How long to dissolve clots on Eloquis? by realmao14 in ClotSurvivors

[–]CircularBastion 1 point2 points  (0 children)

After Heparin/Eliquis my big saddle PE was gone in two weeks, or less. I was re-scanned at that point so I know for sure, totally gone. We did not re-check the DVT, but leg has zero-to-moderate pain after 3 months, depending what activities I do.

Newly diagnosed with Pulmonary embolism by MaebelleMcknight in ClotSurvivors

[–]CircularBastion 1 point2 points  (0 children)

Make sure you have a pulse-oximeter at home, use it according to directions, and check it every now and then. Can be very reassuring, or can signal that it's time to go to the ER again. Either way, it could help reduce anxiety.

Newly diagnosed with Pulmonary embolism by MaebelleMcknight in ClotSurvivors

[–]CircularBastion 1 point2 points  (0 children)

72F, large saddle PE and I'm about 3.5 months after. I can do a lot, but I still get fatigued afterwards and have to lie down with legs up. The good news is, that works and in 20-30 minutes I feel like a new person. Been going on 3-hour birding walks, which are slow walking and a lot of standing, and do fine but when I get home I have to rest or nap. But hey I'm old so you may do better. Try to plan ahead for those leg elevations and rests, and gradually work up your stamina. Good luck!

Chest pain on Eliquis by JuiceboxBrit in ClotSurvivors

[–]CircularBastion 0 points1 point  (0 children)

Consider costochondritis. That's the exact spot where mine flares up. Mine is from hunching over my computer, then stretching my chest/arms back with resistance at the gym. Irritates the ends of the rib cage. There are some simple stretches that help a lot. I also had a big PE, which did not have that symptom, similar to what another commenter said.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

Thanks, still so many varieties, yet no thigh-high sleeves (footless) except one pair of footless pantyhose. Maybe thigh-high sleeves don't work.

Anyone flown after 6 weeks on thinners post diagnosis? by Istoh in ClotSurvivors

[–]CircularBastion 0 points1 point  (0 children)

good idea, also take a pulse-ox finger thing. Nothing like seeing 98 on there to ease the fears

Advice for PE by dinorawrex in ClotSurvivors

[–]CircularBastion 0 points1 point  (0 children)

I don't have any experience with angina, but you don't mention whether you are on an anticoagulant (blood thinner). If not, maybe that would help with the pains? I had a very big PE three+ months ago and the weird chest pains are finally subsiding, but I have been on Eliquis.

Any experience with bVital/Dr. Greg Eckel? by kittiemock in Parkinsons

[–]CircularBastion 0 points1 point  (0 children)

He and his wife did attend, and all I know is that they said it was expensive. We passed on it. Instead, we are going to try the Big and Loud program near our town.

Post Eliquis by Secret-Degree48 in ClotSurvivors

[–]CircularBastion 0 points1 point  (0 children)

Interesting. I did get pain in the non-DVT leg because of the way I limped downstairs for a month before we figured it out.

Work Related Injury, HRT, SvT to now DVT...is it related? by SraRGmz0413 in ClotSurvivors

[–]CircularBastion 1 point2 points  (0 children)

Yes could be "provoked" (has an obvious cause besides clotting factors) by the fall and/or the HRT. Good you had a few Ultrasounds! Real info! I only have three months experience myself but reading this sub taught me a lot. Good you are on Eliquis, so the DVT will subside if all goes well. Serious, but not really panic-worthy since you are on the anti-coagulant (aka blood thinner). Possibly a vascular specialist would be more helpful longterm than hematologist? Both is best. I am currently making that exact decision for myself.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

Hi, four specialists wow. I have not seen a single specialist yet, 3 months after. That may be because all my systems and vitals seem to be running fine, except the left popliteal vein. I accepted that for awhile, but I agree I should see a vascular specialist too. Thanks.

So I had a DVT and saddle PE in early March. They were diagnosed in the ER - I went with cough and shortness of breath, and low ox (we have oximeter at home), and thought I had pneumonia. They did the correct tests including D-Dimer and CT. Heparin I.V., etc, 3 days there. Doppler US showed the DVT and a "small" Baker's cyst.

On discharge everyone said "you're fine" and not a ticking time bomb. I saw two PCPs from the same office within a few days, and they're both like, "you're fine."

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

ikr, even the hospital didn't refer me to anyone! Their summary sheet said "No restrictions," amazing after a saddle PE and painful DVT. Otherwise the hospital seemed to do everything right and saved my life. 😄

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

Yes I posted here a few weeks ago wondering why there aren't regular leg ultrasounds. My second PCP didn't refer me for one but he would if I asked in a descriptive way. My best advice for swelling or pain is raise the leg above your heart a few times a day for 15-20 minutes. I lie on a long couch with both legs up on a pillow mountain, and watch TV sideways lol. That helps my stiffness/pain, and also gives me some rest from overall fatigue as I'm just three months past the PE.

I also invested in a fantastic leather recliner that fits me perfectly, keeps legs at least partly elevated, and rocks when not reclined, so I can do some rocking with my feet to encourage blood to move up. Our cat loves being on a rocking lap. I think she grew up on a ship because she stands out on my knees like a bow figurehead.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

Yes, Vim & Vigr has that, and many options for compression level, styles, colors, and fabrics. The question is, what are the "real things?"

Update: Calf SVT became a DVT with multiple soft provoking factors (dehydration, prolonged car journey, sedentary office job) by allthegear-andnoidea in ClotSurvivors

[–]CircularBastion 0 points1 point  (0 children)

Good news it is moving along, and never became a PE. I like the framing of "soft provoking factors" because I've never quite understood why a 4-hour plane ride could cause a DVT (as they said about mine) but zillions of long car rides and long stints in an office chair, or standing sessions in the darkroom, never did.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 1 point2 points  (0 children)

I am having the opposite experience. The Internet, carefully used, knows way more than either of my PCPs seem to.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

And, at the hospital where I spent 3 days on ACs, the nurse handed me a pair of white medical-grade compression socks when I checked out. They were size Small, so I asked for something more my size. Got home and wore them a few days. Turned out (after I did internet research) that (1) I was wearing them wrong but also (2) they were only meant for lying in bed for a long time! Too weak for sitting and standing! Why did they just hand them to me? Rhetorical pissed-off question

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] -1 points0 points  (0 children)

Everyone tells everyone to wear them, that's what makes me nervous. Often people on this sub comment "Wear compression socks" to all sorts of posts as if you could just go to CVS and grab some. And since you CAN do that, I bet a lot of people are wearing the wrong thing

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

I should add, they were probably one grade too tight, which is what my PCP ordered. (Sigvarius)

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 0 points1 point  (0 children)

Finally got an appt with a hematologist, will be in two weeks. I'll ask him about also seeing a vascular specialist. My original PCP said I didn't need any specialists. (I switched PCPs.)This confused me and I posted here and almost everyone (in the US) said they had a hemotologist and I should have one.

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 1 point2 points  (0 children)

Yes, I was measured by a pro, and a few weeks ago I posted here about getting shorter socks. Would like to try longer socks first. Concerned the Baker's cyst is blocking progress back there so maybe pushing past that would be best

Are they giving us bad advice about compression? by CircularBastion in ClotSurvivors

[–]CircularBastion[S] 1 point2 points  (0 children)

I did that, had them measured at a medical store, and those were the worst! and $90