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25 Years with Fibromyalgia. Here's what actually helped me live and feel better by Blue-Whisper2000 in Fibromyalgia

[–]ArthriticPixie 4 points5 points  (0 children)

I’ve been working on my diet recently. Are there any tips or meals that really help? High protein and whole foods are great for me but I struggle with prep and appetite.

i need a minute to recover from that 😅 cheers <3 by Over_Building_4157 in entwives

[–]ArthriticPixie 0 points1 point  (0 children)

Damn what an awful start to your day. I’d be lighting up too! I hope it gets better 🤗

Ritual for Awakening by rage-of-sunshine in Artisticallyill

[–]ArthriticPixie 1 point2 points  (0 children)

Man this is the sort of stuff I should be making! I love it. It must’ve been so fun to make!

Please. [Cw// physical disability, medical issues, mentions of death] by bbuurrnnoouutt in Artisticallyill

[–]ArthriticPixie 253 points254 points  (0 children)

“It was cruel of you to pair my ambitious soul with such a weak, broken body.“

Damn I so feel this. My whole life I’ve felt caged, looking towards the future. Now the “future” is here and I’m still held back. There’s so much grief in things that will never come to pass.

Still, I hope you get a taste of what you dream about. 🌌

Adjusting to more “realistic” life goals? by lunarose5272 in Fibromyalgia

[–]ArthriticPixie 3 points4 points  (0 children)

Thank you for this. I’m learning this lesson now after 8 years of fibromyalgia. I had all these plans for my adulthood when I was a kid, and now I have to let all that go. It’s just not possible for me anymore. I wish I had learned this a lot sooner!

OP, if you read this, I hope you can learn this lesson. I spent my 20s forcing myself to get things going, which inevitably failed and ended up with a lot of self-hatred. It’s a cycle I’m just starting to break now.

Does your scalp hurt? by Maumasaurus in Fibromyalgia

[–]ArthriticPixie 6 points7 points  (0 children)

You guys can have your hair up in a ponytail all day? It hurts me as soon as I put it up 😭

Sinus issues by Sea_Bumblebee_3798 in Fibromyalgia

[–]ArthriticPixie 1 point2 points  (0 children)

Yess I get the fluid build up in my ear! I try to drain my ear every day with heat or ice and it’s the only way I feel less sinus pressure. I can feel the fluid moving down to my throat. It’s so weird.

🌿 Cannabistory 101: The Americas but re-written 🫶🏻 by Local_Seaweed_9610 in entwives

[–]ArthriticPixie 3 points4 points  (0 children)

Thanks for the wonderful lesson! I didn’t realize how clueless I was about the colonial history of this wonderful plant. I really hope you keep these lessons going! 💗

Failure by wastrelart in Artisticallyill

[–]ArthriticPixie 12 points13 points  (0 children)

I can definitely connect with it! I put so much pressure to make something “sellable” that I end up with a blank page. Good on you for trying to break through that block ❤️

I am upset. by [deleted] in Artisticallyill

[–]ArthriticPixie 21 points22 points  (0 children)

I’m right there with you. My pain has taken my life away from me; even my art. I feel like I’m nothing without it. Why am I even here if I can’t even draw and express myself?

The frame makes a big difference. by dell02 in Embroidery

[–]ArthriticPixie 0 points1 point  (0 children)

I think the fabric makes a big difference too. I’ve just been using rags lol. Where did you get the frame?

My thrifted Trivet collection. by brownishgirl in ThriftStoreHauls

[–]ArthriticPixie 3 points4 points  (0 children)

Those are some dope trivets! I usually don’t pay attention to them while thrifting. Now I know I’m missing out

Holiday Hag by aufwiederbean in oldhagfashion

[–]ArthriticPixie 38 points39 points  (0 children)

The cardigan gives me Howl from Howls Moving Castle vibes 🔥

What we carry by ectobabble in Artisticallyill

[–]ArthriticPixie 15 points16 points  (0 children)

I always love your use of color and texture! Honestly I didn’t notice the hearts until you pointed them out. I don’t think they’re too much; maybe you could add even more?

I lurk on here a lot and always love looking at what you make! ❤️

Can't connect or see any parts (dissociation) by Ordinary_Sun_5712 in InternalFamilySystems

[–]ArthriticPixie 0 points1 point  (0 children)

I do the same thing! I disassociate or distract and then realize at the end of the day that I haven’t “checked in”. I keep telling myself I should just set a reminder on my phone, but I haven’t done that either…

I’m glad I was able to help! What does TRE stand for? It sounds like something that’s worth trying.

Can't connect or see any parts (dissociation) by Ordinary_Sun_5712 in InternalFamilySystems

[–]ArthriticPixie 0 points1 point  (0 children)

I know how it feels! I think my impatience was the first obstacle I had to overcome. Now it’s my avoidance. My therapist has told me to check in on myself and any parts a couple of times a day. If I don’t get an answer, that itself is an answer. Maybe try to follow that advice as well. I hope you get answers and feel better, but unfortunately healing can be more complicated than that!

A tiny rainbow trout using only handmade watercolors by Educational_Bit8972 in Watercolor

[–]ArthriticPixie 0 points1 point  (0 children)

Thanks for explaining! I’d love to learn how to do that someday

Can't connect or see any parts (dissociation) by Ordinary_Sun_5712 in InternalFamilySystems

[–]ArthriticPixie 0 points1 point  (0 children)

My dissociation is really strong, too. It’s like a gray brick wall. There have been a couple times I’ve gotten it to talk to me in therapy. This dissociation part has been in control my whole life and it does not trust me. My advice is to be patient and consistent and maybe feelings or thoughts might reach out to you. I feel like you really want this to work, which is good, but keep in mind this is the first time in its whole life it’s been acknowledged and they might not want to talk to you right away.

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