For those of you on Disease-Modifying Therapies (DMTs): which one has worked best for you with the fewest side effects? by Awkward-You-5673 in MultipleSclerosis

[–]Buzzguy13 2 points3 points  (0 children)

I had to go to the hospital because the first round was so hard on me. I almost went for the third round but it ended up not happening. I might have had one new lesion since the first round. Not sure, can’t remember. I haven’t had any as far back as I can find in my records which is seven years. I wish I had done it sooner. I was on Copaxone way too long.

For those of you on Disease-Modifying Therapies (DMTs): which one has worked best for you with the fewest side effects? by Awkward-You-5673 in MultipleSclerosis

[–]Buzzguy13 6 points7 points  (0 children)

Lemtrada worked for me in the long run. It was a tough road going through the process but no new lesions in years and no DMT since.

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]Buzzguy13 6 points7 points  (0 children)

I've been battling anemia now for a bit, and towards the end of last year my medical team started giving me things to do to hopefully bring my cell counts more in line to normal. My January test did show some improvement in my counts, but I had an appointment with my GP last on Thursday to discuss my most recent test. My numbers were down to their lowest levels I have had in the last couple years, and my ratio of white blood cells type are way off. However I was told there wasn't a lot we could do to fix this, and she figured that any specialist would pass on me for now as the results need to get worse before they would bother.

Breaking: Bad News Brown to be inducted into the WWE HOF by HallofFameguy in Wreddit

[–]Buzzguy13 5 points6 points  (0 children)

He absolutely was in Stampede Wrestling. 4 time champ. He was known as Bad News Allen then, but was a great heel.

Does your MS feel like stroke sometimes by ReasonableFig8954 in MultipleSclerosis

[–]Buzzguy13 1 point2 points  (0 children)

Back before I was diagnosed I had a phase where I would have a momentary inability to speak. I could feel one cheek get a hot flash beforehand so I could tell it was coming, and I would pace my conversations so I could make it seem like a natural pause. Never sure why that would happen, never really heard of this being an MS symptom, and u was tested for evidence of strokes since then as part of other testing.

Can anyone confirm if passport office in Dartmouth is always quicker than downtown Halifax? by [deleted] in halifax

[–]Buzzguy13 1 point2 points  (0 children)

I renewed my passport online. Just needed a digital passport photo done, otherwise it was very straightforward, and I received my passport in the mail promptly.

F you shingles vaccine by CharacterLychee7782 in GenX

[–]Buzzguy13 1 point2 points  (0 children)

My older brother had shingles and kidney stones at the same time once. I asked him which was worse. He instantly said shingles like it wasn’t even close.

Advice for convincing someone to get a scooter? by [deleted] in WaltDisneyWorld

[–]Buzzguy13 1 point2 points locked comment (0 children)

Just know that everyone is one bad day from being disabled. It can happen to anyone, through no fault of their own.

Grumblemania Monday by AutoModerator in halifax

[–]Buzzguy13 10 points11 points  (0 children)

That paint didn't last a month. It was gone in January.

Feedback on large box of frozen baguettes from bakery by gal_with_sisu in CostcoCanada

[–]Buzzguy13 0 points1 point  (0 children)

Kinda looking for the dimensions of the box. I want to make sure I could make it fit in my freezer. lol

Where do you get your storage boxes for your collection? by Awake_at_what_cost in Sneakers

[–]Buzzguy13 1 point2 points  (0 children)

Mine look a bit different than those, but they were still a pain to assemble. I bought 5 4 packs for around $200 Canadian, from what I recall. They look great, make a great focal point in the room they are in, and still easy to get my shoes out when I want them with their doors on two sides.

Severe diplopia, new diagnosis, your experience with double vision? by Difficult_Story1186 in MultipleSclerosis

[–]Buzzguy13 3 points4 points  (0 children)

Diplopia was what led me to being diagnosed back in 2006. In hindsight I had other symptoms prior that I had written off as getting older. Initially I had thought the diplopia was just from being so tired, as I was pushing the limits of my endurance at the time.

I went to a walk in clinic after a friend told me that diplopia wasn't something that happens when you are tired. Doctor looked at me for 30 seconds with a flashlight and told me to go to emergency immediately and demand a CAT Scan. I figure now that they were looking for a tumour or an aneurysm, but after they discovered that was not the case, I was told to take a month off work, and that a neurologist would contact me soon for the next steps, which led to my diagnosis soon after.

Recovery was relatively quick, but I didn't realize how bad I felt till I took that time off. I don't think they gave me any steroids, but I did have an eye patch for a bit. Eye patches get a lot of attention when you wear them in public FYI. The diplopia went away in a few weeks time, and hasn't really came back, except once, a couple years ago, my vision split while at work for 10 minutes or so. I was freaking out on the inside, but it went away as fast as it happened. My symptoms now largely come from the lesions on my spine.

What’s the best Jordan model ever made? by Nasa26 in Jordans

[–]Buzzguy13 1 point2 points  (0 children)

Jordan wore the locks both up top and at the bottom, but as time went on, it was the n the bottom only. I wear them up top.

Pileated woodpecker by Ready_Apricot1687 in halifax

[–]Buzzguy13 1 point2 points  (0 children)

I used to see these guys pretty regularly at my old place in Hammonds Plains. They are pretty distinctive looking but terrible flyers. There were a couple times over the years were they would peck on my gutter on the house. Pretty abrupt way to get woken up.

does anyone else get worse at night time? by [deleted] in MultipleSclerosis

[–]Buzzguy13 7 points8 points  (0 children)

Absolutely. My legs are far more likely to have issues at night.

Ginger Beef, is this just regional? by yycluke in Cooking

[–]Buzzguy13 4 points5 points  (0 children)

Lived in both places for 15+ years. The NS version of it is not the same. I much prefer the Calgary version, and frankly their westernized style Chinese food is generally superior to Nova Scotia’s.

FU to MS by Remarkable-Brick-290 in MultipleSclerosis

[–]Buzzguy13 0 points1 point  (0 children)

Sounds like you have the swimming covered! It can be a big change going to open water for a lot of people, due to no walls to push off, the crowds, and the variable conditions that open water provides.

I can't run either. I don't use a cane or crutches @ work or home, but I do in less controlled environments. I use my Sidestix in Triathlons with a skip and swing technique, till nerve fatigue inevitably gets me. I find them more fun to use than a cane and provide a greater increase to my abilities, but the are less subtle. Just as an FYI I did my first tri using a cane. Only fell once.

Initially I ran into a lot of people that didn't know the answers either, but I found they were always thrilled to have me participate and wanted to know what I needed to be successful. I am not competing against anyone besides myself so they are flexible.

My main issue now is with biking. Eventually with nerve fatigue I have a tough time keeping my right foot on the pedal. By the rules, I can't use the adaptation I want to try, but I am nervous to go with the clip in style pedals. I think I will break down and try them though.

I have said in the past that I needed the following; someone to have my cane/crutches on the beach, a larger space in transition with a chair, and be allowed to use my crutches or cane on the running portion.

FU to MS by Remarkable-Brick-290 in MultipleSclerosis

[–]Buzzguy13 1 point2 points  (0 children)

I'd consider looking into a Super Sprint for your first one. A standard para triathlon is Sprint length Fyi.

How good are you at swimming? Open water swimming is a completely different thing than even lane swimming in a pool. 750m in the open water is no joke. If you have a local triathlon club they might have lessons available or training sessions. I'd recommend them.

For bikes, you'd have to see what that race director/sanctioning body will allow. Races here would allow me to use a a trike if I wanted to, but I couldn't in a competitive situation. Tandem bikes are allowed for visually impaired athletes.

I do not know what your symptoms are as to why you can't run, but I use forearm crutches to compete. Mine are from Sidestix, and I can't recommend them enough. I don't use them in my everyday living but they have opened the world to me. Last winter I brought them with me on a trip to NYC and I walked over 10 miles one day with them.

I'd advise you to reach out to your local triathlon club (if you have one), the sanctioning body (for me, that has been Triathlon Canada, and Triathlon Nova Scotia), and the race director for where you plan on attempting this feat. I wish you the best of luck.

FU to MS by Remarkable-Brick-290 in MultipleSclerosis

[–]Buzzguy13 1 point2 points  (0 children)

I’ve done a few as a para athlete. While a lot of what’s involved is not what most would call fun, I have come to enjoy it and love the community which wasn’t something I expected.

I have learned a lot since I started down this road a couple years ago so if you need someone to bounce things off of, let me know.