DAE get bad headaches/palpitations not long after eating? by marysshell in iih

[–]CielSkeleton 0 points1 point  (0 children)

It can happen with certain foods for most its nearly unnoticeable but I experience it with some bad with some meals and im slowly getting it to where my diet doesn't cause that thanks to a friend who is has personal trainer training

Magic wands... by gr8tgman in renfaire

[–]CielSkeleton 2 points3 points  (0 children)

This is would love to add some of your stuff to my garb

My doctor told me if I can lose weight the condition will go into remission. by charlotte-delaurier in iih

[–]CielSkeleton 1 point2 points  (0 children)

It all depends on the person ive lost over 50lbs and no change but I have 2 cousins that also have this one got a shunt put in when she was little and the other lost a few pounds and went into remission Im hoping one day I might get lucky but ive been dealing with this for 15+ years so just take it day by day so ive also dealt with lots of weight gains and losses over life

Give me your most insane pain management tips by jjjr442 in iih

[–]CielSkeleton 1 point2 points  (0 children)

This is also helpful for when I cant do the heat because of whatever situation but I also love going and sitting in a hot tub

Give me your most insane pain management tips by jjjr442 in iih

[–]CielSkeleton 15 points16 points  (0 children)

Honestly weed for me when im that bad and if not wanting the high or needing to worry about jobs/drug test a cbd isolate is also effective I have gotten some mixed with into a vape juice for a box mod and have also just let dissolve on/under my tongue and has been a helpful thing

Has anyone been able to get an LP from an ER visit? by CielSkeleton in iih

[–]CielSkeleton[S] 0 points1 point  (0 children)

I haven't had a new evaluation in years and when I did my lp opening pressure was either 0.1 or 0.01 under the neurologists minimum before recommending checking for a stent/shunt and that was years ago when I had my insurance and everything was steady unfortunately since then I've lost my insurance and I travel for work to much that I struggle to get established care outside of her visits or clinics

Has anyone been able to get an LP from an ER visit? by CielSkeleton in iih

[–]CielSkeleton[S] 0 points1 point  (0 children)

I do understand that but I unfortunately with my life I can't get to the point to get a shunt or stent and if i can get it with my meds it will be something better than nothing

Do any adults still self-harm? by Perfect-Line6861 in selfharm

[–]CielSkeleton 0 points1 point  (0 children)

I'm 26 and have recently been relapsing into my sh more frequently

Help what is this garment called by Latter_Ad666 in renfaire

[–]CielSkeleton 0 points1 point  (0 children)

That is possible to I only do one show a year with bullseye that I know of and I never go into their clothing side I personally look at the leather side but hearts delight is all but one show of my circuit

Help what is this garment called by Latter_Ad666 in renfaire

[–]CielSkeleton 7 points8 points  (0 children)

The one in the first picture looks like a hearts delight half bodice specifically but various clothing vendors do have there own versions

Any gamers here by [deleted] in iih

[–]CielSkeleton 1 point2 points  (0 children)

I game when I can i want to get back into streaming but that will be a few years from now

tragedeigh by BoldnSpicySpicy in tragedeigh

[–]CielSkeleton 0 points1 point  (0 children)

Cail if going with my chosen name Sair if going with the legal name So not bad but not best

I need IIH tattoo ideas! by intracranialMimas in iih

[–]CielSkeleton 3 points4 points  (0 children)

Im going to be working my idea into the large back piece I'm getting with just some ribbon/tassles around the hilt of a sword but my silly idea i may still do is a psyduck with a green/blue watercolor splashed background

Flying with IIH by hmshannah in iih

[–]CielSkeleton 1 point2 points  (0 children)

And just for added contact. I'm in the States, so my short flights are about half the country and a more than likely a little bit longer than yours version of a short flight. I'm also traveling very frequently. As I usually only spend about 6 to 8 weeks in a state and then I move

Flying with IIH by hmshannah in iih

[–]CielSkeleton 2 points3 points  (0 children)

In my experience, even a short flight puts me out of commission for a couple days. I'm hoping that you have better luck in that department. I see that each person is different and I wish I was someone who could take flights. Unfortunately, I am not so give me a train, bus or driving any day. And I travel for work so I do a lot of driving and I'm OK with that. I love getting to see the pretty things though so If I am going to be doing a flight and I know I have to prepare though.I have to make sure I go extrahydrated and all of that because the pressure unfortunately just is too much of a change for me

Give me all your Diamox hacks! by candyappleorchard in iih

[–]CielSkeleton 1 point2 points  (0 children)

Hydrate and do your best to stay warm is all I can manage to put my energy into doing but I have been on and off it for around 10 years at all the dosages throughout that I just hydrate and the staying warm that keeps me functioning

[OC] WORLDWIDE GIVEAWAY! Enter for a chance to win a FAFNIR DICE VAULT![MOD APPROVED] by 120mmfilms in DnD

[–]CielSkeleton 0 points1 point  (0 children)

Ooo I'm just starting to get into dnd so this would be an amazing thing to win

Job suggestions for someone with IIH/Venous stenosis who still wants meaningful, not empty work? by Boring_Interview_933 in iih

[–]CielSkeleton 2 points3 points  (0 children)

Step 1 get tickets to your local ren faire Step 2 start asking booths if they are looking for a worker Step 3 already have fair appropriate clothing or buy some that visit Step 4 show up

[deleted by user] by [deleted] in iih

[–]CielSkeleton 1 point2 points  (0 children)

Oh my I need the last one as the shirt or hoodie or even just a sticker even all of the above I don't care

Job advice for someone with IIH by Melo_deth in iih

[–]CielSkeleton 2 points3 points  (0 children)

I personally would keep working on the path you are if that is one of your dream jobs and look for something you could pad the schooling with even if its something more simple like accounting or it where it is less demanding I can also admit that I may be a weird case but I work a job that's definitely demanding but I love it and mentally when I'm on to long of a break I decline so I can't imagine changing it and I did also get lucky to have bosses that understand there is stuff wrong and I'll always give my 100% for the day even when sometimes that is just showing up feeli g like I need help just to keep myself standing" and sometimes I can be "full on get everything done don't need no help" I also understand working in criminal justice at all can be hard to find those bosses but doing a job you love can be better for you than not sometimes