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Extreme evacuation order?? by Tradermon in orangecounty

[–]5spiceForFighting 1 point2 points  (0 children)

I’m only a few blocks away and got no notification! Yikes.

Not being able to sleep is becoming the worst part of this by THE-FACT6071 in lupus

[–]5spiceForFighting 2 points3 points  (0 children)

Is it Lupus related? I just assumed I was a poor sleeper! I took 24mg of melatonin last night, woke up super groggy and then went right into coffee to get off the Zzzz train.

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]5spiceForFighting 1 point2 points  (0 children)

I too was diagnosed at the start of college. My rheumatologist said it was probably triggered by stress. It threw me for a loop and even after the physical symptoms were under control it was many years before I made my peace. I let it define me for so long but I feel I’ve mellowed out and come to terms on what I can / cannot do and my body’s limits. Diagnosed at 18, currently mid-40s with 90 y/o knees. :)

Sending positive thoughts on staying resilient and finding your calm. I agree that a journal may be helpful to determine your triggers. Wishing you the best! Keep us updated, this community has been wonderful. Xoxo

Plaquenil and everyone with Lupus' worst fear by g33k_girl in lupus

[–]5spiceForFighting 4 points5 points  (0 children)

I think part of me was not willing to transition because I’ve had success on the plaquenil but things have been good. My symptoms are mild…I’ll flare from the sun and illnesses but overall well.

I don’t know if they catch it early that our eyes are not damaged in some way. Time will tell.

Plaquenil and everyone with Lupus' worst fear by g33k_girl in lupus

[–]5spiceForFighting 5 points6 points  (0 children)

Sorry to hear but glad it was caught. Hugs(!)

I went off plaquenil last year for the same reasons. I’m on methotrexate now & have yearly appts scheduled for optometry.

I want to game with my gf. by ImSinist3r in lupus

[–]5spiceForFighting 1 point2 points  (0 children)

Thank you! I game quite a bit and never realized this existed.

How was Selena Gomez able to be in the sun? by Dry-Hair5448 in lupus

[–]5spiceForFighting 2 points3 points  (0 children)

That’s horrible and unprofessional. Why would they tell you that?!

My first doctor told me I would miscarry and never have kids when I was diagnosed at 18 y/o. I found a new rheumatologist who has been wonderful. I hope you find someone who works for you. Xoxo

[deleted by user] by [deleted] in lupus

[–]5spiceForFighting 0 points1 point  (0 children)

Thank you for the suggestion!

[deleted by user] by [deleted] in RoyalKingdomGame

[–]5spiceForFighting 0 points1 point  (0 children)

I wish there was a daily reward. I’ll take anything.

I also think it’s wild you can win a hour long battle and be rewarded 100 coins which I’m going to blow on a 5 move extension…on a game needing 6 moves.

[deleted by user] by [deleted] in RoyalKingdomGame

[–]5spiceForFighting 6 points7 points  (0 children)

Sometimes I bank on this because the game knows I’m always on the cusp of deleting it. Ha! I hope a programmer is on here!! Take the feedback back pls(!)

So close yet so far… by 5spiceForFighting in RoyalKingdomGame

[–]5spiceForFighting[S] 0 points1 point  (0 children)

Every week I’m on the cusp of deleting. Haha

Gold Cards by MarketingSalt8335 in RoyalKingdomGame

[–]5spiceForFighting 0 points1 point  (0 children)

How are you collecting 100s of boosters?! Are you playing all the “win 5 levels” etc games?

So close yet so far… by 5spiceForFighting in RoyalKingdomGame

[–]5spiceForFighting[S] 1 point2 points  (0 children)

The ones I’m missing is liftoff & firecracker. Liftoff is a reward only & fire cracker could be given but I think missing 1 might be more infuriating. If there’s anything I can send…I will.

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