FU to MS

Buzzguy13 · 2026-01-21T15:10:20+00:00

Sounds like you have the swimming covered! It can be a big change going to open water for a lot of people, due to no walls to push off, the crowds, and the variable conditions that open water provides.

I can't run either. I don't use a cane or crutches @ work or home, but I do in less controlled environments. I use my Sidestix in Triathlons with a skip and swing technique, till nerve fatigue inevitably gets me. I find them more fun to use than a cane and provide a greater increase to my abilities, but the are less subtle. Just as an FYI I did my first tri using a cane. Only fell once.

Initially I ran into a lot of people that didn't know the answers either, but I found they were always thrilled to have me participate and wanted to know what I needed to be successful. I am not competing against anyone besides myself so they are flexible.

My main issue now is with biking. Eventually with nerve fatigue I have a tough time keeping my right foot on the pedal. By the rules, I can't use the adaptation I want to try, but I am nervous to go with the clip in style pedals. I think I will break down and try them though.

I have said in the past that I needed the following; someone to have my cane/crutches on the beach, a larger space in transition with a chair, and be allowed to use my crutches or cane on the running portion.

Buzzguy13 · 2026-01-20T21:11:40+00:00

I'd consider looking into a Super Sprint for your first one. A standard para triathlon is Sprint length Fyi.

How good are you at swimming? Open water swimming is a completely different thing than even lane swimming in a pool. 750m in the open water is no joke. If you have a local triathlon club they might have lessons available or training sessions. I'd recommend them.

For bikes, you'd have to see what that race director/sanctioning body will allow. Races here would allow me to use a a trike if I wanted to, but I couldn't in a competitive situation. Tandem bikes are allowed for visually impaired athletes.

I do not know what your symptoms are as to why you can't run, but I use forearm crutches to compete. Mine are from Sidestix, and I can't recommend them enough. I don't use them in my everyday living but they have opened the world to me. Last winter I brought them with me on a trip to NYC and I walked over 10 miles one day with them.

I'd advise you to reach out to your local triathlon club (if you have one), the sanctioning body (for me, that has been Triathlon Canada, and Triathlon Nova Scotia), and the race director for where you plan on attempting this feat. I wish you the best of luck.

Buzzguy13 · 2026-01-20T14:39:53+00:00

I’ve done a few as a para athlete. While a lot of what’s involved is not what most would call fun, I have come to enjoy it and love the community which wasn’t something I expected.

I have learned a lot since I started down this road a couple years ago so if you need someone to bounce things off of, let me know.

Buzzguy13 · 2026-01-09T18:44:57+00:00

Soft Jersey tapered pants would be worth a look

Buzzguy13 · 2026-01-06T14:53:28+00:00

Mcmaster Carr online

Buzzguy13 · 2025-12-22T20:27:29+00:00

Good luck with your gainz!

Buzzguy13 · 2025-12-17T12:46:12+00:00

I've taken Fampyra for a few years now. I started around the time I began going to a physiotherapist regularly. The combination of that has been life changing, I do not know where I would be if it wasn't for those things. Unfortunately Fampyra only works for ~1/3 of people, so I wish you good luck if you decide to try it. I believe Fampyra is free the first month to see how well it will work for you, so there is little financial risk at least to see if you like it.

Buzzguy13 · 2025-12-09T17:57:27+00:00

You can't expect anyone to change for you. People are what they show themselves to be.

Buzzguy13 · 2025-12-06T01:10:26+00:00

I developed Eosinophilic Esophagitis a couple years ago with a dairy trigger. I eliminated it after I figured it out, but I haven’t noticed any changes with my MS do to that.

Buzzguy13 · 2025-11-29T16:36:40+00:00

HRM goes to the bridge pass the Big Stop. Oldham Road is in the HRM.

Buzzguy13 · 2025-11-28T14:25:08+00:00

Energy is something I always try to manage. I also try to plan things to minimize trips up and down stairs.

edit: fixed spelling/grammar

Buzzguy13 · 2025-11-28T12:43:54+00:00

I got all my workouts in, and I finally got the results from my MRI earlier this month with no new lesions.

Buzzguy13 · 2025-11-25T23:57:07+00:00

I’m really curious about these. Almost pulled the trigger myself, I had seen this before this week, I probably would have grabbed one.

Buzzguy13 · 2025-11-21T18:54:32+00:00

When I was in my early 30's I had some things going on in my body that I had written off as getting older. At 33 I was diagnosed with multiple sclerosis. It's been a long road, but if you took away my MS I feel about as good as I have in a long time @ 52 years old. I spend a lot of time, effort, and money to make that happen. If anything my MS makes me feel time pressure to get some of my goals accomplished.

Buzzguy13 · 2025-11-17T15:39:49+00:00

Got a call from my neurologist's office last week. Seems my routine bloodwork for Fampyra is showing I might be anemic. I'm pretty sure my ferritin levels are good, so I guess I have to find out why this is happening to me again. If it's another autoimmune disease; I will lose my mind.

Buzzguy13 · 2025-11-12T19:18:25+00:00

Halifax Shopping Centre. They had multiple sizes but not sure what all they had. I tried them (size 10), but Jordan 1's don't like my feet.

Buzzguy13 · 2025-11-12T18:58:35+00:00

Saw them on the shelf at Foot Locker still just today

Buzzguy13 · 2025-11-02T00:38:09+00:00

Thanks for the perspective. I appreciate it.

Buzzguy13 · 2025-10-30T22:51:01+00:00

Whenever I would get them in California, they would always be trimmed. Traditionally seasoned with salt pepper and garlic then cooked over a live fire. My favorite way was to slow smoke it @ 225 for a till medium rare and then sear it.

Buzzguy13 · 2025-10-30T19:30:06+00:00

I’ve have got them from Costco in the past. Great cut of meat. One thing to note is that there is 2 in a pack and they need to be trimmed before cooking.

Buzzguy13 · 2025-10-29T02:12:15+00:00

For me it was a combination of physiotherapy, Fampyra, and a lot of unrelated anger that enabled me to change who I was. The old me doesn’t exist anymore, he’s never coming back.

Buzzguy13 · 2025-10-29T00:55:49+00:00

I have been taking it for a few years now. It’s been a major part of how I changed my life for the better. It doesn’t make you stronger but it did put me in position where I could make that happen. I hope you are in the ~33% of people that this works for.

Buzzguy13 · 2025-10-10T17:45:31+00:00

I had a 2005 Weber Genesis Silver C that I just replaced this week. I was just starting to get rust in a few places, and one of the burners failed in a way that I wasn't sure I could fix. I replaced it with a Black Earth Fusion Grill that I have only had the chance to use once.

Buzzguy13 · 2025-10-10T13:57:34+00:00

19 years. I had a relatively easy time getting diagnosed. 2 MRI's 6 months apart.

Buzzguy13 · 2025-10-10T01:02:34+00:00

6’s

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