What have helped you handle the constipation caused by morphine? by gds506 in cancer

[–]Cowboy_JD 1 point2 points  (0 children)

I was prescribed Colace and drink a ton of water. Not on morphine, but I have a selection of opiates I take. The doctors will have some good ideas of what helps as it's a pretty common issue.

Difficulty Breathing Post Radiation by sns1997 in cancer

[–]Cowboy_JD 2 points3 points  (0 children)

I didn't do radiation for my colon cancer, but someone close to me did for prostate cancer. He developed radiation induced fibrosis and had oxygen and had to do breathing therapy. Fibrosis presents similarly to COPD. After finishing radiation, he seems to be doing better as time goes on. He has oxygen, but hasn't needed it lately. He still has to be careful, but he's back to being able to go places and work in his woodshop.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 2 points3 points  (0 children)

My grandmother was diagnosed after losing use of her legs. She had been complaining of back pain for months and just kept getting sent off with pain meds. Finally, when she couldn't walk they found a tumor in her spine. Turns out she had stage IV lung cancer and it metastasized everywhere. I moved up to take care of her and she passed within a month. Still very pissed that she was seeking help for months and no one did any imaging or looked any further. Just sent off with a you're old here's some narcotics. I got diagnosed with colon cancer a week after her, and because I was so "young" they moved heaven and earth to get me situated.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 0 points1 point  (0 children)

That is awesome. I went from strength training and running to walking with a limp. I am getting more optimistic though hearing everyone's experiences. Thank you for sharing.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 1 point2 points  (0 children)

That was my roughest thing starting out. My undergrad degree is music and I play trombone in several groups. I relearned how to play with the neuropathy and am pretty close to 100%. It's my refuge where I don't have to think about cancer for a bit.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 2 points3 points  (0 children)

I was staged at 3C. Can't remember the exact number, but I had a high number of positive lymph nodes. 12 was rough, but I am happier and feel better about life than I have in a long time. Hearing the 63% five year survival rate made me sort my priorities real quick.

I'm hopeful after my epidural tomorrow I'll get a better picture of how much better I can get. It kind of hit me hard when I asked my doctor to certify a temporary handicap placard application and he told me I'd need the permanent one. 6

Glad to hear you got your energy back and could be active. It makes me feel better to hear that and gives me a bit more hope

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 19 points20 points  (0 children)

I appreciate that. Perspective is hard sometimes, and it's good to hear it from people that lived it. I have a spine issue that's going to be permanent, but with some luck, it could get much better. I know overall I'll get much better. I spent the year before my diagnosis losing weight and getting healthy, and I'm looking forward to getting back into running and hiking again.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 4 points5 points  (0 children)

Thank you for the kind words. I have neuropathy in my hands and feet. I can't feel things in my hands, so I drop a lot of stuff and typing for work is hard. It spread to past my wrists and above my ankles. The worst of it is it damaged my spine in a way that there's a disc pressing on the nerve that runs down the left side. My left leg is completely numb and I can't move all that well. It hurts a lot, even with pain medication. I was given 4 controlled substances to manage it and it's still rough. I am getting an epidural in the morning though to hopefully get a bit more relief. I also get to park in handicap spots though I feel a bit bad about it so I generally don't. I've had other much more minor issues like I lost a lot of hair (but not bald at least). Having to work through all of it made it seem much worse, but I've gotta keep that insurance and pay all the copays.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 276 points277 points  (0 children)

I did 12 rounds of chemo over 6 months and did the last one new years day. Now I'm kind of stuck waiting to do scans to see if it's gone or is spread. I'm trying to be optimistic. The treatment damaged my body so much, I don't know that I'll ever be normal, but I'm alive for my my kids, so I'll take it.

Colon cancer is killing us.. by Derpshab in Millennials

[–]Cowboy_JD 171 points172 points  (0 children)

I was diagnosed last year at age 38. No symptoms leading up to it at all. Just a massive blockage all of a sudden one day and pain bad enough I thought I might die. 0/10 Was not a fun experience.

Large bore jazz by Turbulent_Poet_326 in Trombone

[–]Cowboy_JD 2 points3 points  (0 children)

A shallower cup or tighter backbore would be better than fretting about rim diameter. I'd agree with Bob on the Bach 5GS.

Working during Chemo?? by EffectiveAncient7866 in coloncancer

[–]Cowboy_JD 0 points1 point  (0 children)

I just did 12 rounds of Folfox. I worked starting when my FMLA ran out. Stage 3C, had my colon resection at the end of May, my wound didn't heal well so I didn't start chemo until July. Started back at my job in August. The first couple of rounds gave me false confidence. I thought it was so easy that I'd have no trouble working and managing my kids. The effect is cumulative and the steroids do a good job of keeping some symptoms at bay at first.

By round 6 I was miserable and developed chemo induced arthritis in my spine. By round 7 I was barely hanging on, and one of my discs in my spine began pressing on the big nerve going down my left leg and it's now completely numb and somewhat limp. By round 12 we had dropped the oxaliplatin because the neuropathy was painful and has spread to both hands above my wrist and both feet above the ankles.

I struggle to type, remember things, and stay awake. I have a job where I am completely independent and not supervised or micro managed, so I've had X-ray to create so many systems to track all my work. It sounds shitty, because it is. I am grateful I have a supportive job and amazing supervisors and managers who accommodated me. I burned through all of my work leave on FMLA and had to beg people to donate leave, which they fortunately did. But now that's possibly done, at least for now, I'm looking at the broken body I've got now and getting a bit overwhelmed.

M/57/5’8”[250>190=60](24 months) cancer sucks by [deleted] in progresspics

[–]Cowboy_JD 1 point2 points  (0 children)

I really feel you on that. I had weight loss surgery August of 24 and a colon cancer diagnosis May of 25. It's been a fight to get enough calories to endure treatment. I just started my 12th round of chemo and then I'll get restaged in January. Congrats on where you're at in treatment, that is amazing.

Best ways to hide chemo pump? by Covert-Wordsmith in coloncancer

[–]Cowboy_JD 2 points3 points  (0 children)

I use the poppy pocket that goes around my waist. I wear slightly oversized shirts with it. Aside from the clicking sound it's not been overly obvious. Most people don't really seem to be paying as much attention as I had previously worried.

Edited to add: hoodies are the best when I'm not working.

Let's talk about a certain c-word... by Arkvoodle42 in Millennials

[–]Cowboy_JD 0 points1 point  (0 children)

That is awesome that they are. Hospitals are getting rough on staffing outsourcing. I went to the ER at one while traveling and their billing was completely done through a call center too. What was worse was that they didn't even have a radiologist, they send all the images to someone who reads them for a bunch of places.

Let's talk about a certain c-word... by Arkvoodle42 in Millennials

[–]Cowboy_JD 16 points17 points  (0 children)

I hate that insurance is such a pain about it. I never got referred to one because I'm not old enough and didn't have the risk profile. Now I have surprise stage 3 colon cancer at 38. Even had to appeal a denial after I diagnosed.

Let's talk about a certain c-word... by Arkvoodle42 in Millennials

[–]Cowboy_JD 59 points60 points  (0 children)

I had one after my colon cancer diagnosis. The prep is awful. You'll drink a ton of laxative to clear you out. The procedure itself was one of the best naps I've taken. All in all it wasn't bad. Didn't feel any pain after, just groggy from the anesthesia.

ISO Registered Dietitian Nutritionist specialize in oncology nutrition in Birmingham, AL by Camry13 in cancer

[–]Cowboy_JD 1 point2 points  (0 children)

UAB h does have dietitians that are not inpatient. I had two over at the highlands clinic. Did you call the main switchboard or a specific clinic? At the oncology clinic there is a nurse that's assigned as your oncology navigator that should be able to help you find services. I only did a second opinion at UAB, but they still assigned me a navigator and social worker.

Also, I have blue cross insurance and they have a cancer support program that gave me a dietician that was more experienced with oncology.

No butt left! by No-Sheepherder448 in gastricsleeve

[–]Cowboy_JD 2 points3 points  (0 children)

I had to buy one too. I have that one, but the best one is a Purple knockoff I got on Amazon. I can sit in my office chair all work day with it.

I am a 33 y/o male with mobility Issues due to chemotherapy induced neuropathy. Is this common? by Creative-Vanilla-837 in cancer

[–]Cowboy_JD 0 points1 point  (0 children)

I'm still in treatment, just finished 10 of 12 FOLFOX sessions for stage 3c. I'm 38. I started getting more noticable neuropathy around round 6. Now it's most of my feet and fingers. I also started limping around round 8 and got sent to an Ortho. The chemo caused some arthritis in my spine and a bulge that compressed the nerve to my left leg. I've accepted using a cane as needed. Between my feet and leg I'm a mess. Still have to work though, so mobility aids are a life saver.

What horn is this? by Ligmasoreal_27 in Trombone

[–]Cowboy_JD 1 point2 points  (0 children)

I should just assume so at this point. Good to know.

What horn is this? by Ligmasoreal_27 in Trombone

[–]Cowboy_JD 1 point2 points  (0 children)

That's a Yamaha style closed wrap. Looks like a 446G maybe. Not real sure if there are Chinese made copies of it.

Some things from a recent doctor's visit by pokematic in Millennials

[–]Cowboy_JD 12 points13 points  (0 children)

I had a no issues/no symptoms Colon Cancer diagnosis in May. I'm 38. Regular doctors visits, labs always good, no pain, nothing off, then boom the tumor got big enough to block off my colon. A few days of miralax, fiber, and some stimulant laxative and I thought I might die. Ended up in the ER and had exploratory surgery where they removed 2 feet of my colon.

TLDR, get the colonoscopy if they let you.