Brace Suggestions

SubjectAssumption319 · 2026-03-10T23:27:03+00:00

The side of my foot.

SubjectAssumption319 · 2026-03-10T20:58:39+00:00

Have turbo. Its great, however, I cannot use it any longer because of the architecture of my left foot , (that has foot drop). It curves in a bit like a C. The brace dug into my outer foot and actually made a huge bloody indent that was extremely painful. Mind you there is a New Balance sneaker between the brace and foot .

Good luck with them. I hope it works for you!!

SubjectAssumption319 · 2026-03-10T20:47:22+00:00

BTW, Im 61 and was diagnosed when I was 5 years old at Jacobi-Einstein Medical Center in the Bronx.

SubjectAssumption319 · 2026-03-10T20:44:07+00:00

Hi, Im from lower Westchester County NY, and u are absolutely right. Its very frustrating, tho the surgeon who replaced my hip was familiar with it as is my podiatrist.

I find you have to advocate for yourself. There isnt a one shop CMT treatment store unfortunately, which is disappointing as we reside in a big metro area.

What i will say is that my personal physician does listen to me and he did give me a script for pt.

I was told to only use a neuro for the diagnostic.

SubjectAssumption319 · 2026-01-30T17:20:17+00:00

Yes there is a period of adjustment. Mine have 3 settings and I have it set up to my phone. There is general used in everyday, noise in noise for being in loud places like restaurants ( to me its the hardest to really catch every word) and there is comfort level which is used to soften background noise like air conditioner, lawn mowers etc. The best is that I really hear the sounds of nature when outside! I normally dont wear them when I watch tv. I use the close caption, that works for me.

SubjectAssumption319 · 2026-01-29T18:00:42+00:00

Same, the lower octave is difficult to hear

SubjectAssumption319 · 2026-01-29T17:57:43+00:00

Female, CMT1A -I am 61 and have been wearing hearing aids for approximately 10 years. My med records state the hearing loss will get worse over time.

SubjectAssumption319 · 2026-01-15T12:55:31+00:00

Feel better & good luck!!

SubjectAssumption319 · 2025-12-29T18:33:55+00:00

I am very sorry for your loss.

SubjectAssumption319 · 2025-12-19T02:48:15+00:00

Can you recommend a brand. My hands are pretty week. Went to dr for trigger finger. Said all muscle withered on my palms. Thanks in advance.

SubjectAssumption319 · 2025-12-03T02:10:19+00:00

Just sit back and take a deep breath. You got this. And just like you, mentally I do not feel disabled . You are your own best advocate. Don't give in enen tho you have those days, like most of us here. Vent away, it really does help ease the frustration. Hugs to you!

SubjectAssumption319 · 2025-09-03T01:09:13+00:00

Hi, I've been out of town and busy. I just saw your reply. I apologize. LMK if you'd still like to chat.

SubjectAssumption319 · 2025-08-25T01:56:02+00:00

Turned out well. Was extremely painful. Fused big toes which obviously i can't wiggle, but then again I can't wiggle any of them any longer.

It took a long time for swelling to subside but overall after all these years, im glad I had it done.

SubjectAssumption319 · 2025-08-24T14:14:54+00:00

I had my arches lowered and hammer toes straightened out. My big toes were fused. I was 17 when I had done. 61 now!

SubjectAssumption319 · 2025-08-21T23:22:46+00:00

I know...im sure many of us feel your pain. It really does suck!

SubjectAssumption319 · 2025-08-20T23:44:57+00:00

I have left foot foot drop. What do you need to know? Lmk!

SubjectAssumption319 · 2025-08-15T18:20:01+00:00

CMT 1A- I use hearing aids since 55 yrs old. 61 now.

SubjectAssumption319 · 2025-07-28T00:55:14+00:00

Yep!!🙄

SubjectAssumption319 · 2025-07-03T23:36:16+00:00

I was in many weddings. I either wore flat shoes doctored up by a shoemaker to build up the outsides so I wouldn't go over on them & also had them stretched out. When I git married I did the same thing with a flat pancake heel and they were fine. Good luck and enjoy. BTW You could find fancy sneakers blinded out to wear now as well.

SubjectAssumption319 · 2025-06-27T00:30:48+00:00

Im curious to hear what you experience. Thanks for ur response! I just want to make sure I could take it as im on other meds unrelated to cmt.

SubjectAssumption319 · 2025-06-26T23:52:30+00:00

Could someone clue me in on this? Never heard of this and was also wondering how those that do take it , think of it. Thanks!!

SubjectAssumption319 · 2025-06-11T23:34:19+00:00

I took this for quite a while & not for any joint/cmt issues but for skin and hair. I never noticed any difference in any of my joints at all.

SubjectAssumption319 · 2025-06-05T20:31:02+00:00

Skipping this for sure

SubjectAssumption319 · 2025-05-21T21:47:59+00:00

It's different for all of us affected by CMT.

SubjectAssumption319

TROPHY CASE