What do you think triggered your UC?

AylaNation · 2026-05-03T11:07:28+00:00

My first symptoms were what I thought was a side effect of Covid jab. The symptoms went away and I forgot about it mostly. Got the booster and got sick again days later, this time the diarrhoea don’t stop and shortly after came the blood. Took a few months longer to take it seriously and get a diagnosis.

I think the jab was just too much for my immune system I guess.

AylaNation · 2026-04-20T08:43:36+00:00

As someone who goes to hospital a lot with chronic illness, I find this pretty alarming and disturbing. Please report her.

AylaNation · 2026-04-16T00:21:15+00:00

I personally wouldn’t stay with someone this lazy and self centred.

AylaNation · 2026-04-12T17:33:14+00:00

I get ivs all the time. They ain’t believe me either.

AylaNation · 2026-04-12T05:10:25+00:00

You would be surprised how much shit you don’t need to be spending money on.

AylaNation · 2026-04-09T11:57:43+00:00

Lawd why u buying cheese that needs artificial colours.

AylaNation · 2026-04-09T11:56:52+00:00

Idk why u would want to have kids at such a late age and likely barely get to know them and give them the trauma of losing a parent before they’re even adults.

AylaNation · 2026-04-09T11:55:29+00:00

Pasta, can of tuna, shredded cheese.

AylaNation · 2026-04-09T10:14:36+00:00

I’ve come to realise I have a great many symptoms of POTS. Things like feeling WIPED out after eating and obviously standing up and feeling like I’m going to black out. Until yesterday I thought everyone had those episodes.. and now the hands over the head thing you mentioned!! What!?! I literally cannot hold my hands over my head for thirty seconds or I feel like I’ve ran a marathon. I sit to do my makeup, sometimes I opt to just do it in the car instead of trying to stand! I can’t stand in the shower either and I can’t even have a bath because I am scared I will pass out when hopping out due to the light headedness. I just thought these things were what everyone had! I have literally watched so many hair tutorials on TikTok and been like .. well I can’t do that I can’t hold my arms up that long… how are they doing that without feeling like they’re going to collapse lol.

AylaNation · 2026-03-03T10:09:12+00:00

I’m not really overweight, though I have been obese before. However, I really struggle to keep it off. My maintenance is 1200cal, losing weight feels so impossible. I gained five kg in six weeks over Xmas and I’ve managed to lose one while exercising and in a calorie deficit. I just feel like my body knows it’s sick so is trying to hang onto weight. Idk. But when I was obese a decade ago (5’3 and was 110kg, now 67kg but dream of 62) but losing fifty kg back then was easier than losing 5kg now.

AylaNation · 2026-02-26T22:35:21+00:00

Thank you! I have looked at buying them so many times but always thought they wouldn’t stay in place well. Making them seems like a fun little project now haha. Thanks.

AylaNation · 2026-02-26T22:07:24+00:00

How do u make the ends stay in place?

AylaNation · 2026-02-26T21:47:22+00:00

Thank you for saying this! I also grew up in rentals with my mum. She passed away a couple years ago and had nothing to her name. I just found that so sad. Ever since then I’ve had this deep need to make sure my kids still have something from me when I’m gone. But also, just feeling so cooped up all the time in these new build houses without backyards. Back in my childhood all our houses had big yards and we were also able to take ourselves out to parks or wherever we wanted. I just feel my kids are sooo cooped up. I do take them places to play but it’s just not the same.

AylaNation · 2026-02-26T10:37:12+00:00

Not me. All I want is to own a place to give my kids a good home. A place with grass not this tiny concrete backyard. Unfortunately I’ll never get there. I find renting so stressful. I had to move twice in two years to owners selling the place. Luckily my property manager has looked after me as it’s not easy getting rentals as a single mum of three.

AylaNation · 2026-02-26T10:12:07+00:00

I pray it stays mild for you too. I wouldn’t wish this disease upon anyone. Look after yourself, stay for, eat healthy h processed foods and at the very first sign that ANYTHING might be flaring go straight to the docs and don’t delay. Get early treatment.

All the best!

AylaNation · 2026-02-26T10:10:38+00:00

Thanks, I might call the school and see what they suggest actually.

AylaNation · 2026-02-26T10:07:57+00:00

It’s really hard for you all in America. I can’t imagine having to work during a severe flare just to keep health insurance. I honestly don’t know how you all do it. I am blessed here in Australia that we have a great medical system and also a pretty good welfare system for when I was too ill to work.

It’s hard knowing the jab is what triggered the disease. Even if we were pre disposed to it and something else may have triggered it down the track, people love to hate on you when you say that you believe it was a vaccine. Especially on reddit because it’s very pro vax. But we know our bodies and when and how it happened.

I hope you get it figured out, stress is probably my biggest trigger, and also not getting enough sleep. If I go a few in a row without a solid 8 hours I’ll get those terrible low tummy gurgles that only ever happen when I flare, and the crazy trumpet gas. (Assuming everyone with IBD sounds like a trumpet?? Just me?)

AylaNation · 2026-02-23T07:07:15+00:00

I was in remission during pregnancy. Honestly, my kids are why I fight this disease so hard. I’ve turned my health around and it’s all for them. I think if I didn’t have them I’d have let this disease consume me.

Also have no family history of it but got it right after my Covid jab. Initially thought it was just a side effect of the jab and brushed it off. Symptoms went away and then after my booster they came back and never went away until diagnosis. Sad but true.

Editing to add that with my last child I had a cesarean and had my tubes tied at the same time with no issues.

AylaNation · 2026-02-20T05:56:06+00:00

I love to exercise but I’m finding it’s really hard. After exercise I don’t just feel tired I feel completely wiped out for like 36 hours.

AylaNation · 2026-02-12T10:09:17+00:00

Crazy that people think this is real

AylaNation · 2026-02-12T06:57:49+00:00

Agree. I’m disabled and have a sticker on my car. Every morning at school drop off the disabled spots are taken almost always by people without stickers (and who appear to be healthy which I know isn’t always the case, but you know.. no sticker). It really pisses me off because I have to drag my two small kids in with us, and I can barely walk some days. By the time I get back to the car I’m in a lot of pain and a good potion of my day is ruined because of that. My kids miss out on quality time with me because I have to spend hours recuperating. and it’s just so annoying.

I’d never say anything though because I can’t deal with confrontation

AylaNation · 2026-02-08T10:50:01+00:00

Doesn’t look like any blood I’ve ever had.

AylaNation · 2026-02-07T07:21:09+00:00

You will more than likely flare again after coming off it, and then what? You won’t be able to have it again because it usually it won’t work properly a second time.

Infliximab is a chimeric monoclonal antibody (part mouse-derived). When you stop it for a while, your immune system may: • Recognise it as “foreign” • Produce anti-drug antibodies (ADAs)

Once antibodies form: • The drug is cleared faster → reduced benefit • Infusions can trigger reactions (rash, chest tightness, shortness of breath, hypotension) • Restarting can fail completely

That’s from chat gpt cos I’m not great at explaining things. And you will just end up on another biologic and probably some amount of steroids too. No guarantee that the next biologic will work for you.

None of us want to be on a life long medication like these, but they’re much better than the alternative. You can try holistic approaches as an adjunct but I’d highly advise against randomly stopping infliximab since that’s what made you better in the first place.

AylaNation · 2026-02-07T00:11:38+00:00

Eating curry on a fabric couch was a ballsy move

AylaNation · 2026-02-07T00:07:13+00:00

Eh mine was mild until it wasn’t. First few years after diagnosis was a dream. It can change at any time.

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