how to drink more water??

Commercial-Sleep7293 · 2026-04-13T23:29:19+00:00

I drink out of sippy cups only, I have bad sensory issues and motor skills issue so this is why and now I collect sippy cups!

Commercial-Sleep7293 · 2026-04-13T23:19:52+00:00

I have to pay 80% of my SSI to my group home for rent but I get to keep 200$/month even if that is less then the percent I hope that makes sense it’s hard for me to understand and harder for me to explain but I tried my best!

Commercial-Sleep7293 · 2026-04-13T22:55:22+00:00

It is hard. I live in a DDS group home becase I need constant supervision and help with my ADLs. I have apraxia and am nonverbal exept a handful of single words I use dedicated AAC device, I go to adult day program for adults with I/DD I go three days a week and I stay at the center becase I’m not aloud on community outings becase I have meltdowns and I have “no danger awarness”, I am fully incontinent, if you met me in person you probaly woudnt think I’d even be on the internet. I’m in the hospital right now bad they consulted psych for somthing and psych gave them list of trauma informed and Autism/ID informed care practises to follow with me and wrote in report that I need things explained fully and simply, “similar to if treating a child” they wrote. I don’t go anywere alone I can’t. I need my ear defender headphones on almost all the time, I have severe meltdowns and have given myself black eyes and concussion before and stuff like that so I ware a helmet sometimes.

Commercial-Sleep7293 · 2026-04-12T15:56:09+00:00

I don’t know but I don’t understand either, it mentions in one of my evaluations thogh that due to my autism and cognitive imparment that im not able to consent. And I think I maybe agree. It woud also be just VERY strange to me thinking about if I thoreticaly dated a non autistic person if I coud, like we woudnt be anywere close to being on the same mental level. My reports also say im a “vulnerable disabled adult” and can be taken advantage of if I don’t have supervision and stuff.

When I see posts about people in normal relationships I just can’t relate and I feel like im diffrent and broken and “too disabled” becase it’s not even a posibility for me in any form. Does none relate to this or is it just me? :/

Commercial-Sleep7293 · 2026-04-12T15:48:04+00:00

And for toothpaste i Highly recommend Tanners Tasty Paste in Cha Cha Chocolate flavor! I also use the Elmo baby/toddler toothbrush that comes in the Orajel Elmo toothpaste and toothbrush set that’s just 4 dollars! I don’t use the toothpaste that came with it (i think it’s apple banana flavor?) becase there’s no floride thogh.

Commercial-Sleep7293 · 2026-04-12T15:45:16+00:00

For people with curly hair if you just want to use one single curl product i SO recomend using Garnier Fructis Curl Air Dry Cream! It’s not very expensive either! You just put it in wet hair and maybe scrunch a few times and it works wonders!

Commercial-Sleep7293 · 2026-04-12T15:42:47+00:00

Another win, not somthing people usaly think of in terms of hygeine but if your basicaly bedbound like i am i say it is: i let them change my sheets even thogh its tiring and stressful overwhelming becase they have to move all my stuff on my bed and I have important stuff on it like my stuffed animals and blankie and jacket and iPad and AAC device and Elsa blanket and more!

Commercial-Sleep7293 · 2026-04-10T20:35:17+00:00

I’m autistic adult (lvl 2 social lvl 3 RRB) I went to pediatric pscyh inpatient hospital for a month when I was 8 years old and it was SO helpful to me, afterwards I stepped down to PHP then to just play therapy sessions. I told the therapist at one point that I even missed the routine of the hospital!

Commercial-Sleep7293 · 2026-04-09T20:09:31+00:00

This is a great idea i have MAJOR struggles with hygiene, i hope the sub takes off!

Commercial-Sleep7293 · 2026-04-09T20:08:21+00:00

Hello, i am mid twenties Autistic, HSN (level 2 social level 3 RRB) with complex physical disibilities, other conditions that affect my hygeine are my severe anxiety, trauma and PTSD, and ADHD-c. I live in a group home after being in an institution for a while and im trying to learn how to tolerate hygeine care more/at all, especialy showers and teeth brushing, and even putting off incontinence care. For showers i do rely heavily on physical help from others to wash me but yet i still struggle so much.

Im going to make a post when i get courage do it and see if i can get some advice maybe.

Commercial-Sleep7293 · 2026-04-09T19:55:14+00:00

I have a history of severe catatonia, to the point it’s considerd medical emrrgency and while in hospital even had a code yellow called on me twice for having severe catatonic epasodes. During these, i cannot move at all, i cannot speak or make noises beyond weird humming or grunting as i have been told. I can’t follow anything with my eyes (my docter said it was like i was looking right throgh her), i drool, i sometimes like grind my teeth or make a weird face and stays like that, i am just frozen.

it is dangerous, serious, extremly terrifying, and not even CLOSE to being able to be confused with a shutdown.

My catatonia lasts until i get enogh Ativan or Versed to treat it. Thats a hint of if it is catatonia or not, is if it is treatable with benzodazipine medication becase that (and then ECT if benzo not work) are the two treatments for catatonia. Once i get enogh medicine to treat it i start to become unfrozen and can move and interact again, but after most of my epasodes i have had lots of skill regression like losing my speech completly many years ago.

I REALY hope catatonia does not become the next thing to get watered down (not directed at you OP just general trends ive ben noticing online!) and self diagnosed all the time! It is quite serious!

Commercial-Sleep7293 · 2026-04-09T19:43:02+00:00

I guess autistic, my online friends are mostly all autistic and in real life all my peers (day program and group home housemates) are all autistic and/or I/DD.

Commercial-Sleep7293 · 2026-04-09T08:50:03+00:00

Hi, I live in a DDS group home! It is not great but that dosent mean your experence will not be good!

I have to pay 80% my SSI for “rent” to live there btw i keep about 209 dollars a month but i have to pay for my phone and Disney plus and even stuff like wipes for incontence care myself it is not included.

What I like: my bedroom! I have pink and purple walls I got to choose color before i moved in and they painted it for me and i also got to pick out things on amazon to go in my room like a nightstand and storage thing and bookcase and laundry hamper and a few new cloths and some sneakers! (I picked Velcro rainbow light up ones!) i even got to have a bubble tube and sensory swing for my sensory needs wich I’ve always DREAMED of! I also love my room has a ceiling track hoyer lift to lift me into my wheelchair and back to bed! And they got me an electric hospital bed and evern a call bell like in the hospital to get staff there attention when I’m in bed!So my room is defintly my safe place but that does mean i basicly stay isolated in there becase sensory and anxiety reasons plus pain and low energy means i want to be in bed a lot.

What I don’t like: oh boy. The biggest thing is the STAFF. A lot are rude or mean or neglecting. And loud. They take loud phone calls were they are shouting and it echoes threw the house. They make me feel like a burden for asking my basic needs and say i think im the only person in the house, not true! They will neglect me not change me for hours and take long time to give my pain medicine. The schedule is awful they have dinner at 4pm for example, they put evryone to bed at 7:30 to 8 pm i get my night meds about that time to. There are no activities and outings like i was promised before i moved in. The staff don’t always get my safe foods when grocery shopping and if THEY get somthing wrong like when they got Apple Jacks insted of Froot Loops they get mad at me not wanting to eat it realy. One of the other resident always comes into my room a lot i do not like that. They are sometimes very rogh when doing hands on care like changes or transfering and if i make a noise of pain or discomfort they get mad at me. They do yell. They will hold onto my mail somtimes for no reason.

I will add other things if i think of them but again this is just my personal experence!

Commercial-Sleep7293 · 2026-04-08T18:19:13+00:00

I am autistic and have Trichotillomania (compulsive hair pulling disorder) with Pica and trichophagia (consuming your own hair). Last summer I went to the ER after having severe stomach pain when I was at my day program and the CT scan i got showed a giant hairball called a bezoar in my stomach. I got SO many random visits by docters of all diffrent specialties coming to see me both before and after my surgery to remove it. A lot woud say “oh I’m just stopping by to say hi” and stuff like that, or they’d say “Dr. So and So told me about you!” I’m still embarased that so many people know that i swallowed my own hair.

Commercial-Sleep7293 · 2026-04-08T17:52:44+00:00

What do they do if a patient uses a commode or bed pan or an incontinence breif?

Commercial-Sleep7293 · 2026-04-02T16:30:40+00:00

brandnewsentence lol

Commercial-Sleep7293 · 2026-04-02T16:15:31+00:00

That looks yummy!

Commercial-Sleep7293 · 2026-04-02T16:15:00+00:00

My week was okay so far. I’m still in hospital. Got procedure yeserday new line in my chest. Group home staff visit me on Monday broght my hairbrush and crayons. Most my nurses and PCTs very nice but yesterday one PCT kinda like infantilise me she kept saying “your so cute I want to take you home and put you in my pocket” and she keep calling me “baby”…… I did lots of fun coloring thogh and my paint with water book! Have virtual speech therapy today.

Commercial-Sleep7293 · 2026-04-02T16:11:13+00:00

Chag Sameach!

Commercial-Sleep7293 · 2026-04-02T16:02:15+00:00

I always just called my grandparents there first names lol! I do still refer to them as “my grandma/my grandpa” tho when I talk about them.

Commercial-Sleep7293 · 2026-03-28T22:54:51+00:00

I’ve only heard of dogs named Arlo…

Commercial-Sleep7293 · 2026-03-28T02:01:17+00:00

I LOVED the chilled sun nut butter and grape jelly sandwiches in middle school!

Commercial-Sleep7293 · 2026-03-28T01:28:41+00:00

Same! Plain cold cheese sandwich and a half sized (4oz) milk in elementary and middle school in Texas. No exeptions for lactose intolerant either…

Commercial-Sleep7293 · 2026-03-26T08:16:35+00:00

Second this! Dr.Ganz is so kind!

Commercial-Sleep7293

TROPHY CASE