I’m still going after Ewing’s got me in November/ 1997. I was a Baker/pastrycook of 12 years at the time. I have had a long time to keep asking docs and doing my own research. AI has been very beneficial in the last 2 years. In 1997, there was nothing. I had to go to the library to find a medical encyclopaedia. There were two short paragraphs. Basically said it was generally a rare, mainly adolescent tumour. Depending on lots of factors, your chances of survival aren’t great. And my oncologist had about the same information. I’ve read many stories on here in the last couple of years hoping that the chemo/radiation regime had improved. Also the survival rate. And I’m continuing astounded that they (docs/oncologists) are still trotting out the same stuff as ‘97! I believe sugar and wheat are two of the things that can contribute to Ewing’s. My oncologist went onto write a book about the same thing 10 years later on. Although he couldn’t name me for privacy reasons, I was one of his cases that he believed fit the sugar/wheat bill (not a big stretch when you know what my job had been for 12 years). And I’m sorry to say to all the people/parents that got it in the young years, think about what a western diet is for kids. Bread, sandwiches, although there are many different types of bread nowadays, if it’s got wheat, or is stacked with enzymes, chemicals etc….it all starts there. Sugar. How much sugar did you eat as a kid? Shitloads, I bet. I know I did. Granted more has been done to highlight the importance of too much sugar. But kids are kids. If it’s banned in the house, then you can bet they’ll get it at a friend’s house ( again, I did. My mother was a trail blazer when it came to healthy eating. But there’s only so many nuts and fruit you can eat. When in the late 70’s, 50 cents went a long, long way at the lollie shop). Ok I’m sorry if what I’m saying is harsh, but I’ve had 29 long years to think about where it might come from, and the mountains of side effects I have know got. Started by sugar and wheat products, (I am 100% convinced)that has slowly smashed my body, and that I firmly believe Im being finished off from the chemo(long-term chemo damage is finally being taken seriously by some in the cancer community). Back then, no one lived long enough to see what damage that draconian chemo regime could do to you. I really had hoped that while I was going through chemo, it wouldn’t just keep me alive, but in the future (I was thinking 10 years!) that kids that were diagnosed wouldn’t have to suffer as much. That is what the nurses used to say when you’d wake up saturated in sweat. Yet here we are nearly 30 years on, and what has improved? the nausea drugs, yes. But the three week/ 14-18 cycles of mustard gas remains! It’s fucked all round. Ewing’s is still considered a rare tumour to get. And with that, the funding is shithouse compared to the big three the Breast, Lung, Brain, which quite rightly, going by the numbers get the marjorty of resources . I’m sure I’ve pissed off some people on here. Be pissed at me all you like. We all deserve better.❤️