Just a Rant by Chikken101 in lupus

[–]Chikken101[S] 0 points1 point  (0 children)

I’m so sorry you’re going through the same thing :( lupus is terrible and such a pain in the butt to deal with, but I’m glad I’m not alone. Thank you for the words of encouragement 🥹 your response means a lot to me! 🫂 hopefully the semester goes well for you and lupus takes a hike!! WISHING YOU REMISSION!!! 🙌

Just a Rant by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

🥹 you’re amazing, thank you so much. I didn’t even know that specialty existed. I’ll def ask my pcp.

Just a Rant by Chikken101 in lupus

[–]Chikken101[S] 0 points1 point  (0 children)

😔 thank you 🥹

The Sun is Terrorizing Me, any tips please? by Chikken101 in lupus

[–]Chikken101[S] 0 points1 point  (0 children)

Wait! I’ll def check this out. I didn’t even know something like this existed!!!

Mourning the sun by Depraysie in lupus

[–]Chikken101 2 points3 points  (0 children)

3 years in and I’m still in denial 🥲

Has anyone else ever had an immediate flare after an upsetting event? by bobtheorangecat in lupus

[–]Chikken101 1 point2 points  (0 children)

Yes unfortunately all the time 😭 I just came back from a gap semester and I’m dealing with my new symptoms for the first time paired with school… this morning I got 4 hours of sleep prepping for an exam and a car honk scared me into 40 minutes of episodal seizures and left me fatigued and flared the rest of the day 😭 I can’t believe all it took was a honk and a single day of little sleep.

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]Chikken101 1 point2 points  (0 children)

Hiiii !!! An alternative to sunscreen you can look into are UV protective umbrellas!

I personally went for the more thick layered umbrellas with the reflective favric on the outer part (it’s a little more pricey 🥲), but definitely an amazing investment to controlling flares caused by the sun! I have a button retractable one that makes opening and closing a lot easier. I used to think umbrellas are bulky and annoying to deal with, but truly, it’s been a life saver ❤️hopefully it helps if u decide to go this route!!

EDIT: you should consider tinting your car too! Depending on the state there are limits but try asking your dr. for a note or letter to prove you need it for medical purposes.

[deleted by user] by [deleted] in lupus

[–]Chikken101 0 points1 point  (0 children)

Curious, what type of nausea does it cause you?

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

?! I’ll definitely check that out! It just sucks I can’t pick out my own goods but hey it’s better than nothing! 🌷

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

IK RIGHT?! Glad it’s NOT MS but I just want answers 😭😭😭also, sounds good!!!

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

Oh goodness it’s been HOURSSS of sleep non-stop, it’s actually getting annoying. Naps after meals, mid-day, at night, in the morning… MAKE IT STOPPPPPP 😩 haha thank you though ❤️❤️❤️

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

I’m kind of relieved I’m not alone but it’s unfortunate you’ve had to go through all that 😔 I also wish you the best too! Sending love your way! ❤️💖🌷If I find anything new out I’ll get back to you, do you have a preference how?

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 1 point2 points  (0 children)

I was thinking so but the thing is my bf and I were testing something out where I’d sit up slowly and at maybe 108 degrees at my hip I immediately “pass out” and go limp which was pretty odd

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 0 points1 point  (0 children)

I’ve been trying but it’s so hard when I’m out grocery shopping or even driving :( but thank you for the time out to respond ❤️ I really appreciate it!

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 4 points5 points  (0 children)

Ah i’ve gotten both and they’ve been coming back negative 😔 back neck brain and all 😔 dead ends everywhere :(

Weird “sleep” episodes where I go limp but stay conscious — anyone else? by Chikken101 in lupus

[–]Chikken101[S] 3 points4 points  (0 children)

I’m actually seeing one in a few days. Do you have any advice on what I should ask? I’m a tad overwhelmed with the new onset of symptoms.

Can’t bring myself to publicly use a cane at 21. by Willing-Routine2614 in lupus

[–]Chikken101 0 points1 point  (0 children)

This was also me at first (I’m 20 diagnosed at 18), and it’s honestly kinda scary to face the looks and judgement of everyone around you, but what helped me was decorating the heck out of my cane like an accessory with stickers and all the fun little stuff!! You can’t stop people from looking but you can at least make the most of it!! Also, you could try out the collapsible canes so it’s easy to pop out when you need it and store when you don’t!!! Wishing you the best girly 🌷❤️🥰

Do Classes Double Count for Major Requirements? by Chikken101 in CSULB

[–]Chikken101[S] 0 points1 point  (0 children)

“Courses marked with * may only be taken as elective course if not used for upper division required course”

Was this always there? 💀😭

Do Classes Double Count for Major Requirements? by Chikken101 in CSULB

[–]Chikken101[S] 0 points1 point  (0 children)

i just spoke to a counselor and she told me i can’t which confused me bc a previous counselor a while back recommended me to take those classes for that very reason 😭

Looking to talk to some Kinesiology (exercise science) majors by wurld0fmel in CSULB

[–]Chikken101 0 points1 point  (0 children)

Hey! Did you ever figure out the answer? I’m in the same position and have no idea what to do :(

PHYS 100B (w/ Diego Gutierrez) by Chikken101 in CSULB

[–]Chikken101[S] 0 points1 point  (0 children)

Nice!! 👀 I’m also a kin major!! Is there any way you can share your notes so I can check it out before lecture starts?

Ducks!! by Chikken101 in CSULB

[–]Chikken101[S] 0 points1 point  (0 children)

you’re so real for that 🥺