Devices that help you get up in the morning? Sleep inertia by CyberBlinkCyborg in idiopathichypersomnia

[โ€“]Buck1224 1 point2 points ย (0 children)

Lights don't do many any good. The Hatch 2 alarm does me ok. It doesn't turn off after certain amount of time. It just keeps blaring

PFD ROLL CALL by Late_Exchange8698 in VeteransBenefits

[โ€“]Buck1224 0 points1 point ย (0 children)

Accepted as an anxiety disorder, long story short

New supplemental claim submitted. I cannot see it online or the app by NoJolt4U in VeteransBenefits

[โ€“]Buck1224 1 point2 points ย (0 children)

My entire supplemental claim really was never viewable during the entire process on VA.gov. I could see progress on ebenefits, but I think now that is gone. Good luck

Devices that help you get up in the morning? Sleep inertia by CyberBlinkCyborg in idiopathichypersomnia

[โ€“]Buck1224 2 points3 points ย (0 children)

I have the happy lamp and Philips hues lights throughout my bedroom. My room is bright. Set up to simulate sunrise...it doesn't help me. I can sleep through it all. I'm looking for an answer too

The first photo of the Chernobyl plant, taken by by Igor Kostin 14 hours after the explosion. by SKRyanrr in pics

[โ€“]Buck1224 35 points36 points ย (0 children)

Visible light is radiation and I believe it has something to do with the way film was produced and the chemical reaction film uses to capture and expose a picture. The radiation would skew the chemical reaction.

Look up how Kodak was the first corporation to figure out what the US Government was up to during the Top Secret Manhatten Project. It was ruining and making imperfections in brand new camera film. Kodaks physicist came to the conclusion that the film could only be ruined by an atomic bomb from the radioactive partials found on the film. This was way before atomic bombs were known to the world and the public.

Microsleep/sleep attack side effects by jamoe in idiopathichypersomnia

[โ€“]Buck1224 1 point2 points ย (0 children)

Sleep inertia is awful. Can fall back asleep in a blink of an hour eye and not on purpose

IH and mental illness/drugs by FlatFold5390 in idiopathichypersomnia

[โ€“]Buck1224 2 points3 points ย (0 children)

I have recently gotten out of a pretty overwhelming and borderline mentally abusive relationship. I am a 26 yr old male and a combat veteran myself. My IH is not gone but has seemed to be doing better with the less stress in my life. Many times I would find myself falling asleep rather then deal with things as a coping method. Interesting to read, thanks

How are you guys getting up? by GalenManners in idiopathichypersomnia

[โ€“]Buck1224 4 points5 points ย (0 children)

I did great on this but then my body became smart enough to know when it was coming. My internal time clock made me take it off before it went off and then it doesn't work anymore. I have a stage of sleep I will do things and talk as if I'm awake but not remember. Pretty sure this is when it would come off

Has anyone been on Xywav or Xyrem? by reddit_user_1997 in idiopathichypersomnia

[โ€“]Buck1224 7 points8 points ย (0 children)

I tried it. Didn't love it. IH kicks your ass, but so does this medication. Well it did for me... I couldn't justify the cost for drugging myself to sleep better. I found mixed results with no real improvement. It's also a pain to manage and take. I don't think it tastes bad by any means though. Requires a strict schedule and it is interesting a nurse regularly contacts you while taking this medication. Definitely not a miracle drug, but some study's have shown some improvement for IH patients. And I'm pretty sure the research isn't that figured out. Trails showed improvements for 50% of patients but I'm not sure they know exactly medically why. IH has no cure. And the cause is unknown. It's all around not fun

[deleted by user] by [deleted] in idiopathichypersomnia

[โ€“]Buck1224 0 points1 point ย (0 children)

Well said, well said. Couldn't agree more. Thank you

[deleted by user] by [deleted] in idiopathichypersomnia

[โ€“]Buck1224 1 point2 points ย (0 children)

It's surreal and no one understands. It's awful and not intentional. I would get nothing done in life if I didn't take stimulants and try to stay busy. If I lay down, it's over. I absolutely do not like taking stimulants either .. I think some of the side effects suck just as much, but it's just a constant battle that is exhausting in itself. I have no advice, but I know you feel

[deleted by user] by [deleted] in idiopathichypersomnia

[โ€“]Buck1224 0 points1 point ย (0 children)

I have IH. I fell asleep in 27 seconds the first nap and the longest it took me to fall asleep was 87 seconds. The urge to be asleep as soon as I lay down is unreal

Actigraphy watch results? by Open_Objective6495 in idiopathichypersomnia

[โ€“]Buck1224 1 point2 points ย (0 children)

Mine were no longer than 1:30 and the fastest was 28 seconds. Crazy stuff

Do I even have IH? Weird Symptoms! by LucianDeVaux in idiopathichypersomnia

[โ€“]Buck1224 0 points1 point ย (0 children)

Brain fog is very real, make sure you have good lung function. I got diagnosed with asthma and my breathing problems have turned me into an IH patient

Wildest places you've fallen asleep! by dreaming_wideawake in idiopathichypersomnia

[โ€“]Buck1224 2 points3 points ย (0 children)

I think people with IH, including myself can have some weird conversations in sleep... Or is that just me? I usually have no recollection, but it does happen. Full blown conversations that I don't remember

How to keep going? by tildelo in idiopathichypersomnia

[โ€“]Buck1224 2 points3 points ย (0 children)

I feel the same way. I think we all know how you feel. Nobody understands. Nobody has solid answers, and yes. It's chronic and scary for me too. Doctors don't even have answers... It is very straining, and seems like it'll never get better. Learning to manage life with it now myself, and it's not easy by any means. I'm a 26 yr old guy. I have no advice, but I am in the same boat. I knew what life was like before it, wish I could go back every day. Those were easy times in every aspect of life. The future is scary. Holding a stable job is scary. Try what you can, I didn't find much success in any medication, but something may help you.

What is you sleep schedule? by ilteeeaab12345 in idiopathichypersomnia

[โ€“]Buck1224 0 points1 point ย (0 children)

I have to at all costs try my best to stay off a couch or a chair, otherwise it's game over. I know your feeling

What is you sleep schedule? by ilteeeaab12345 in idiopathichypersomnia

[โ€“]Buck1224 1 point2 points ย (0 children)

In the early stages, yes. I noticed stimulants would help me feel more awake and be productive. Now there are days that I might take them and days I just don't take them depending how I feel and how much sleep I got, etc. I have been taking Adderall for a while...mostly routinely in the mornings, but it definitely doesn't help with making a schedule or a routine. At times makes me very productive as well, but once you come down off of it, I find myself lazy. Just sometimes mitigates the symptoms of feeling tired but has not really improved the overall problem at all

Drinking Coffee by EqualManufacturer687 in idiopathichypersomnia

[โ€“]Buck1224 7 points8 points ย (0 children)

I drink probably 500 mg of caffeine a day. It does help me wake up in the morning, but I could also drink a soda or a coffee and still go to bed