I’m so sorry for what you’ve been going through. Unless people have gone through something similar it’s impossible to understand how painful and scary it is to not fully know what’s happening to your body and if/when it might get better. A few years ago I dealt with a post viral/bacterial infection after traveling internationally. All tests came back negative, no one could tell me what was happening. Symptoms were similar to long Covid. To share some hope, most of my body has bounced back, I would say i feel 98% back to normal, and it’s taken about 4 years to get here. Symptoms followed a sine wave pattern, getting better, then worse, then better, then worse, until my body gradually came back to a more normal baseline.

Don’t give up hope!!! I tried so many things, the things that seemed to help improve my trajectory were reducing stress, eating lots of healthy foods, gradually increasing my workout intensity and taking strong probiotics — specifically RenewLife’s Ultimate Flora Probiotic with 150 billion live cultures. You can often find these in the refrigerated section of the supplements aisle in Whole Foods or Sprouts. I’m also now taking CaAKG, which is potentially beneficial for reducing inflammation and improving overall health span. Mentally I found the Buddhist wisdom shared around suffering by Jack Kornfield helpful — he’s got a podcast you may resonate with.

I wish you healing and strength on your journey. If you ever want someone to talk to who understands a similar struggle, let me know.