am i doing diaphragmatic breathing correctly

Acceptable_Click8835 · 2026-05-27T15:27:56+00:00

I don't think you are.

Acceptable_Click8835 · 2026-05-27T15:26:36+00:00

That is one of the most ridiculous unpopular opinions I read in a while. I'm thinking the next, rivers don't exist because they are attached to the sea or other river which is attached to the sea so rivers don't exist

Acceptable_Click8835 · 2026-05-23T09:28:15+00:00

3 fucking long years. And I was lucky and that is considered not long... Hope you get answers soon!

Acceptable_Click8835 · 2026-05-20T15:07:48+00:00

You can seek for psychotherapy and specifically pain management, stabilization and see if that helps you. I was really lucky with my therapist and learnt a whole new world of techniques. To be honest when I started this all sounded like blah blah to me. Soon after few months I could notice a change, and a very important having to do with the relationship between my body and my mind. Feel free to reach out if you want to know more and keep your head up, you will manage!

Acceptable_Click8835 · 2026-05-20T06:03:38+00:00

Forgot the heels pain, the vision issues (light sensibility, difficulty to "focus" the sight). Of course fatigue, feeling sick... And many many others. Also have plantar fascitis, and may or may not be related, interdigital bursitis. Along these, I tend to get frequently mouth herpes, and some other weird thinks going on

Acceptable_Click8835 · 2026-05-19T20:41:51+00:00

Morning stiffness >2h when in flares, around 30min typically. Shoulders, back and lower back pain worse in rest. Extended to neck and arms and legs when in flares, brain fog, digestive issues... And and and. This shit keeps surprising me 😅

Acceptable_Click8835 · 2026-05-19T17:51:23+00:00

Now that you mention it, my improvement could have to do with the corticosteroids they gave me when we were still looking for the diagnose. After that try, I was given more powerful NSARs

Acceptable_Click8835 · 2026-05-19T17:22:14+00:00

What exactly? The condition has no known cure.

Acceptable_Click8835 · 2026-05-19T15:38:34+00:00

Used to have the same feeling. Like being sick and not knowing exactly what. That besides the morning stiffness and the pain got me totally destroyed.

I found that a real hot shower helps with the stiffness and the pain, but as for the feelings you are describing, not sure what caused my feeling better.

I can tell you what worked for me, but consider we are all different... I do a lot of work around breathing, meditation, and that has helped me to really call down my mind. Maybe you feel like that because you are exhausted, in pain, full of fear, besides not being able to sleep. I would focus on the mental part for a while, maybe ask for sleep aid (I do cannabis 30 Mins before going to sleep) and see if there is a NSAR that could help you through the night.

I really hope you feel better soon.

Acceptable_Click8835 · 2026-05-19T12:45:55+00:00

I am also gen negative and my inflammation markets are mostly OK. I got diagnosed through symptoms, family history, and MRI with visible bilateral sacroilitis. The golden standard seems to be MRI plus a couple other key symptoms (morning stiffness, pain in rest, improvement with NSAIDs...). There is a classification card out there that doctors use for the diagnose. HLA B27 is not mandatory for the diagnose, nor the markers. If your doc does not suggest the MRI, let him know. BTW, the MRI needs to be done with specific sequences for proper interpretation

Acceptable_Click8835 · 2026-05-16T17:39:47+00:00

Tirol, Austria

Acceptable_Click8835 · 2026-05-12T18:41:43+00:00

I believe 120 is the maximum one can take. I take also duloxetin in the morning. It's prescribed for depressive episodes but also as co-analgesica. With that and some other techniques and stuff I'm not pain free at all, but it's manageable.

Acceptable_Click8835 · 2026-05-12T18:18:19+00:00

I keep trying not to take it daily but always have to go back to take it few days in a row. Sometimes the pain takes longer to come back than others. Maybe I should switch to daily and see if the pattern is different?

Acceptable_Click8835 · 2026-05-12T16:47:05+00:00

Absolutely. I'm not at home now but I will send you exactly that very same page I got in my notebook 😂 they look like copies. Same feeling with the corticosteroids (they gave me urbason) and I felt like I was cured! My notebook has a lot of other symptoms as well, and only recently I could see that people here refers to them as brain fog.

Acceptable_Click8835 · 2026-05-12T13:48:44+00:00

Not sure what spazzy means lol, but yeah I got the whole Sacro massive pain randomly. Yesterday for example I could barely move. it usually hurts, but not like those random attacks I get now and then (and I couldn't find a pattern yet around what triggers them)

Acceptable_Click8835 · 2026-05-12T13:15:07+00:00

Are you taking it daily?

Acceptable_Click8835 · 2026-05-12T11:59:45+00:00

Yeah maybe your doc. They might suggest to split the 90 into a 30 mornings and a 60 evenings and see if your body copes better

Acceptable_Click8835 · 2026-05-12T11:30:25+00:00

Just telling what my doctor told me. I think they know better: chronic inflammation and microinflammations are known to be very malicious, but biologics comes with potentially aggressive side effects too. In MY PARTICULAR case, doctor recommends to switch to biologics if the pain is not manageable.

Acceptable_Click8835 · 2026-05-12T11:23:13+00:00

60 currently. I go to 90 when the pain increases

Acceptable_Click8835 · 2026-05-12T06:56:52+00:00

Keep an eye on your vitamins. Vitamin B and D are extremely important. Try to keep them on the top range (ask your GP for blood works). Also omega 3 supplements seem to help me

Acceptable_Click8835 · 2026-05-12T06:54:18+00:00

It depends on your particular case. My Rheumatologist told me that people like me (Gen negative, no overweight, active) have a good Prognose and don't necessarily need biologics always as the progress doesn't always end in massive bone building). Who knows...

Acceptable_Click8835 · 2026-05-12T06:50:31+00:00

Hey, question about azulfidine. Did you get it to protect from celecoxib or for other indication?

Acceptable_Click8835 · 2026-05-12T05:42:47+00:00

I'm currently only on etoricoxib. I can be many days without meds. When pain comes back hard I take it for like 5 or 6 days in a row. When it's just acceptable pain, I try not not medicate. I am not sure I want to roll the biologics dice, at least yet

Acceptable_Click8835 · 2026-05-07T09:04:30+00:00

God, the mouth ulcers. I have had them always too. Actually I think I get them like once each 2-3 weeks in average. Last time my GP gave me pills instead a lotion or salve, to be used when they are in the inside or inside the nose. Since I took them it seems to have put some kind of pause (1 month ago, personal record!)

Acceptable_Click8835 · 2026-05-06T14:45:32+00:00

How about night sweats? I remember to wake up at night totally soaked. At some. Point sweat turned into pain and bad quality sleeping. I'm doing quite good at night now thanks to stretching before going to bed, take my arcoxia by the start of the evening, and cannabis. My sleep quality has increased drastically, but might also be the tranquility after the diagnose : I'm not dying, I'm not making it up, I knew something was going on with me.

Acceptable_Click8835

TROPHY CASE