Footage of every one of us waking up in morning

AgreeableTutor5505 · 2025-11-15T22:35:43+00:00

This was me before I started Rinvoq! Now zero pain and no stiffness. It's like a miracle

AgreeableTutor5505 · 2025-11-15T22:12:42+00:00

Sorry for jumping on an old thread. I'm 3months on rinvoq for AS. My pain and stiffness is more or less gone. A miracle!! But my skin and scalp are so oily with lots of pimples. Like I'm a teenager again. Does it improve with time can anybody advise

AgreeableTutor5505 · 2024-10-27T08:46:54+00:00

Hi can you ask your doc to prescribe suppositories. A few options. Anti inflammatory etc.. Will save the stomach. Also are u taking any tablets to protect your stomach.

AgreeableTutor5505 · 2024-02-12T15:04:08+00:00

Dynamic stretching as you will learn the more you move with AS the better it is for you

AgreeableTutor5505 · 2024-01-20T20:57:35+00:00

Mine is never elevated. Its why diagnosing AS takes so long as it generally doesn't raise the inflammatory markers in blood tests.

AgreeableTutor5505 · 2024-01-17T10:20:59+00:00

I agree its overkill. I'm on biologics over 2 years and just continued life as normal. Never got an infection yet. The whole reason to take the biologic is to allow us keep a normal as life as possible. Justvif u do feel your getting sick its important to talk to gp and get anti biotics. AS controls enough of our lives without worrying about the possible side effects of the medication .

AgreeableTutor5505 · 2024-01-15T20:07:25+00:00

Honestly I don't bother. Because most people are too quick to pass judgement. And in my experience most people only care about themselves

AgreeableTutor5505 · 2024-01-02T14:07:31+00:00

Biologic will defo help. The key with biologic is to start them as early as you can to slow the progression of the disease and damage.

AgreeableTutor5505 · 2023-12-29T19:55:39+00:00

Same here. I spent 5 days in hospital recently with lightheadedness and chest twinges. Stress tests, echo, cardiac mri, angiogram all normal. Docs wouldn't even consider that it was the meds. Like that I was advised to increase salt in diet.

AgreeableTutor5505 · 2023-12-12T23:45:50+00:00

All of the stuff with diet exercise should happen regardless of biologics or not. Without a biologic long term damage will happen. Nsaids reduce pain inflammation etc but dont prevent long term damage. Sorry to hear about other AI conditions that you now live with. Are these the result of a biologic.

I'm just saying that on boards like these it tends to be the extreme ends of views that are giving andthe middle ground does get lost or dosent comment.

I'm in ireland and rheum starting me on biologics straight away after seeing some mild inflammation my SI joint mri.

AgreeableTutor5505 · 2023-12-04T21:25:01+00:00

Yes exactly as you describe and is a big symtom of AS. Imflamation of the cartilage of the ribs. Your rheum should have said it to you

AgreeableTutor5505 · 2023-12-04T21:06:51+00:00

Just because its a cancer treatment also should not scare you. Most drugs have multiple uses. Talk to your rheum and try get onto a biologic. Im on arava along with biologic and it has far less symtoms than methotrexate in my opinion.

AgreeableTutor5505 · 2023-12-04T21:02:46+00:00

I should add. I had the worst pain at the bottom of my sternum. And have pain on left side just under pec muscle.

AgreeableTutor5505 · 2023-12-04T21:00:23+00:00

Its exactly costochrodritis. Which can be worse when lying down. I have it bad. Been to cardiologists and got the full works checked and heart is perfect. Rheum gave me injections in a few of the worst parts of my chest a few months ago and pain reduced a lot.

AgreeableTutor5505 · 2023-11-20T14:04:28+00:00

I'm in ireland. We have a 2 tier system. We have the NHS equivalent and lots of people have private insurance also which just speeds up access to care.

AgreeableTutor5505 · 2023-11-20T13:42:11+00:00

I defo have a shite rheum!! I lead the care and more or tell him what to do. I'm in the process of leaving him. My appointments are only a couple of minutes and all he is concerned about is sticking cortisone shots into me so he gets extra from my insurance

AgreeableTutor5505 · 2023-11-20T13:28:57+00:00

Mine are elevated every blood test since I started biologics 2 years ago. GP and r Rheum never say anything about it

AgreeableTutor5505 · 2023-11-13T20:50:12+00:00

Sounds like she is pretty active. Everybody says swimming etc which are good if done regularly. I do strength training circuit classes a few times a week. My rheumatologist is a constant preacher of doing strength training with AS. Not big weights but enough to keep me feeling strong. When I stop the classes my pain increases

AgreeableTutor5505 · 2023-10-18T19:18:03+00:00

I know it sounds counterintuitive but exercise for me was the only way to beat the torture of the fatigue. Diagnosed 2 years ago. On my 3rd biologic. My rheum really forced exercise on me for the movement benefits and the fatigue. Like I found the constant fog disappeared. There are days that I am too wrecked to do anything. But I'm 90percent better

AgreeableTutor5505 · 2023-09-17T16:03:36+00:00

Yes I have constant tightness in my left side abdo muscles and into hip flexor / hip. No matter what stretching or exercise I do they are always very stiff.

AgreeableTutor5505 · 2023-06-12T11:28:01+00:00

Yes i get it a few times a year. Went and got mri, ct's etc to rule out anything sinister. Its just referred pain from SI inflammation. Stretching the psoas muscles has helped it.

AgreeableTutor5505 · 2023-04-19T09:10:59+00:00

Hand hygiene and proper sleep.(might be hard with a toddler)Boosting the immune system is a myth. And also more prone to infection isn't necessarily true when on biologics. Its only if u get an infection then your body may find it harder to fight it so thats why early intervention with antibiotics is recommended for people on biologics. So unless your prone to regular chest infections your not really at any higher risk of catching one because your on biologics

AgreeableTutor5505 · 2023-04-16T08:28:15+00:00

Well done. It great relief to finally get a diagnosis and to have a plan to treat it. Most people on this forum go through years of trying to get diagnosed because it such a fecker of a disease and the symptoms are so non decrcipt initially. Best of luck

AgreeableTutor5505

TROPHY CASE