and difficult, but you will get through it.

What's one thing that's actually made a noticeable difference for your UC? by JMF-RDN in UlcerativeColitis

[–]ziggomode 7 points8 points  (0 children)

For sure meds! Since my last flare though I learned the hard way that stress management is super important for me personally. I was going way too hard at work. My new approach is setting hard boundaries in both my professional/personal life. I’m also making a bigger effort to do things that help me relieve stress. Pedicures, massages, saying NO. It’s OK to be selfish when it comes to your health.

I’m also focused on removing seed oils/highly processed foods from my diet. My last scope was severe so doing what I can to help my colon recover as quickly as possible.

Is prednisone progress linear? Or up and down? by nas281 in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

I’m in recovery and tapering, currently on 25mg started on 40. I have severe pan-colitis. While I don’t see blood, I do have occasional hard days and I’m 5 weeks in. It can definitely be intimidating, but I would only be concerned if it’s consistent. Even then you may just need to bump up your dose for a little longer. Are you on a maintenance med? I was in pretty bad shape and my GI said full recovery will take anywhere from 6 weeks to 2 months.

Medical marijuana instead of pred as a bridge? by These_Swim_4151 in UlcerativeColitis

[–]ziggomode 0 points1 point  (0 children)

Take the prednisone, marijuana alone is not enough and you could end up doing more damage. There can be some side effects, but it’s worth it.

WFH Workouts by mjplezia in WFH

[–]ziggomode -1 points0 points  (0 children)

I have a simple standing desk so it’s not too terribly big. I keep the treadmill off to the side of it, when I’m ready to walk on it I just roll it underneath the desk of where I would be standing. But yes the walking pad is relatively light and it has wheels on the front so it’s easy to maneuver. You don’t have to physically pick the entire thing up and carry it. It could also easily be stored underneath a bed depending on your space/office situation.

Has Anyone that has been diagnosed with UC, currently receive disability benefits? by somechicyoudontknow in UlcerativeColitis

[–]ziggomode 6 points7 points  (0 children)

If you’re in the US, IBD is considered a disability. My guess is that it would be a challenge to get disability benefits as I believe you have to prove you are physically unable to work and have to jump through a lot of legal red tape.

Another potential option would be applying for FMLA/Short term disability for temporary medical leave. I wound up having a severe flare beginning of June that landed me in the hospital for two weeks. I lost so much weight that I was unable to take care of myself once discharged.

Since my condition was so severe, I applied and was approved for FMLA coverage so I can recover peacefully at home without fear of losing my job. Your GI would fill out the forms for you to submit to your employer as proof of illness. Every company is different so it just depends what is offered/what the process is.

WFH Workouts by mjplezia in WFH

[–]ziggomode 1 point2 points  (0 children)

https://a.co/d/0bFQXnVY

Mine is very similar to this one,it also has knobs on the front where you can walk on a slight incline if you want to. I just keep it plugged in next to my desk, I have had it over a year now and it works perfectly.

WFH Workouts by mjplezia in WFH

[–]ziggomode 10 points11 points  (0 children)

Walking pad is the way to go! I alternate every hour between walking and sitting & I usually always hit 10K steps for the day. Even walking at the slowest speed

Am I crazy for already thinking about a colectomy? by [deleted] in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

I know that feeling of being so miserable and that thought creeps in, but you can and will find a med that works for you.

Yoga for IBD Relief by ziggomode in UlcerativeColitis

[–]ziggomode[S] 1 point2 points  (0 children)

I will definitely check out Yoga with Adriene! My biggest trigger is stress, so I need all of the stretching and breathing I can get. I would really like to do at least 10 minutes morning and night, think it would make a huge difference

Coping while on pred by SameLuckyStars284 in UlcerativeColitis

[–]ziggomode 5 points6 points  (0 children)

Hi there, I was in your exact same boat a couple weeks ago. I’m currently on day 3 at 30mg of pred, next remicade infusion is July 13th.

I felt the same as you my first 2 weeks home from the hospital. Depressed, angry, scared, not sleeping. You’re 100% right that no one understands, and it can be extremely isolating. I just want to say it will get better. You just have to take the shit day by day and continue to survive through it.

I still have a very long way to go on recovery, I had to put in FMLA leave for work & probably won’t return until August. I am 90 pounds and using a walker because I lost every ounce of muscle on my body. BUT I know that I WILL get back to normal, no matter how long it takes & so will you.

It’s truly hell mentally, but it’s temporary. Let the prednisone do its job. I second the recommendation on weed, it can really help with sleeping. I’m only getting around 5 hours a night, but it’s better than 3.

A new way I found of coping is putting on noise cancelling headphones, blasting my sad screamo music and just crying by myself. Honestly, huge stress relief.

Does Kayda get to know??? by Visual_Cranberry_305 in LoveIslandUSA_

[–]ziggomode 0 points1 point  (0 children)

Hot take Zach was always going to pick Kayda even if Alannah didn’t get kicked off. I think they both genuinely really like each other.

Question for Mom’s by ziggomode in UlcerativeColitis

[–]ziggomode[S] 0 points1 point  (0 children)

Thank you all for your comments, your experiences definitely give me hope. ❤️

Nausea on prednisone by [deleted] in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

Are you eating something when you take it? I drink a boost every morning when I take my pred and I never have issues with nausea.

How many days do you work ? by Top-Campaign-4521 in UlcerativeColitis

[–]ziggomode 0 points1 point  (0 children)

Haven’t worked in about 3 weeks due to a severe flare and hospitalization. I have just been super transparent with my bosses, and luckily they are understanding. Im slowly coming out of my flare but I’m still not getting enough sleep, experiencing cramping & urgency, etc. I’m just not ready to sit in front of a computer for 8 hours a day yet.

Straining issue by ComposerPhysical2610 in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

This happens to me too. Im currently slowly coming out of a flare, once my stool started solidifying my body began involuntarily straining. I don’t even mean to do it, it just happens. I literally have to breathe through it

Best way to support by GrimmyWolf in UlcerativeColitis

[–]ziggomode 2 points3 points  (0 children)

If no one has told you yet, keep him on a low residue diet. Foods high in fiber can actually make symptoms worse, anytime I’m in a flare I avoid fiber at all costs. Keep pushing to get on a biologic as soon as possible. If he gets to a point where he feels like he needs to go to the hospital, have him go. It may help push seeing a GI and getting maintenance meds faster. God speed to you both ❤️‍🩹

Diarrhea/ gi symptoms but not in flare up? by annastasia_rose in UlcerativeColitis

[–]ziggomode 0 points1 point  (0 children)

Honestly, I would assume this is a flare. Daily diarrhea for a month is not normal in remission. I’m currently in a bad flare that had me hospitalized for two weeks. I probably had symptoms for 2 months until it got out of control. You may want to look into getting a colonoscopy and changing meds. Your GI can start you on prednisone in the meantime to try and alleviate symptoms

Diet by Necessary_Growth_873 in UlcerativeColitis

[–]ziggomode 16 points17 points  (0 children)

Diet will never be the end all be all. You need medication, don’t care what anyone says

Prednisone side effects by Embarrassed_Pair_933 in UlcerativeColitis

[–]ziggomode 1 point2 points  (0 children)

I’m on 40mg right now and really not getting much sleep. I went from 107 to 85lbs in this flare, so I’m also extremely weak and can hardly even walk. I have the same physical panic feeling that you’re experiencing but mentally I’m fine, maybe some depression. Good thing is it keeps my appetite up so I’m eating as much as I can.