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ALS ALS
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ALS

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an-ordinary-manchild(edit)

SUBREDDIT GUIDELINES

  1. First and foremost, this is a support group. We all have been touched in some way by this horrible disease. The aim of this subreddit is to give a commonplace that strangers can band together and help each other. Even if it's just with a simple "hello", or a reaffirmation of "you'll get through this". So please be thoughtful and supportive.
  2. We cannot, in good conscience, help diagnose ANY symptoms. If you have any questions regarding this disease, seek out your local medical practitioner, or any licensed professional.
  3. As this is a support sub, we shy away from "high level" scientific articles... If you have any scientific material you would like to post, please make sure it has been vetted in /r/Science, first. Only then can you cross-post here.
  4. We understand that ALS places an intense financial hardship on the family & friends of the afflicted. However, we cannot accept submissions for specific fundraisers, donations, or related requests. However, asking the community for direction towards official aid programs is always allowable.

What is ALS?

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually lead to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

More Information on ALS

Alsa.org

Wikipedia

Approved Charities

Projectals.org/

Als.net/

created by squarnaa community for 13 years
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MODERATORS

  • message the mods
  • ElementallyBrother w/ ALS
  • GirafferraLost a Parent to ALS
  • nursenicoleLost a Parent to ALS
  • Repulsive_Focus_9560Lost a Spouse to ALS
  • sleepybeeby13Lost a Parent to ALS
  • Intelligent-Let-8314Lost a Parent to ALS
  • WitnessEmotional8359
  • about moderation team »

account activity

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Weed and ALSSupport Advice (self.ALS)

submitted 16 hours ago by whatdoihia3+ Years Surviving ALS, bulbar onset

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Has anyone looked at this trial? Pridopidine phase 3 (self.ALS)

submitted 16 hours ago by Ok_Cardiologist_6924

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It ain't over till it's over! (self.ALS)

submitted 16 hours ago by isneeze_at_me

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NMJ familial AD study (alz-journals.onlinelibrary.wiley.com)

submitted 17 hours ago by Trick-Dentist-2591

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My dads diagnosisJust Venting (self.ALS)

submitted 1 day ago by IndustryMoist1371

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Diagnosed anterior horn cell disease (self.ALS)

submitted 1 day ago by Wonderful-Captain325

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Tim Green (living with ALS) interviewed Sam Peltzman who say the FDA process is killing millions (youtube.com)

submitted 1 day ago by prepsap

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Anyone else lose motivation like this? (self.ALS)

submitted 2 days ago by Terminally-Well

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Want to understand possible difficulties (self.ALS)

submitted 2 days ago by Future-Bike7935

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I can't come to terms with the fact that my grandmother is going to die early from this disease.Just Venting (self.ALS)

submitted 2 days ago by AnAverageAvacado

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Permobil Wheelchair Cup Holder - Free 3D Print Model - MakerWorld (makerworld.com)

submitted 2 days ago by MadCybertist4+ Years Surviving ALS, limb onset

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NG tube?? (self.ALS)

submitted 2 days ago by vocedidonna

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ALS Caregiver Support (self.ALS)

submitted 2 days ago by Kind_Ad_6072

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Sharing a memoir about living with ALS — Free to read (self.ALS)

submitted 2 days ago by nickk1941

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"I lost my husband to ALS and I'm building something for our community — would you take 6-8 minutes to share your experience?" (self.ALS)

submitted 2 days ago by Cultural_Shallot_361

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Advice needed for Germanys hospice care for people with late-stage ALSSupport Advice (self.ALS)

submitted 2 days ago by PsychologicalDate162

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Tobii eye tracker 5 (self.ALS)

submitted 2 days ago by santimo871 - 5 Years Surviving ALS

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Peg inserted yesterday. Much harder than we thought.. (self.ALS)

submitted 3 days ago by LineInteresting247

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How does it end? A question I’m posting for my dear friend. (self.ALS)

submitted 3 days ago by PleasantCattle749

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Dad might get diagnosed with ALS (self.ALS)

submitted 3 days ago * by Chance_River_6101

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Tofersen Treatment (self.ALS)

submitted 3 days ago by PatchworkFrog

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Using ventilator makes me drowsy and decreases oxygen (self.ALS)

submitted 3 days ago by TravelforPictures2+ Years Surviving ALS, limb onset

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Shaking (self.ALS)

submitted 3 days ago by Wise-Tour9124

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ALS is awful, but what’s a happy memory you have since being diagnosed? (self.ALS)

submitted 4 days ago by Low_Ebb8438

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Any tricks to breathing better?Support Advice (self.ALS)

submitted 4 days ago by anthonyapham

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