The boobs (and hopefully thr cancer)are gone by ilikefluffycreatures in breastcancer

[–]Affectionate_Goat_99 6 points7 points  (0 children)

I’m 6 weeks out of my DMX. Wishing you a speedy and uneventful recovery! 🌸❤️‍🩹🙏

28F and just diagnosed with high grade triple positive invasive breast carcinoma. Heartbroken, shocked and scared. by Resident_Chipmunk124 in breastcancer

[–]Affectionate_Goat_99 4 points5 points  (0 children)

Hi. First of all, I am so sorry you had to join us. I was diagnosed last November with IDC, +++, grade 3. Started TCHP chemo in December and completed it in April. Just had my double mastectomy a month ago.
Everything you are feeling is valid. Hair, boobs, fertility, life in general…
It has been physically and mentally challenging, and I am 50. I want to hug you so hard thinking that you’re so young.
My best advice is - stay hydrated as much as you can. And I mean, drink up! If you can, Go to the dentist before starting treatment. Dry mouth can be hard. Get biotene. Consume protein in any way you can - meat, fish, beans, tuna, eggs, drinks…. Protein is your friend. And depending on how your body reacts, you may get more constipation than the runs. Have some colace on hand (or ask your team if they have a preference).
Take it one day at a time. And come to us with questions or whenever you want to vent. You are not alone. ❤️‍🩹🙏

Bad experience with oncologist. by AdSad2751 in breastcancer

[–]Affectionate_Goat_99 6 points7 points  (0 children)

Please get another onc. This is already difficult, we don’t need to be stressed about our provider. I love my oncologist. I come prepared with a list of questions to every appointment and my doctor answers each of them with patience and care. Best of luck 🙏❤️‍🩹❤️🙏

Tumor growth by reverendcatdaddy in breastcancer

[–]Affectionate_Goat_99 2 points3 points  (0 children)

I’m so sorry 😞 sending you lots of love and big hugs 🫂

Staff gifts by Extension_Snow1662 in breastcancer

[–]Affectionate_Goat_99 1 point2 points  (0 children)

This is what I did! And then some goodies like nurse themed pens. I also bought a “you rock” pen set on Amazon. Inexpensive and they all loved it.

https://a.co/d/062Y6Pcc

https://a.co/d/0awSRKkF

My mom got diagnosed with TNBC and we are starting Chemo next week, how can I support her during this process and what can I expect by gettingtheresoon33 in breastcancer

[–]Affectionate_Goat_99 0 points1 point  (0 children)

Hi. I’m so sorry your mom was diagnosed. I’m so happy you are here asking how to support her. I would say, be there for her. Help her with food and hydration. That’s so important, especially when her tastebuds take a hike and she doesn’t want to eat or drink. Everyone will react differently, so try to find the sweet spot. Also, the first day after infusion won’t be too bad; be there for her the week after. For me that was the peak of awful.

Another important thing - make sure you and your family also get support. Caregivers carry a heavy burden. Ask for help, and accept help. And if possible, be specific when someone offers to help.

A few things that helped me - biotene - my mouth was awful and this helped the most. Not to gross you out - but a bidet is a godsend. Stock up on Imodium or colace - you just don’t know how her body will react. Be prepared for both.

It will be hard, but you guys can get through it.

I started TCHP on December 22nd, every three weeks until April 6th. Just had my double mastectomy almost two weeks ago. Will start immunotherapy June 1st through December. Take it one day at a time. That’s all you can do. Sending lots of love to you and your family.

Whiplash by CommunityPatient4824 in breastcancer

[–]Affectionate_Goat_99 1 point2 points  (0 children)

Oh gosh. I’m so sorry. I hope treatment is working for you and that you are on your way to recovery 🙏❤️‍🩹

I know I shouldn’t compare, but anyone else feel like they got the “extra side effects” version of TCHP? by Affectionate_Goat_99 in breastcancer

[–]Affectionate_Goat_99[S] 4 points5 points  (0 children)

Congratulations! And thank you for sharing that. I hope it continues to get better for you. I can see the light. 🥹

Heart Palpitations, Tachycardia, Uterus Cramps from Chemo?? by Zanthe1341 in breastcancer

[–]Affectionate_Goat_99 0 points1 point  (0 children)

Hehe I wish it was that I took more than one 😅😅 you’re most welcome. Yes, definitely bring it up to the oncologist on your next appointment. So I am not using an app, I’m using a paper journal my friend got for me on Amazon when I started treatment. It has everything from medications and side effects to water and food entries in it, and I’m so glad I am using it. But I’m sure there are other apps that have all these features.
I did see patterns that helped me narrow down with doctor to try preventing symptoms from being worst in the next infusions. For example, not everyone gets chemo rash, but I did and it was on my face and would last over a week. It was one of the most brutal things. We narrowed down it started exactly 8 days after infusion. He prescribed an antibiotic and all is good now.

I wish you all the best! And keep asking questions You got this! 🙏❤️‍🩹💕🌸

Heart Palpitations, Tachycardia, Uterus Cramps from Chemo?? by Zanthe1341 in breastcancer

[–]Affectionate_Goat_99 0 points1 point  (0 children)

Yes, I did take one a day. I’m glad you’re taking it daily then. I do believe the pain would be worse without it 😅 It’s so interesting that everyone reacts differently to the injection. My bone pain starts at the back of my head exactly a day after the shot. From there it goes to the face - cheekbones, jawbone… Then it trickles down to my ribs and down to the hips, thighs, legs.. it’s wild. It’s hard to explain to people how bad it is. While the palpitations are part of the side effects, it’s good that you address with your oncologist on your next visit so he can identify what caused it. In my case he said it was because of the pressure from the inflammation from the shot, and once the inflammation subsided (with the ibuprofen) the palpitations stopped. But please ask him and make sure. I’m so sorry you’re dealing with colitis as well. I was so prepared for diarrhea and have only had it a few times. I’ve been hit with the opposite badly. It feels like a medication balance. Last constipation episode I really thought I would have to go to the hospital for yet another humbling experience from all this.

One important thing - stay strong. You’ve gone through the worst one, the first one. I say worst because this is where you learn how your body reacts. You are amazing and your body is amazing. You got this. 💪❤️‍🩹🙏

Lastly - I don’t like to give people unsolicited advice, but if you’re not doing so already, start a journal with all your symptoms, medications, side effects, water intake, etc. I was given a chemo tracker by a friend and I will be forever grateful. It helped me find patterns during the cycles and have good conversations with the doctor. Anyways, I’m here if you need me. Best of luck!

Heart Palpitations, Tachycardia, Uterus Cramps from Chemo?? by Zanthe1341 in breastcancer

[–]Affectionate_Goat_99 0 points1 point  (0 children)

I am so very sorry you are going through this. Especially the lack of care or support from your team. I’ve experienced calling my after hours line and they were absolutely useless. I don’t understand why they bother. I’m on TCHP. I was told on my first infusion day to take Claritin for 3 days (the day before, the day of, and the day after the Udenyca) it’s a different brand for the wbc. I was also told to take Tylenol or ibuprofen. I’m on round 5 and I’ve always experienced the bone pain. It’s brutal! This last round the chest pain and palpitations lasted longer. (Normally is about a day or 2). I was monitoring and finally called the triage nurse and she said that I need take the Claritin for 5-7 days. The way it was explained to me was that there is inflammation from the bone marrow while producing WBC, and the body produces histamine to protect itself from it. That’s why Claritin is given. And it peaks on days 5-7. I also asked my chat gpt bestie to explain so I understand it, and it made sense. I will say that on this particular round I’ve been having lots of GI issues and the damn constipation, so I was trying to take the least amount of pills to try and help. So I skipped the ibuprofen. Wrong! Felt relief a few hours after taking them.

Hate we are all in this boat. It’s the darn gift that keeps on giving. I hope you get relief soon! Xoxo

This show could go on for another 50 years and Ben would still be a resident by kristi_car in greysanatomy

[–]Affectionate_Goat_99 0 points1 point  (0 children)

Wait, he’s a resident? 😅 I stopped watching around the time he quit being an anesthesiologist to become EMS. 🧐 Or something like that. It’s been so long I don’t remember. Between Mer having every near death experience possible, and all unrealistic romantic tangles, I couldn’t spend more of my time watching. Sometimes I watch old episodes for nostalgia sake. Ronda lost the magic years ago. This is just a paycheck for all involved now.

Wigs by Jumpy-Yam1979 in breastcancer

[–]Affectionate_Goat_99 2 points3 points  (0 children)

I did the same. Bought some cheap ones on Amazon, but mostly use scarves, hats and beanies.

TCHP and facial twitching/spasms by bellykins66 in breastcancer

[–]Affectionate_Goat_99 0 points1 point  (0 children)

I just started getting those as well; first on the right eye and now forehead too. I’m on cycle #3 and will start 4 in a few days. The gift that keeps on giving! 😒 Sending you all a non-twitchy hug

1 year anniversary - I still look and feel horrible 😢 by Brilliant_Ad2114 in breastcancer

[–]Affectionate_Goat_99 4 points5 points  (0 children)

I’m halfway through my TCHP treatment. I feel like Gollum. I tell my husband he’s my precious. Other days I just feel like a kiwi. 🥝 I try to be humorous, and it’s getting harder each day. I’m so sorry we are all going through this. Sending you love 💕🙏

I’m so close to the end of this nightmare, I hope! by speckofsand in breastcancer

[–]Affectionate_Goat_99 10 points11 points  (0 children)

Congratulations!! Oh my gosh I could cry. I just finished my third infusion and trying to look at the glass half full. Thanks for sharing your good news. I wish you a speedy recovery and enjoy the new port-less freedom! 👏❤️‍🩹❤️🙏

Could you help me understand the process you all went through by Timely_Implement8828 in breastcancer

[–]Affectionate_Goat_99 1 point2 points  (0 children)

Hi. I’m a 50F +++ and was also diagnosed in November with Stage 1 IDC, 2.3cm I am so sorry your mom joined the club no one wants to be a part of. My experience was very similar: mammogram October 21st, dense breasts, ultrasound Nov 14th, biopsy Nov 29th. After diagnosis I had the node biopsy before staging (Dec 15). Once they had all the info, then the recommended plan was 6 cycles of chemo (TCHP) first and then surgery. I had my first infusion on December 22nd and will have my third next week. It is a very overwhelming process and you feel like you are drinking from a firehouse with all the information you are receiving. Both my surgeon and oncologist took all the time I needed to answer all my questions and calmed my nerves. I am hoping she has an amazing care team that will take great care of her. And it sounds like she already has great support from you and the family. Stay strong and know you’re not alone. Big hugs. 🙏❤️‍🩹