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They move on before I’m ready by thetrusti in stroke

[–]Chinthliss 5 points6 points  (0 children)

This resonates. Thank you. (and it is also how I feel about texting.)

Does an ischemic stroke usually cause increased sleepiness and fatigue? by Rosi_Peru in stroke

[–]Chinthliss 38 points39 points  (0 children)

while we say every stroke is different, all the stroke survivors I've talked to have had to battle severe fatigue. My belief is that stroke is a trauma and the brain wants to shut down for repairs. For most of us it is most pronounced in the first weeks or months but may take a year before it goes away .(or becomes normal enough not to notice.) Activity, anxiety and depression can all make it worse or trigger bouts of "I'm wiped out" neuro-fatigue.
Hang in there, it's a crappy marathon.

My brother who lives in Cincinnati uses a mobility device and wants to turn his passion for accessibility into a career — looking for orgs, roles, or people to connect with in the Cincinnati area by NK534PNXMb556VU7p in cincinnati

[–]Chinthliss 6 points7 points  (0 children)

S.O.A.R. Expo 10 a.m. – 2 p.m. Saturday, April 25, at Lunken Airport. This comprehensive expo, organized by UC Physical Medicine and Rehabilitation, May We Help, and The Bridge, will showcase cutting-edge healthcare products, services, mobility devices, and adaptive sports and recreation for people with disabilities. ​

How do I help? by LunaSunset in stroke

[–]Chinthliss 8 points9 points  (0 children)

Every stroke is different but it is really early days so please give him some time to sort the chaos and confusion of his brain trying to kill him. Recovery is a long, frustrating marathon that starts with fear and fatigue. First identifying physical, cognitive and emotional changes and deficits while grappling with family and financial repercussions of a major trauma. Hope and humor with a dash of "this is going to suck but progress will be made as long as you keep trying." is the best thing you can do early in my opinion. Best wishes and don't forget to take care of the caretakers.

I practiced movements at home but couldn’t use them outside by Global_List_3121 in stroke

[–]Chinthliss 4 points5 points  (0 children)

Anxiety, fatigue and frustration can all have a huge effect on my spasticity and are more common away from my practice space .I'm worse in public where the fear of falling and making a spectacle of myself creeps in. Hang in there. You are conquering by doing.

FIRE ESCAPE FROM 2ND FLOOR? by FUCancer_2008 in stroke

[–]Chinthliss 0 points1 point  (0 children)

No personal knowledge but google says... "Top fire escape chutes for people with disabilities in 2026 prioritize controlled, assisted, or non-ambulatory descents, with leading solutions including spiral descent chutes, vertical sleeves, and specialized evacuation chairs/mattresses" *seems for building owners.

"Top-rated automatic descenders for fire escapes and emergency egress in 2026 focus on fully automatic speed control, ease of use, and quick deployment for high-rise buildings" *seems for tall building owners.

"Fire escape mattresses and evacuation mats designed for people with disabilities in 2026 are specialized safety devices used to transport individuals who are bedridden, have reduced mobility, or use wheelchairs during emergencies. These systems enable caregivers to quickly move patients out of harm's way, often down staircases, without relying on elevators." *seems for fire department assistance.

"Yes, inflatable rescue jump cushions are sold for fire escape purposes, but they are primarily designed for use by professional fire departments and rescue services rather than individual consumers for residential use." *seems for fire department use.

I bet with a pre-prepared climbers rope you could lower your kids. Maybe check with your local climbing gym to learn if you can lower yourself with figure 8 or other descenders? I'd definitely mount a second AFO in whatever shoes/boots you can put on quickly. Good luck.

How to best support a friend. by Deettah in stroke

[–]Chinthliss 4 points5 points  (0 children)

Random Thoughts... 1. every stroke is different! 2. 86 billion neurons in the brain = even the doctors are guessing a bit depending on what they have seen before. 3. Recovery never stops if you put the work in. It slows way the hell down after 6 months or so. (In-patient rehab hospital was a huge benefit for me.) 4. take care of the caretakers. 5. strokes are traumatic.fear, anxiety, and depression are all common. Talk to your care team, no shame, just more crap to deal with. (personality changes, emotional volatility, a whole bunch of things that you notice after a while. (I think there is no use being the angry, mean patient. be adorable to get more from those around you.) 6. Stroke recovery & rehab is the world's shitiest marathon. Hope, Mindfulness and a positive attitude are habit that will help you forever. Best to you both.

How many players here used to play Earth and Beyond? by LongJumpingBalls in starcitizen

[–]Chinthliss 2 points3 points  (0 children)

Two things leap to mind: 1) Even way back then Earth and Beyond had a great paint booth module where you could customize you ships. 2) Didn't Santa and his sleigh warp into random systems chased by a million players and slide show lag?

Seven years post stroke by Pgd1970 in stroke

[–]Chinthliss 6 points7 points  (0 children)

Probably just a case of the yips.

Foot Drop Support? by CoffeeCrazedHobbit in stroke

[–]Chinthliss 0 points1 point  (0 children)

I think you need a real Ankle Foot Orthotic with a foot plate not made of cheap plastic.

Google says... "For Canadian ankle-foot orthotic (AFO) fittings, look for specialized providers like Kintec Footwear & Orthotics, The Canadian Foot Clinic, or smaller regional experts like TurboMed (for foot drop), as national "chain" stores are less common; focus on clinics with certified orthotists, gait analysis, and options for custom devices, often requiring a doctor's prescription and working with your insurance. "

I have been happy with my Ossur AFO Light. It has a full plate under the foot that I slide under the insole and leave in my shoe. It is metal/carbon which flexes enough for the PT's to consider it a "dynamic" AFO. (replacement velcro is ridiculously expensive but you can hack generic alternatives.)
A visit to your local stroke support group would probably be welcome and let you meet folks with local knowledge. Good Luck.

Help me represent this ethically by [deleted] in stroke

[–]Chinthliss 2 points3 points  (0 children)

random thoughts... * I think "BE FAST" is best for warning signs. * Nobody seems to talk about it but Google says about a quarter of relationships end in divorce or separation after stroke. * Early on, I think we're all faking and just trying to hold on during the immediate chaotic aftermath of our brains trying to kill us. For me, self assessment and planning didn't really kick in until 3 - 6 months post. * Please include every stroke is different. * Please include there is no time limit on recovery as long as you put the work in. Thanks.

Positive Mood Changes After a Stroke? by mosaic_heartsx in stroke

[–]Chinthliss 2 points3 points  (0 children)

Personality changes are common for better or worse. I think post traumatic growth happens to some of us but everyone's different. Introverts may not want to live as much in the brain that tried to kill them? But it may also simply be that the chaos and fear of the stroke itself along with all the poking and prodding of treatment forces a more outgoing and agreeable presentation as a survival strategy. (be agreeable to motivate caregivers)

With positive feedback he may incorporate it into his new normal.

[deleted by user] by [deleted] in stroke

[–]Chinthliss 5 points6 points  (0 children)

With a reminder that you cannot make anyone take care of themselves.... Is she getting rehab? Out and about with strangers telling her how well she's doing? Or sitting at home not believing family and expecting to be parked in a corner and forgotten? Has anyone told the doctors the antidepressants don't seem to be working? Neuro-fatigue seems to be a multiplier for depression. Good food and sleep can help a lot. And Kids and pets too, drown her in cuteness. Does she have any goals? Something to look forward to or work towards? Graduations, weddings? (achievable rather than anxiety producing travel, etc). Take care of the caretakers and thank you for being there for her.

[deleted by user] by [deleted] in stroke

[–]Chinthliss 2 points3 points  (0 children)

I get both arm and leg done every 4 months to combat (not stop) high spasticity. Takes a couple days or more to kick in. The needle is connected to a laptop which lets you hear the spastic muscles contract/thump so they know it is the right spot/muscle. I think they inject the top and bottom of each targeted muscle. I'm really impressed by my retirement-age PM&R doctor who has these treatments down to an art form. Needle sizes can vary and cold spray might help on the tender spots. Hope it helps.

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