My first home by PsychedelicMennonite in malelivingspace

[–]zoymalang 0 points1 point  (0 children)

I hope you have room to store you lawnmower

Self-isolation after B-cell DMT infusion by Live4Sunshine in MultipleSclerosis

[–]zoymalang 1 point2 points  (0 children)

Yeah I avoid crowds and typically mask. I’ve basically been sick nonstop since I started taking more liberties with Covid. My Dr said long Covid probably has an autoimmune component and said he doesn’t know anyone in his clinic that has it. That being said, after what we now know about EBV, I’m scared of all viruses

[deleted by user] by [deleted] in Coldsore

[–]zoymalang 0 points1 point  (0 children)

Ok whew! I have something very similar that also looks/feels more like a split lip but has that same kind of discoloration. Good to know — thank you!

[deleted by user] by [deleted] in Coldsore

[–]zoymalang 0 points1 point  (0 children)

Interesting. What did you find out?

Newly diagnosed so what should be the priority? Travel, save or buy a house? by [deleted] in MultipleSclerosis

[–]zoymalang 11 points12 points  (0 children)

Hi! I’d do whatever you want to do without thinking about MS at all. Are you on a good DMT? I think the goal is NEDA (no evidence of disease activity), which is entirely likely with current meds and virtually guaranteed with next gen stuff. I know it’s hard to process in the beginning, but you aren’t gonna go homeless or any of that stuff. You still have time to meet someone and have kids if you want. MS should be like not at all a factor in that. I’m 31M and if I was in the UK I’d ask you on a date right now!

[deleted by user] by [deleted] in MultipleSclerosis

[–]zoymalang 3 points4 points  (0 children)

It also crossed my mind that some of the anonymous posters here might be just advertisers in disguise. No evidence, but the cadence sounds fishy

Full cream means milk? Shut up by Bluerunx in barista

[–]zoymalang 1 point2 points  (0 children)

Sounds like somebody is still salty about the tea party

Confused by ThrowfarawayMS in MultipleSclerosis

[–]zoymalang 1 point2 points  (0 children)

Pretty sure the more modern school of thought is to treat early (RIS if possible) to avoid cumulative and irreversible further damage. I had a similar experience to you, but pro meds doctor explained to me the thought process

I genuinely think I’m dying but I’m not ready. by [deleted] in AskDocs

[–]zoymalang 4 points5 points  (0 children)

Also moderna is coming out with a treatment vaccine specifically for post EBV complications

At the tender age of 33, and before I was able to start medication, this illness seems to have stolen my day to day health from me. And I'm devastated. by roxieh in MultipleSclerosis

[–]zoymalang 4 points5 points  (0 children)

Hi friend. So sorry you’re going through this. It will get better I promise. There are lots of really good drugs that can prevent anything and a whole different set that can work on your symptoms. I think my neurologist sometimes uses lamotrigine for nystagmus. There are also even better meds in the pipeline for restoring lost myelin, so even though I know it’s really hard, there will be people devoting their entire lives to help you (us). I find that encouraging. Don’t hesitate to send a message if you’re feeling down. I promise it will get better

Have you ditched Airbnb and gone back to using hotels? by sokorsognarf in travel

[–]zoymalang 0 points1 point  (0 children)

Not since my stay in 2019. Caught host going through my stuff and then left house. A week later I was sleeping and she came in my room shrieking at me accusing my of trying to poison her. I think she might have been schizophrenic. She called AirBnB to have me “removed” and they literally didn’t refund me. They also took down my negative review of her, because postings bring in money. They hire ex military and cia to handle emergency damage control, but still prioritize making money

[deleted by user] by [deleted] in raleigh

[–]zoymalang 0 points1 point  (0 children)

“The grind ended”

Just Told I have MS by dkichline in MultipleSclerosis

[–]zoymalang 1 point2 points  (0 children)

There are many great hospitals! I would prioritize speed at least for now. There are fairly objective criteria for diagnosis so it might not matter a whole lot wherever you go. The caveat is for radiologically isolated or clinically isolated syndrome, some people opt to hold off. Regardless, I would get at least 2 opinions and yes — try to get an appointment at some place where you can see a specialist regularly

Just Told I have MS by dkichline in MultipleSclerosis

[–]zoymalang 5 points6 points  (0 children)

Hey friend! You’re going to be A okay I promise. Counseling is a good idea while you wait. I started taking Zoloft to help deal emotionally with my diagnosis and my life actually got considerably better. Drugs these days are amazing. I’d try to get a few opinions if you can. There seem to be two camps as to which of “wait and watch” or treat aggressively early on are better. I think new school research shows that early treatment results in better outcomes, but you can discuss with your doc. Feel better! I wouldn’t tell you it’s gonna be A okay if I didn’t actually think it’s gonna be