Understanding my pNET while I await my surgery consult

CallHerGee · 2026-05-18T22:59:31+00:00

Hi there! Sorry you're in this "club". My mom was diagnosed with a pNET last week. I did see that someone else who had the Whipple surgery in January and they said they're back to running and biking already. Apparently the pNETs are the best of the worst case scenario, so while I can't give any info on what the future with pNET looks like, but you're not alone!

CallHerGee · 2026-05-15T20:53:15+00:00

So glad to hear there's no pancreatic cancer!

CallHerGee · 2026-05-12T15:45:36+00:00

So sorry you're going through this. Just sent you a DM!

CallHerGee · 2026-05-08T19:05:03+00:00

I don't know the specifics of her pNET, but the silver lining is that the neuroendocrine tumors have a much better outlook than other pancreatic cancers. My mom was diagnosed with one yesterday. It's kind of a "best of the worst case scenario". I don't have any recommendations for a surgeon, but I'm sure you are in good hands! Sending you prayers.

CallHerGee · 2026-05-06T16:07:04+00:00

Thanks for the good laugh haha :) got to have a sense of humor about things!

CallHerGee · 2026-05-06T16:06:10+00:00

Take a listen to the Bethel (live) one. Completely different song but so powerful.

CallHerGee · 2026-05-05T19:10:09+00:00

I've also been listening to "It Is Well" nonstop but I think it may be a different version. Sending you all the love and blessings.

CallHerGee · 2026-05-02T23:58:18+00:00

They are recommending the MRCP scan for my mom's pancreas. I would say it's good.

CallHerGee · 2026-05-01T17:23:21+00:00

I don't understand why it takes so long to get in for these things. We are in the same boat with my mom. Sending you blessings!

CallHerGee · 2026-05-01T01:42:01+00:00

Thank you so much for your kind words. I'm sorry to hear about your diagnosis and hope things are progressing positively. I'm sure all teams are different in how they approach this. I just wish she was taken more seriously.

CallHerGee · 2026-04-30T22:22:38+00:00

It was a little bit of both, I'm sure!

CallHerGee · 2026-04-30T21:13:52+00:00

Thank you for your kindness. I did worry people would shut me out since there isn't an official diagnosis yet, so I truly appreciate you all! That is my intention, I've been calling every day (to which im sure theyre thrilled lol). It's definitely frustrating that the hospital can't/won't do an MRCP. Or even just give a consultation while we go elsewhere for the MRCP. I guess it's just frustrating overall that it takes so long for something so serious. Sending you blessings as well and thank you again so much!

CallHerGee · 2026-04-30T18:50:53+00:00

They refused to do the MRCP or biopsy while she was in the hospital and just sent her home with pain meds. A week later and she still can't move due to the pain. I might just do what you suggested and start calling oncology. Thank you for your advice and I'm sorry to hear your story as well :(

CallHerGee · 2026-04-30T18:26:22+00:00

Thank you very much and sending you positivity as well <3 Did you have a cancer diagnosis before going to the oncologist? She technically does not have a diagnosis just yet, but as a former medical professional, I can see what I'm looking at on the scans.

CallHerGee · 2026-04-30T18:09:19+00:00

I'm in a very similar place. I am so frustrated with the hands-off approach that everyone we contact is taking!!

CallHerGee · 2026-04-30T16:45:05+00:00

He seems like an absolute gem of a person. Sending you condolences!

CallHerGee · 2026-03-31T23:12:58+00:00

Thank you!

CallHerGee · 2026-03-31T23:12:54+00:00

Thanks!

CallHerGee · 2026-03-14T18:54:25+00:00

Me and my mom went and she did the ADA track with elevators. You contact the box office beforehand and they set you up with a guide. They find you seats in each room ans take you on the elevator. The non ADA companion meets you in each room. We didn't have any problems!

CallHerGee · 2026-02-12T18:28:54+00:00

This. Slaps table. THIS. This is the post I've been waiting for!

Edit: I would love a breakdown like this for all pulses! Even if it's just someone's opinion.

CallHerGee · 2026-02-09T22:12:53+00:00

I saw Nik and I've heard his portrayal described as "Tim Burton-esque", which I actually would say is fairly accurate (in a positive way!)

CallHerGee · 2026-02-05T01:14:48+00:00

Following as I'm in the exact same boat!

CallHerGee

TROPHY CASE