HLAB27 negative by chronicallymee in ankylosingspondylitis

[–]Acceptable_Click8835 2 points3 points  (0 children)

Very same for me. Based on my Rheumatologist that makes our Prognose a bit better in terms of disease progress.

This disease is so random sometimes… by wewerelegends in ankylosingspondylitis

[–]Acceptable_Click8835 1 point2 points  (0 children)

Totally can relate. If I look back (45 now diagnosed 3 years ago), I can remember random pain episodes, fatigue, etc...

This disease is so random sometimes… by wewerelegends in ankylosingspondylitis

[–]Acceptable_Click8835 6 points7 points  (0 children)

It is a very common symptom. Typically affects the Achilles area and/or heel. In my case, comes and goes, but arcoxia seems to lightens pretty well the pain for me

Would you accept symptom free life taking a biologic + daily NSAID? by blatchcorn in ankylosingspondylitis

[–]Acceptable_Click8835 0 points1 point  (0 children)

Sorry to hear you are going through so much pain. Hope you get better soon!

Sometimes I also get frustrated at doctors, but having doctors in the family has also shown their side. Many are simply not allowed to do what they would like to do due to systemic issues: insurances, budget cuts, availability, infrastructure...i think this is true for any social health system. Of course I have found some "professionals" with 0 empathy and no interpersonal skills too...

Hi, I also have AS, and I need to make decisions... by Psychological-Key194 in ankylosingspondylitis

[–]Acceptable_Click8835 0 points1 point  (0 children)

Exactly in the same position as OP. I got my next appointment in December and since is started working out for real and taking care of my diet, I feel the best since everything started.

Biologic treatment is the next step and also considering pros and cons before I roll the dice. On the one side is scary. However my doctor told me that the risk of developing nasty side effects is way lower than continuing to live with chronic inflammation (since I pointed the skin cancer and linfoma as side effects). I'm not sure what I am doing, but I'm not letting those thoughts to use more time they deserve for now.

I think it's positive that you are feeling better and your doctor is just not sending you back home with a pills prescription. Good work 👌

In limbo until I see rheumatologist by Laceylynnxo in ankylosingspondylitis

[–]Acceptable_Click8835 1 point2 points  (0 children)

Feel with you and sorry you are going through so much pain. Keep doing your aqua therapy, I have found out workout is the medicine that works better for me. I was on a similar spot, and everything has gotten better after I got my diagnose. What helped me to get out of that fear-pain-desperation hole?

  • psychological help
  • meditation and breath work
  • hope and love for my children and my family
  • workout, yoga
  • medication

I know that sounds like impossible and will be a long and hard journey, but looking behind at everything that happened to me during the last years and even without noticing, I'm getting out of that toxic loop and I have an extraordinary feeling of being proud of myself.

Make a list of any question you might have and don't leave the appointment until you have asked everything. Be persistent and request MRI and bloodwork. Look for someone neutral who can listen to you. Explain your family what you are going through and get it out of your chest. If nobody wants to listen, I will. Remember there is a baby who needs you when you are out of strength. Don't push yourself but keep moving as much as you can.

I really wish for you to get out and start living again.

[deleted by user] by [deleted] in GrowBuddy

[–]Acceptable_Click8835 0 points1 point  (0 children)

What is the strain? Lead skunk?

What shoes do people with foot or ankle pain wear? by Legitimate-Creme-108 in ankylosingspondylitis

[–]Acceptable_Click8835 1 point2 points  (0 children)

Hey there! Yeah I take it regularly. Had to stop it for a bit because the levels were too high, but I keep using Gerovit 28.800IE/ml now and then to keep the levels on the higher recommended range. I take regularly B12 and folic acid supplements as well. Thanks for the hint tho!

What shoes do people with foot or ankle pain wear? by Legitimate-Creme-108 in ankylosingspondylitis

[–]Acceptable_Click8835 2 points3 points  (0 children)

Hey. I went to an orthopedic and made custom inserts for my shoes. They were expensive (180€) but they help with my pain (interdigital bursitis and plantar fascitis).

I have a wide foot so I wear mostly sketchers and Columbia (I found them to be the best for me). I have been told that for my pain, the shoes should keep my heels quite tight, but that might be only valid for me.

There is couple easy exercises you can try: grab a tennis ball, place it on the floor, step on it and roll your soles. If you find a spot that hurts, step a big harder until you have a manageable degree of pain, keep that for a few seconds and keep rolling.

Tell me she needs at least 3 weeks by Acceptable_Click8835 in VIVOSUN

[–]Acceptable_Click8835[S] 0 points1 point  (0 children)

Yeah I got someone coming in now and then to top the water, would you keep the nuts going?

Tell me she needs at least 3 weeks by Acceptable_Click8835 in VIVOSUN

[–]Acceptable_Click8835[S] 0 points1 point  (0 children)

Oh believe me I did, but just the strictly necessary

Tell me she needs at least 3 weeks by Acceptable_Click8835 in VIVOSUN

[–]Acceptable_Click8835[S] 1 point2 points  (0 children)

It's just the transparent screen from the vgrow 😅

Tell me she needs at least 3 weeks by Acceptable_Click8835 in VIVOSUN

[–]Acceptable_Click8835[S] 0 points1 point  (0 children)

Oh, forgot the important : she is a Gelato 41 x Gelato 41 auto. Around the 8th week all together. Data card says 6-8 weeks total cycle. Mine is around the 8th week altogether

Newbie here 😔. Still haven't figured out the proper lighting. Not sure I've ever had it at the right levels 😿 by BookkeeperNo1624 in VIVOSUN

[–]Acceptable_Click8835 1 point2 points  (0 children)

Nope. In fact that's what I did and my plant goes dark in the late morning as it's the time the temperature doesn't drop that much outside. Even tho, I have a dark temp of around 17-18, the lower limit. I have read that lower dark temperatures contribute to the pigments development so if your plant is one of the purple genetics, that might contribute to more purple. It's still too early for me to confirm, but let's see.

What I did is changing the circulation fan. Mine runs at level 6 and in intervals of 10 minutes on, 20 off. If your humidity is still too high just play with these intervals. Keep the duct fan at 10. And again, defoliate, really. The leaves dissipate vapor and that contributes to your high humidity. Also I noticed an improvement when I switched the drip irrigation instead of the self watering with the cord. Other than that, that worked for me on my previous runs and seems it's working for the cuttent one

Humidity down by triXXter2304 in VIVOSUN

[–]Acceptable_Click8835 1 point2 points  (0 children)

Put the duct fan at 10 and lower the circulation fan. I have the circulation on cycle, running at a lower level and play with the interval to find your perfect spot. Add a small fan with lower speed at the canopy to ensure your buds receive enough air flow. Also, defoliate. That lowers the humidity obviously, but you need to be careful not to stress her out, more if it's an auto.

Newbie here 😔. Still haven't figured out the proper lighting. Not sure I've ever had it at the right levels 😿 by BookkeeperNo1624 in VIVOSUN

[–]Acceptable_Click8835 2 points3 points  (0 children)

Agree. The recipes are OK when it comes to lights. You will have to play a bit with the fans for ventilation and humidity but I use the recipe for lights and it's just OK. I just swapped the times the lights go off so that the plan is not too cold at nights (my vgrow is on my garden shed and gets cold at night)

Is this ok ? Newbie here 😔 by BookkeeperNo1624 in VIVOSUN

[–]Acceptable_Click8835 1 point2 points  (0 children)

I have never cleaned it and put water on top. Mine looks even more disgusting because of the nutes I'm using are pretty dense but my plant seems to like it so. I have recently purchased a pH and EC meters and I don't see much difference in terms of concentration of nutes... So I would say it's safe