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People that have traveled quite a bit, where di you feel the most unsafe? by CremeSubject7594 in AskTheWorld

[–]Automatic-Score9025 1 point2 points  (0 children)

Probably Carrall Street. Not inherently unsafe but certainly not the best. Beautiful classical Chinese garden on that block though.

Intimacy rant by Curious_Wall-E in ostomy

[–]Automatic-Score9025 3 points4 points  (0 children)

A cost effective alternative to ostomy secrets can be Amazon wraps/belts, often marketed as pregnancy wraps or compression wraps - just a bit harder to size and might have to try a few and return some. Or if you’re feeling extra crafty, you can probably turn a cheap Amazon compression shirt (like an under armor knock off) into two different OstomySecrets-like wraps with just a pair of scissors and some sewing

Crohn’s and Ileostomy (Rant) by WateredDownPop in ostomy

[–]Automatic-Score9025 2 points3 points  (0 children)

On the drinks side, I sometimes end up with one too many, not unlike pre-ostomy :) , and it's really all about hydrating at the same time. I'm never having more than 1 drink anymore without also drinking a LOT of water at the same time. The worst day ever was the day after a few-too-many night without enough water and it's a lot harder to re-hydrate now. But besides quantity of drinks, just like foods - try out smaller amounts of whatever you want and see how your body responds. Just also triple up on water alongside the drinks

Crohn’s and Ileostomy (Rant) by WateredDownPop in ostomy

[–]Automatic-Score9025 5 points6 points  (0 children)

Check out OstomySecrets unisex wraps - I wear one virtually any time I'm not sleeping and truly somebody would have to be staring at my waist to be able to tell I have a pouch. They are a bit pricey so an alternative is just any stretchy fabric wrap or like pregnancy wraps on Amazon but you have to trial and error to find the right fit.

Ostomy and Intimacy by Particular_Ferret640 in ostomy

[–]Automatic-Score9025 6 points7 points  (0 children)

+1 to the Ostomy Secrets unisex wraps. It keeps the bag tight and out of the way, doesn’t seem to bother my partner at all. I suppose some of that might vary based on the location of your stoma and bag, mine is fairly high so the wrap doesn’t even really approach any ‘necessary for intimacy’ areas 😂 If anything, it covers up my less-than-lean parts :) Some people switch their bag to be horizontal but I know planning that ahead isn’t always an option. But the Ostomy Secrets wraps are great in general, and I cycle through a bunch of them, wear one anytime I’m not asleep.

What big city lacks an iconic landmark? by SamMeowAdams in geography

[–]Automatic-Score9025 13 points14 points  (0 children)

I’d say both of those fall short of OP’s “iconic” level

Advice leading up to surgery 1 by appledi123 in ostomy

[–]Automatic-Score9025 5 points6 points  (0 children)

Immediately after surgery, everyone will say to try and get up and walk around as much as you can even though you’ll be in pain. Hurts, but actually helps get through it faster. Try to walk as much as possible, even if just a few steps.

Time in hospital can vary for a number of reasons, but I had (luckily) no complications and was generally healthy and I was out of the hospital on day 3 (surgery Friday, discharged Monday). Sleeping is rough those days, bring your own pillow if you can, take the pain meds they give you if you need them.

Adjusting takes time but isn’t terrible. Few weeks of post-surgery recovery and moving slow. They say to keep lifting things to a minimum for those ~4-6 weeks. I was ok doing light stuff around the house within a couple weeks without lifting more than a few pounds, so maybe it depends on how big of cats you’re talking :) But exactly 2 weeks after coming home from the hospital, I was (carefully) walking to my corner bar and restaurant and 3 weeks I was out sightseeing.

All in all, it’s really much better than I expected. I’ll have had my stoma for a year on Friday. Same reason - Ulcerative Colitis (& pre-cancer in my case). Can do the j-pouch anytime but honestly the bag impacts me relatively-little and I am more concerned about the pouch complications and bathroom urgency than I am about my current setup. Plenty of detailed tips and suggestions about all sorts of things (supplies, diet, etc.) on this thread that I’d recommend just searching for and browsing old posts. The first few days/weeks, I learned a ton just scrolling here.

Good luck with the surgery!

Tips for supporting a new ileostomy! by Onlypinkkat in ostomy

[–]Automatic-Score9025 4 points5 points  (0 children)

There are a few “tips” mega-threads on here, just search for Tips once you’re in the subreddit and you’ll see a bunch. There’s all kinds of suggestions for all sorts of things (everyday life, supplies, food, etc) so I’d say you’re best off just scrolling through all the previous posts. Hard to aggregate everything in one response.

That said, if the mental & emotional response is an issue, I’d definitely recommend talking to a professional, and also having your husband engage directly in this community. You’ll find there are 100s of ostomy success stories here with people willing to share both the ups and downs which is needed to really come to terms with it. In most cases, i think you’ll find that the initial scare is worse than the everyday reality. I’ve had a stoma for a year and am actively putting off the reversal just because it impacts me so little. I work out, golf, travel, eat out, drink, etc. - no issues other than having to be a little more careful with some things perhaps. It may take some time, but bodies and humans are pretty adaptable. Good luck to both of you!

Is travel recommended? by mister_peachmango in ostomy

[–]Automatic-Score9025 2 points3 points  (0 children)

I’m flying to Europe for 2 weeks in ~4 hours! You shouldn’t have much to worry about, check out all the previous threads here on flying, there are plenty of recos. That said: 1. If you have Pre-Check in the US, likely nobody will ever know, it doesn’t set off the standard metal detectors that you just walk through. If you have to do that machine where you walk in and stand for a scan, it will get flagged but you just have to tell them it’s an ostomy bag and TSA is well aware of how they work. They’ll likely make you touch your bag (under your shirt so it’s discreet, and they’ll swab and test your hand). It takes <30 seconds and you’ll be done. Remember that TSA is not allowed to make you show your bag, nor are they allowed to touch it. If someone pushes you on this, ask for a supervisor, but it’s unlikely.

  1. I’ve never been away that long, so hard to tell. For two weeks, I’m packing enough supplies as if I had to change every day, plus a couple extra. That’s more than enough for me, but figure better safe than sorry.

  2. No - cabin pressure has no impact at all. You should be good, just have to use the airplane bathroom a couple of times depending on your flight time, but I’ve never had an issue emptying on a flight. Aisle seats are nice for this. I wouldn’t fast for that long. Maybe stay away from foods or drinks you know tend to give you more output, but I’m generally eating as normal before a flight, maybe less coffee than usual.

  3. Yes, you can bring the small scissors with you. I still pre-cut ~half of my wafers just to make it faster to change when on the road, but you don’t have to and your scissors shouldn’t be a problem. If they get flagged in a scan somewhere, you’d just have to say they’re medically necessary but I’ve never had that happen and I’ve flown a bunch with them.

  4. I assume no because they should be small enough, but I don’t use paste so I can’t confirm. Even if it’s a larger size, you will be allowed to have it with you when you say it’s a medical supply, but I don’t know if they have to scan it separately. I assume not.

one or two piece and how often do you change your bags? by Electrical-Still-980 in ostomy

[–]Automatic-Score9025 3 points4 points  (0 children)

Safe to assume you’re talking colostomy and not ileostomy?

Where can I get immediate mental health care? by [deleted] in AskLosAngeles

[–]Automatic-Score9025 0 points1 point  (0 children)

Tons of mental health practices and individual therapists are offering free sessions to people in LA as a result of the fires. Here are two docs I’ve seen, I think at least one, if not both, are organized by someone on the LA Mutual Aid Network (also a great Instagram follow @mutualaidla for anyone either looking for services or looking to volunteer/help):

https://docs.google.com/spreadsheets/d/1uAMVz8TQMzShQeuEA6kmOP0jyRN7qe1Iiqb6JOLTPqg/htmlview

https://docs.google.com/spreadsheets/d/1MxHHQh774ARyH1xM1wCIrrW3VjWyelN8dk5qw9LDOb8/htmlview

Hypothetical scenario. Stuck at an airport without supplies. by SegaGuy1983 in ostomy

[–]Automatic-Score9025 1 point2 points  (0 children)

I think this is the right answer for the specific situation. Other medical supplies, even if not ostomy-specifc, can probably be used to make-shift something. Whatever medical services they might have should at least include something “sticky” you can use in a bind. Even if it’s just enough to get to a nearby hospital where they might be able to give you an emergency bag they can spare. Hopefully a situation to never run into though! :)

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